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NYY_FAN's Photo NYY_FAN Posts: 959
11/19/12 5:53 A

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I to suffer from back pain I had the surgery L5/S1; Unfortunately, they have to do Radio Frequency Legioning (RFL) to me every 6 months to a year because no pain medication actually works.
I did gain a lot of weight do to not being able to move however my pain management doctor just put me on a drug called Topermax (IC TOPIRAMATE) which helps with nerve pain I guess. While it does not help me personally with the pain the one common side effect it is helping me with: you loose weight and a lot of it I loose 2.5 pounds if I do nothing in a bad week. If I can move like this week for example I lost 5 pounds. I sound like cheating and I feel like I am but since I have been injured I have gone from 185 pounds to 313 pounds I have never weighed this much in my life and I can not move to get it off me. So, I will take the help where I can get it. The doctor's hope is that if I can get this excess weight off that some of the "pressure" will also be removed from my lower spine. Sorry, While I am a fan of women with large breasts I cannot help you there. Sadly don't they also get smaller when you loose weight?
To answer your question I started taking this medication September the side effects are not only helping me lose weight. It also helping me sleep at night (6 hours which in my entire life I never have), My Doctor has also reduced my blood pressure medication in half, I have also stopped taking heartburn medication which I no longer need. Does it help with the pain no it does not. The loss of weight has not made a noticeable difference yet either. I am hoping it will when I get down to what I should "normally" weight. I am just excited that I finally found something that is working for me after twelve years of searching. The Doctors told me that everybody's body cannot handle this medication I guess I am lucky in this regard. In the mean time I need to get another RFL because their is no pain med that works on me without making me sick.

I got one for you guys:

It feels like my legs at the hip level are being pulled away from my body. My Doctor's sent me for exrays and they are normal but the sensation never stops. Is this me being crazy? It is mainly on my left side! If I lay on that side it feels better from the pressure applied. I any of you are experiencing this what are you doing about it?


Edited by: NYY_FAN at: 11/19/2012 (08:27)
It's Football Season Folks.

GO!!! Pats

Ran


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SKOZAK Posts: 2
9/29/12 2:28 A

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Hi! I am new to this group. I had back surgery L4-L5 14 years ago and recently aggravated it from running to the point that I was bedridden this summer. It was really difficult for me as I have 2 girls ages 9 & 11 and relied on them and my husband to care for for everything for me. I found out that I have severe stenosis of the S1 nerve which was preventing me from walking. I did steroid injections, PT, and am currently seeing an acupuncturist. I am on extended relief pain meds Nucynta and also take Perkocet as needed. Initially I was taking 10-12 a day but have managed the pain down to 1 pill every few days. I have tried a couple of times to stop the Nucynta which is a narcotic but the pain becomes unmanageable. Although I have only been on chronic pain meds since July, it has been very tough and emotional for me. I am young, 37 and don't even feel like I am inside of my own body. The pain med doc recommends going to see a surgeon again but I absolutely refuse. They said surgery wouldn't guarantee a fix and it took a full 2 years to recover from the first one. My plan is to diet and exercise (as much as I can physically do as walking and standing for extended periods is still tough for me) to lower the stress that I am putting on my back. I also have a large bust which has always been a problem for my frame and am considering getting a reduction once I am at my ideal weight. I am surprised at how long some of you have been on pain meds and it saddens me that you have all suffered for so long. It has been tough on my husband just these few months and it is really hard for our spouses to understand or empathize with our sufferings because they are so chronic. My husband does help a lot but he does complain when I ask him to rub my legs or back as it is needed to be done daily, sometimes many times a day. He rationalizes that I always have the pain so rubbing me won't solve anything. Then other days he is very caring and wants to care for me so I know that he has his own struggles dealing with my pain as well. This post is getting longer than I anticipated but I really haven't had a chance to talk over my problems without feeling like I am just complaining so I thank you all for letting me rant like this. Back to the topic of medications, I am really struggling with coming to terms that I really do in fact need this medication and that my body relies on it to function. Has anyone had significant weight loss since being put on medication for chronic pain and if so, have you had relief from the weight loss alone and were you able to lower or stop meds because of the weight loss?

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JORULES's Photo JORULES Posts: 50
4/30/12 9:39 P

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wanted to add as i was reading through posts yes i have had that look from a doc that I am either a drug addict or that it is all in my head. I actually take my x rays with me to any new doc chiropractor, PT so I can say look it is real. Just know that we know it is not in your head. Pain meds are there to help us. I do take tylynol 3 as needed usually only at night. Yes it is hard for people who have not been there to understand. Good luck to all of you. Just knowing I am not alone has helped so much. I joined for wright loss but have found much more help.

Be kind, for everyone you meet is fighting a hard battle. -unknown

Be the change you want to see in the world -Ghandi

Nothing is impossiple, the word itself says I'm possible - Audry Hepburn


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JORULES's Photo JORULES Posts: 50
4/30/12 9:18 P

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I have nerve pan as well and I have tried neurontin. Unfortunately for me it made my feet and body swell but if I did not have that side effect I would still take it. I have heard it is awesome for nerve pain as other meds do not work as well for nerves. Keep using it if it is helping. I am in PT as well and got way worse before slowly better like just today I am jinking that maybe it is helping. I have spondylosis as well with pars defect. I am on Celebrex for the arthritis in the back joints. If the neurontin does not work have you thought about a Radio Frequency Ablation? They go in and kill the nerves by sending electricity into them. They do grow back. I just had my 4th one 3 weeks ago. Mine last about a year to year and a half. My very first one lasted 2 years. I will have the other side done in a few weeks. Hang in there it will get better. Talk to me any time. emoticon

Be kind, for everyone you meet is fighting a hard battle. -unknown

Be the change you want to see in the world -Ghandi

Nothing is impossiple, the word itself says I'm possible - Audry Hepburn


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KRYSY_8's Photo KRYSY_8 SparkPoints: (0)
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1/17/12 6:18 P

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Hello everyone. I too have a prescript for tramadol. Hydrocodone makes my tummy sick. I also ahve valium, was on flexerill but dr thought the valium woudl work better for muscle relaxer, (strange i thought) i do not take everyday. I Just started taking 500 mg of Naproxin 2 xs per day.
I have often wondered about th e injections some get to relieve pain, steriod injections or something?



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HEALTH_NOW's Photo HEALTH_NOW SparkPoints: (45,019)
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7/3/11 1:08 P

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Yes, I 2 courses of trigger point injections including one injection in my right hip.

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GOLFER_65270 Posts: 1
6/25/11 8:18 A

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I am curious. Most of you mention pain meds and muscle relaxers. I was diagnosed with spondylosis with 2 bulging discs and one with an annual tear. My pain was not in my back, but down the back of my butt, in the groin and down the entire leg. I was hardly able to walk, the more I did the more pain I was in. When the initial pain set in, I was prescribed Naproxen and Soma. These did not work at all!!! I was extremely blessed to see a back doctor 2 days after the initial onset of pain. He immediately put me on Neurontin aka Gabepentin. This was a miracle drug for me. Has anyone else been prescribed this and did it work for you? It has been about 5 weeks since this all started and I am usually pain free most days. I started therapy about 3 weeks ago and that is about the extent of my exercising right now. emoticon

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MEGANOWEN's Photo MEGANOWEN Posts: 58
3/21/11 7:01 P

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Thanks for the responses. I am trying to scale back on meds because I was taking quite a few! Still struggling but I might be getting a tiny bit better. Thanks!

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SVEHEX SparkPoints: (0)
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3/20/11 2:50 A

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I take meds every day because of my back, knees and other joints. The meds I'm on aren't in the category that make you addicted.

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JUNEBUG160's Photo JUNEBUG160 Posts: 577
3/17/11 6:46 P

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Welcome Megan. I hope you can find relief for the pain soon. I started quilting after reading about 100 books and couldn't read another word. I found it was a combination of standing and sitting that I could survive and keep occupied. I also started going to the pool. The bouyancy of the water gives my back the relief it needs and I can feel normal for a while. I'm not suggesting you take up quilting if your not so inclined but something within your ability to stand/sit for periods that takes a bit more concentration than just survival. pain can certainly take over and send us into a spiral of horrors. look into pain clinics in your area. There may be something available to you that's just not advertised.

Women are like dragon flies.We spend our lives waiting to become something beautiful only to realize (so late in life) that we already are.


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MEGANOWEN's Photo MEGANOWEN Posts: 58
3/13/11 12:41 P

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Hi, I'm new to this team. I have a bulging disc, arthritis and degenerative disc disease.It's causing sciatica and I'm to the point of not being able to do much except wander around trying to find things to do that don't hurt as much as the previous activity. I'm wondering how you deal with this chronic pain without just staying in bed all day? I'm trying to stay upbeat but I've had to stop exercising and that was my stress buster. My hubby is in Kuwait and my kids are grown so I don't have any distractions from myself. My poor miserable-in-pain self!!! I feel like I've become a different person and I want to get back to the happy go lucky person I was. Help!

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IT_NURSE's Photo IT_NURSE Posts: 84
11/30/10 6:56 P

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Has anyone ever had cortisone injections? I have trochanteric bursitis and am schedule for an injection into my hips later this month.

Weight Goal: 150's by Feb 18th

Cardio Goal: 2330 min in Feb

Live well, laugh often, love much


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NANRIG's Photo NANRIG SparkPoints: (0)
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10/11/09 9:43 A

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Hello, I am on tramadol, it no longer works for me and I am addicted to it. Once or twice I have forgotten to take it and it was not pleasant! I also am on pregablin (?), and an anti inflammatory. The doctor keeps changing the anti inflammatory if I moan too much and that works for a little while

Nancy Nicholson



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TKENIMER Posts: 3
4/8/09 2:31 P

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For those asking about medicines to take while you are at work....I have been wearing the Fentanyl (or Duragesic, brand name) patch for longer than I can remember. I seem to do fine being able to function with it because it puts the pain med in your body a little a time. Granted my tolerance goes up pretty quickly, but I still like the low maintenance part of not having to physically "take" the med every day. I just change out the patch every other day.

emoticon

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MARGIE776's Photo MARGIE776 Posts: 68
4/6/09 1:58 P

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I am taking tramadol also. I think that I need to increase my dosage since it is not working like it was before.

Margie aka MoM


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ZELLKA Posts: 4
11/17/08 5:52 A

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I am taking tramadol and muscle relaxants along with anti sickness drugs. Was on morphine sulphate for 5 months before that,
tramadol works well but makes me feel really sick.
wish it would just go away so life could get back to normal. emoticon

Edited by: ZELLKA at: 11/17/2008 (05:53)
VONNIE17 Posts: 384
11/3/08 2:35 P

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Thanks for the advise I am in medical field too.So am planning ask all kinds of questions.

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ARMYMOM46's Photo ARMYMOM46 Posts: 5,267
11/3/08 1:03 P

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Sorry to hear that you are going to have to have surgery. I have had 14 on my back and waiting to hear when I am going to have another one. I have learned alot of things and have a medical back ground. Make sure you ask your Dr lots of questions. Go online and research questions to ask your Dr. Aslo while in the hospital ask the nurses what your vital signs are especially your temp. And you aslo have the right to see your medical records to make sure your vital signs are being recorded right. If you have to stay in the hospital have a family stay with you to keep a journal of your vital signs, and when the nurses are in your room and why they are. Ask when you can have your meds and when you are to have antiboitics. Make sure that when they are given to you it is wrote down and how long it took them to give you your meds after you have requested pain meds if needed and right down when your antibiotics are given to make sure they are given when they are suppose to be and none of them are skipped. I am telling you this cause after one of my surgeries the nurses did not do what they were suppose to do and falsified my temp in my medical records along with a few other things. I laid in body fluids for hours at a time and was running a high temp. This was not recorded in my chart and my Dr did not know what was going on and was released with a staff infection. I did not know this until 2 weeks after my surgery when I calasped and had to be rushed to the hospital. The staff infection was so bad it almost cost me my life and many more surgeries 1 every 3 days for 2 weeks and spent alot of time in the ICU and have alot of blood transfusions which one I had a reaction to cause they gave me the wrong blood. I wish the best of luck to you on your surgery

ARMYMOM46
OUR FREEDOM IS NOT FREE PRAY FOR OUR TROOPS.


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VONNIE17 Posts: 384
11/3/08 11:58 A

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I am on muscle relax three times ady nd tramadol and still having pain seeing surgeon on thursday the nov 6th. as going to have to surgeryas have severe spinal stenosis.

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LUVZABQ's Photo LUVZABQ SparkPoints: (0)
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11/1/08 7:15 P

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emoticon CLBUNYAN,I DO APPRECIATE YOUR INPUT. I DO TRY TO STAY AHEAD OF THE PAIN.TOLERANCE IS WHAT MY BODY HAS BEEN DOING WITH TRAMODAL,I AM NOW UP TO 100 MG. 3 TIMES A DAY. BUT I DO KNOW THAT IT DOES HELP ME KEEP MY QUALITY OF LIFE! emoticon

LUVZ HORSES! YAHOO!! I NEED'N TO GET IN PHYSICAL CONDITION SO I CAN RIDE AGAINST THE WIND!! AGAIN! KNOW WHAT I MEAN?? YOU ARE SUCCESFUL THE MOMENT YOU START MOVING TOWARD A WORTHWHILE GOAL!!


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ARMYMOM46's Photo ARMYMOM46 Posts: 5,267
10/30/08 5:02 P

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Sorry to hear about the pain. My Drs have me on 4 pain meds 2 of which are the srongest on the market and I still feel the pain. One of the medications side effects is weight gain which makes me trying to lose weight twice as hard. Keep your chin up and I have several ideas on how you can excercise that will lessen your pain while doing exercise

ARMYMOM46
OUR FREEDOM IS NOT FREE PRAY FOR OUR TROOPS.


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MAZACK's Photo MAZACK SparkPoints: (84,099)
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10/30/08 4:39 P

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I have been is some type daily pain since my mid 20's (I'm 64 now) and have take so many types of pain med's, NSAID's, Muscle relaxers and even some tranquilizes years ago I don't remember the names and reason's I went off them. I have been off muscle relaxers for a year now since I developed Sweet's Syndrome.

Mary Ann -
West Central Arkansas.

Live each day to the fullest, believe in yourself.

Each day is the first day of the rest of your life


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USPSLDY's Photo USPSLDY Posts: 1,338
10/25/08 3:57 P

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Hi LUVABQ
Sorry to hear about the pain. I have taken Tramadol in the past and it works about as well as anything else I've taken. Right now my doctor has me on 3 different medications and I am still having pain. You have to be careful and not let the depression take hold. Some days I feel like staying in bed all day but that doesn't help. Stay active and positive emoticon

Edited by: USPSLDY at: 10/25/2008 (15:58)
Things change for the better when we take responsibility for our own thoughts, decisions and actions.
When you discover it's your choice and your attitude, things start to happen!
Think of yourself as a toy train. All toy trains de-rail now and then. Pick yourself up, dust yourself off and get back on track.


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LUVZABQ's Photo LUVZABQ SparkPoints: (0)
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10/25/08 12:43 P

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emoticon HELLO YA'LL.MY BACKSPECIALIST PRESCRIBED ME MOBIC ORAL. IT DOES'NT DO ANYTHING FOR ME. BUT MY PRIMARY DOCTOR PRESCRIBED "TRAMADOL" PLUS I TAKE "FLEXERIL" FOR MUSCLE SPASMS.I AM STILL IN ALOT OF PAIN, HOPEFULLY I CAN DO BETTER WITH PHYSICAL THERAPY! ALL I KNOW IT IS VERY DEPRESSING LIVING WITH PAIN. HAVE AGOOD DAY! emoticon

Edited by: LUVZABQ at: 10/25/2008 (12:49)
LUVZ HORSES! YAHOO!! I NEED'N TO GET IN PHYSICAL CONDITION SO I CAN RIDE AGAINST THE WIND!! AGAIN! KNOW WHAT I MEAN?? YOU ARE SUCCESFUL THE MOMENT YOU START MOVING TOWARD A WORTHWHILE GOAL!!


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USPSLDY's Photo USPSLDY Posts: 1,338
9/16/08 5:30 P

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Is anyone taking zanaflex? I take it only when the pain gets to be too bad and I can't take it all at work. Some people I know with back pain use Lorcet and work while they take it. I tried Lyrica but it didn't do any good.

Things change for the better when we take responsibility for our own thoughts, decisions and actions.
When you discover it's your choice and your attitude, things start to happen!
Think of yourself as a toy train. All toy trains de-rail now and then. Pick yourself up, dust yourself off and get back on track.


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JROTC1's Photo JROTC1 Posts: 138
7/18/08 10:55 P

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I want to add I am an RN in a Family Practice Office (6 physicians) and I am the Lyrica and Cymbalta expert (funny) telling patients how to increase the dose and what to expect etc.

JROTC1's Photo JROTC1 Posts: 138
7/18/08 10:53 P

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I take Lyrica and Cymbalta for my lumbar radiculitis. The Lyrica alone helped some but it wasn't until they added the Cymbalta that it really got better. I do have some side effects dry mouth, constipation, fatigue but as I have been able to decrease the dose they have gotten a little better. Mine is nerve pain and NSAIDS didn't really do anything for it

RUHAPPYTOSEEME's Photo RUHAPPYTOSEEME SparkPoints: (0)
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5/19/08 12:09 A

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I hear ya, Im going to move to texas in the next year or so. Im scared to death of finding another dr, I mean here I have a few dr`s I go to, for different stuff with workmans comp, but I dont know any one in texas. good luck! hugs

Soul Patrol!!! WOOOO!!!!
missing my sweet Destiny, r.i.p. 1997-2008


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DAISY.WREATH Posts: 7
5/18/08 12:34 P

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Something I really hate is that I became allergic to NSAIDs several years ago. I was at the hospital and was given a shot of Toradol, which was the best drug ever. It's an NSAID, so it didn't make me feel stupid or sick, but it has (I was told) about the same painkilling effect as morphine. It was awesome. Until I started wheezing :( Now I can't take ibuprofen or anything--I was told not to, tried once anyway, and wheezed so much I thought I'd have to go to the hospital, much worse reaction than the first time. (The doc says that will only get worse with exposure, so I haven't tried that again. I don't want to find out what it feels like if I stop breathing!)

I take a muscle relaxer three times a day, every day. A mild painkiller when I need it, tylenol at other times. (Probably more tylenol than is good for me, really.)

I may have to go off some/all of my meds because I've moved and don't have a doctor right now, and I'm trying like crazy to get myself in better shape before my refills run out.

I can find another doctor, I know, but I'm nervous about it. Have you ever gotten "that look" from a doctor that didn't know you well after finding out what meds you take? The one where they assume you're a junkie because you're in pain? I just don't want to go through that, to the point where I'd rather go off the meds altogether even if it means more pain. So I'm trying to get myself stronger in hopes that it won't be as bad when I run out.

AENONIMOUSE Posts: 39
5/3/08 5:22 P

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I don't know what I'd do without Neurontin! I have amazing pain down my leg and this really curbs it, since it deadens the sensation. They issue me Motrin for swelling, since the other meds either don't work or give me side effects that are more than uncomfortable.
My husband had surgery that was wonderful, he could hardly stand and was actually dragging his leg before. He was up and walking with no pain 4 hours after surgery. Just incredible, he was taking neurontin and vicodin at maximum levels the day before surgery...which led to withdrawl the weeks to follow.
I was taking Ambien at one point and I think this is the best medicine ever made! The reason I initially took it was not for my back/leg but it absolutely allowed me to sleep through the pain after the pain began. I choose now, to not use it unless necessary. I will use Tylenol PM if the pain is dull, but it does make me feel groggy and irritable the next day unlike Ambien.
I had stone massage, which was wonderful but my pain was not at it's peak. I will not use a chiropractor, my spinal tissue is exposed, there is no manipulation that will bring it back & it would only potentially cause more damage.


RUHAPPYTOSEEME's Photo RUHAPPYTOSEEME SparkPoints: (0)
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5/3/08 12:48 A

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oh Marina thats awesome! I have been in pain 24/7 since september 2002, had many surgeries, I went to chiropractors, pain management, and so much, I would love to have less pain and be able to work again. Im so happy for you, just dont over do it. :) hugs

Soul Patrol!!! WOOOO!!!!
missing my sweet Destiny, r.i.p. 1997-2008


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MARINA963 Posts: 430
5/2/08 12:27 A

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Hi All,

I'm new to your SparkTeam and to SparkPeople...

I'm currently disabled with L4-L5 disc problems...
About a year ago, I had pain going down both legs and the doctors did not see a reason to do surgery (which I didn't want).

My problems were considered weight bearing, meaning that I'd start off in the am ok, but by evening the pain was extreme. There were three times during the first 7 years, that I could not walk (first time 10 months, second time 3 months), one time I ended up in the hospital because I could not even move my legs!

The doctors prescribed Oxicotin and a couple of other things that messed up my mind and made me soooo sleepy I couldn't function. I had them cut all of those types of med's out and had them put me on Tylenol 3 w/codeine and that worked for a while, until one day the pain was so bad that the pupils in my eyes were to dilated that you could not tell what color my eyes were.

After that day, I've been on Hydromorphone (form or morphine) and that was a blessing!

In addition, a friend referred a wonderful chiropractor that did gentle massage therapy to help release a pinched nerve in my low back!!!

Immediately, after the did his technique, I had the most wonderful pain free/very little pain since then! I was able to cut my Med's down to "only when needed" and I have since returned to work after nearly 7 years!!!

Don't get me wrong, it doesn't take a whole lot to mess it all up, but it's been the best year since this nightmare began nearly 8 years ago!

I feel the frustration and pain all of you are going through and I hope you too will find someone who will listen. Believe me I had to go through 20+ doctors, until they started listening to me!



Finally made it to 130 lbs!!! Only 10 more to go!!!

I CAN DO IT...IT MAY TAKE A FEW MONTHS...I CAN SUCCEED IN THIS LONG LIFE TIME GOAL!!!


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RUHAPPYTOSEEME's Photo RUHAPPYTOSEEME SparkPoints: (0)
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4/4/08 11:57 A

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Id say yes to with dinner, your eating, your sitting up, so that should work :) I hope this medicine works for you, any relief is welcome I know. hugs good luck

Soul Patrol!!! WOOOO!!!!
missing my sweet Destiny, r.i.p. 1997-2008


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LISLCAT's Photo LISLCAT Posts: 46
4/4/08 8:26 A

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I think that Mobic is one of those NSAIDS that takes a few days, before it builds up in your body enough for you to notice a difference. So give it awhile, to see if it will work for you.

Good luck!


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SKYBLUEFUSION's Photo SKYBLUEFUSION SparkPoints: (0)
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4/4/08 4:04 A

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Ok I'll probably start taking it with dinner. Does that sound like a good idea?

-Blue


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LISLCAT's Photo LISLCAT Posts: 46
4/3/08 5:52 P

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My MIL uses Mobic for her back and she likes it. I would definitely take it with a meal and don't take it right before bedtime. Like with any strong NSAID, it can cause stomach upset.

I hope it works for you!

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RUHAPPYTOSEEME's Photo RUHAPPYTOSEEME SparkPoints: (0)
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4/3/08 5:50 P

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opps forgot to add, it says you need to be sitting up, and take at least 10 minutes before bed time so Im assuming they dont want you to lay down for at least 10 minutes of taking the medication. you can always call the pharmacy (I love calling cvs they will answer any questions you have about a medication, more so then many dr`s even will)

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4/3/08 5:48 P

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this is taken from the website im going to post :
"How should I take this medicine?
Take meloxicam tablets by mouth. Follow the directions on the prescription label. Swallow tablets whole with a full glass of water; take tablets in an upright or sitting position. Taking a sip of water first, before taking the tablets, may help you swallow them. If possible take bedtime doses at least 10 minutes before lying down. If meloxicam upsets your stomach, take it with food or milk. Take your doses at regular intervals. Do not take your medicine more often than directed."
http://gsm.about.com/compact/showtext.as
p?cpnum=755&r=6078&match=B&infotype=&i
xid=41&ix=Meloxicam*tablets&gname=Melo
xicam&last=
gsm.about.com/compact/showtext.asp?c
pn
um=755&r=6078&match=B&infotype=&ixidR>=41&ix=Meloxicam*tablets&gname=Melox
ic
am&last=


(its the same medication)

Soul Patrol!!! WOOOO!!!!
missing my sweet Destiny, r.i.p. 1997-2008


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SKYBLUEFUSION's Photo SKYBLUEFUSION SparkPoints: (0)
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4/3/08 6:05 A

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My doctor just gave me mobic for my back. He started me on the maximum dose (15mg) instead of 7.5 like everything i read suggests. The bottle just says takes once a day. I dont know if it's best to take at night or at the start of the day.

Any experiences with mobic? Suggestions? etc?

-Blue


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3/22/08 12:25 P

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well ive been on 5 mg vicodin, soma and ambien for 6 years, and they dont get rid of the pain but they help, if im having a good day (more in the summer then winter) I can get by on 1/2 vicodin at bed time and my soma normal and ambien, but on my bad days i take a total of at the most 3 pain pills a day but I always try 1/2 pill at a time to try and get by on that. I do take tylenol in between to try and help or advil, sadly they dont help much. I always worry about addiction but my dr said because I dont take more now after 6 years (cept after surgeries of cource, but we always work me back down, dont have withdrawels, just pain) that I am fine, probably have to take the meds the rest of my life but only take the vicodin as needed (mind you it never takes the pain away but it also doesnt make me loopy as ive been on it a long time and its very low doses. I try to stop it altogether but I wont leave the bed on bad days and cry all day, so I take the lowest doses possible and at least its managable most days

Soul Patrol!!! WOOOO!!!!
missing my sweet Destiny, r.i.p. 1997-2008


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LISLCAT's Photo LISLCAT Posts: 46
2/4/08 2:07 P

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Hi All,

I am currently taking Ketorolac with flare ups and it usually takes 2 weeks to calm it down. If anyone else has Costochondritis or knows what it's like, I love to chat with you. It basically feels like you're having a heart attack and it is often misdiagnosed as that, until they do the EKG and find out your heart is okay. I damaged the cartilage that holds my ribs in place. When the cartilage is irritated, it flares up and my ribs move out of place, which causes the pain in the sternum. I did take Vicodin for a few months, but it gave me weird thoughts. For one, I just hated my husband when I was on them, even though he was basically taking care of me 24/7. Once I stopped taking them, I was back to normal. The Vicodin never got rid of the pain anyway, it just made me not care if I had pain. My mother would get crazy when they gave her Oxycontin. She would just be out of her mind, so I told my doctor no to that. Currently, my doctor doesn't want to give me anything else, until I lose some weight. I'm hopeful that it will help. I just try and treat the pain, day by day and use ice when needed. Good luck!

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RICKYDAF's Photo RICKYDAF Posts: 1,260
1/31/08 11:36 P

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I have been taking all kinds of meds! Wish I could quit but it seems to hard to get through the day without the pain meds. I was taking pregabilin(lyrica) but our insurance company now will not cover it anymore so now I am on Gabapentin. Doesn't work as good but it gets me through the day. I just finished dexamethazone and I also take 600mg of Ibiprofin on my really bad days. If I do to much I find I need my T3's but for the most part its just the Gabapentin. Frustrating though all I want is to have the pain go away and my life be just like it was a year an a half ago.


Life is like a box of chocolates, you never know what you are going to get!

Live life to the fullest you never know what tomorrow will bring!

Live, Love and Laugh!


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RAVENSEDGE08's Photo RAVENSEDGE08 Posts: 6
1/30/08 10:24 A

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I have taken the full course of pain meds and found that they really just "knock" me out, so I try to go without. I do take my 800mg ibuprophren and a regular basis and am on Neurotin for my nerve damage in my leg.

I too, like a poster below, just try to deal with the pain on a daily basis. If I start hurting more, I just ease up on my workouts/walking etc and use the heating pad 24/7. I also have the Lidoderm pads that I use just about every day.

The only thing that has eased my pain were the injections I got a month ago. Now Im just afraid what it will be like when that wears off.

Edited by: RAVENSEDGE08 at: 1/30/2008 (10:25)
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USCANDEECE's Photo USCANDEECE Posts: 10
1/27/08 9:48 P

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Cymbalta is often prescribed for Neurological pain and it has worked wonders for me. I have been on it for over a year and I now have no side effects. Initially there were digestive issues but after a couple of months my body got used to it. I am so happy to be away from those narcotics because they cause soooo many side effects and if you're working, how do you stay awake on any of them?!

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REALERN's Photo REALERN SparkPoints: (0)
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1/10/08 11:38 P

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It is unfortunate that the medications which control our pain cause so many other problems. I am so thankful I had the surgery, because the pain is much better than it was before, but it is still there. My biggest problem is that my right leg remains weak, and I have a lot of nerve pain. Exercising helps a lot, and I do about 30-45 minutes on the elliptical machine at least 4 days a week. If my back is really bad I just do some walking on the treadmill or the recumbant bike. I need to look into water aerobics again, I just can't bear the thought of getting in a pool in the middle of winter though!

Jen
You don't realize how strong a person really is until you see them at their weakest moment. - Unknown
You don't drown by falling in the water. You drown by staying there. - Unknown




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BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
1/9/08 5:11 P

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I, too, have been on many medications throughout the past 10 years, but I usually don't take them because they just mask the real issues. I suffer through without because I can barely function on any of them. I find myself being very bitchy sometimes around my husband, and realize it is usually out of sheer pain. People with good backs have NO IDEA how blessed they are. Sometimes I can barely get out of bed and walk in the morning..even with the best mattress available, but I do it for my son. His sweet smile makes living with the pain and not being doped up all the time worth it!

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MICH3LYN's Photo MICH3LYN Posts: 115
12/13/07 9:30 P

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I am sooo ready to start to come off all my medications. There are at least 3 medications that I am taking because of the pain medication I am taking. I am currently taking Oxycontin and Percocet. On the Oxycontin, I have been up and down between 30mg and 80mg every 12 hours. Talk about non-functioning. Right now, I'm at 60mg and now that my surgery is complete, I'm ready to start backing down. My doctor is wonderful though. He will back me down 10mg a month until I am off of them. No withdrawals that way. Originally that's how I got down to 30mg from 80mg. Then I fell and pain came back and so did the Oxy. Percocet is 10mg/325. Tomorrow I'm going to ask the doctor to drop those to 7.5/325 along with the drop in Oxy. I'm hoping that by the time I'm done, I can "really" be done. I've been on this medication for over a year. Then I can kick the sleeping pills, the stomach pills and depression/anxiety pills caused by the pain pills. If you aren't concerned about becoming addicted, you should really be the one to be concerned.

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11/29/07 10:53 P

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It's hard to remember when I wasn't taking pain medications! I had my fusion in 9/2006, but I was taking Norco, ultram, and diclofenac for a long time before surgery. I was on Norco, Fentanyl and Zanaflex for about 9 months after the surgery. Now I am on relafen, cymbalta, lyrica, and elavil for pain, but I have trouble taking them because they make me dizzy 24/7. I need to go back to see my pain doc and see what we can do. The pain is fairly well controlled when I can take the medications, but I am practically bedridden when I do!

Jen
You don't realize how strong a person really is until you see them at their weakest moment. - Unknown
You don't drown by falling in the water. You drown by staying there. - Unknown




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RABLEY Posts: 242
11/7/07 4:16 A

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I have been taking antiflamatory drugs for my back for years but i have just changed them to diclofenic and i have noticed terrible ringing in my ears i also take tramadol does anybody else get this and have they got any remedies cos its driving me mad

I am what i am but i can always be better! A lot better LOL
Pray for peace on earth!


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CROTTY's Photo CROTTY Posts: 122,361
9/21/07 1:19 P

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Sounds like you are doing go with the medication change. Good for you!
crotty

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Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


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9/21/07 1:08 P

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My current 'back' doctor said that since i could live without the pain meds during my pregnancy (My OB prescribe T3 but was afraid that the Loritab and Soma would possibly cause defects) that i could live without them. So i am currently on Ibuprofen 800mg and Skelaxin 800mg. I try to only take the Skelaxin before bed since they make me groggy and makes it hard to work.

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SFLEMING3's Photo SFLEMING3 Posts: 2,218
9/6/07 12:00 P

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Fabulous! It's good to know we have someone that can help the team with pharmacological issues! I can only input from what I know about pharmacology in animals and my own personal experience.
SF

More people will die from hit-or-miss eating than from hit-and-run driving.
- Duncan Hines, food critic
If you can't be a good example, you'll just have to serve as a horrible warning. Gwen Goodnight (Jennifer Crusie)


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CLBUNYAN's Photo CLBUNYAN Posts: 17
9/6/07 9:22 A

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Hello everyone! I am a pharmacist that had a spinal fusion in April 2006. I can give some pretty informative medication input if anyone needs it. First, I wouldn't try to cut out the tramadol if you need it. It is not a controlled substance which means it does not have addictive properties. Also, it is very rare for anyone who is actually in pain to become addicted to their medications! You may develop a tolderance after some time which would require your dosage to be increased to get the same pain control, but that does not mean you are becoming addicted.

The best thing we can do is to take our medication before the pain gets out of control. This is the best way to control the pain we have. If you wait until you are in excruciating pain before you take your medication, the medication will not work as well. I also am on pain meds due to neuropathy in my leg caused by my surgery. As I hate taking medications, it is a must for my quality of life!

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CHULL740's Photo CHULL740 Posts: 2,982
9/3/07 9:34 P

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Thanks for your input! I feel better knowing that I'm not the only one with these concerns. I have been taking hydrocodone and tramadol for about 6 months now, with the tramadol over 2 years. I am trying to cut out the tramadol, but I don't know if I can do that without increasing the hydrocodone. I guess we'll see.

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BETHANYBOO1's Photo BETHANYBOO1 Posts: 114
9/3/07 3:21 P

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i have been taking pain medication (morphine and hydrocodone) for almost 2 years now. i am faced with a choice daily. i can either take the medication and even though there is still pain, it is manageable or i choose not to take medication for fear of addiction and have absolutely no quality of life. i choose the former. i take the lowest possible dose i can get by with and still function normally. i have had to do without my medication for a couple of days before and have not gone though withdrawals so i suppose if i am addicted, it must not be that bad. unfortunately, due to the kinds of backaches we must suffer, we are placed in a position of having to make this choice. i believe it is all up to the individual and what kind of quality of life that you can have.

l am a 56 year old grandma is employed full time and also raise a grand child full time. i have 5 others and spend as much time as i can with them. most of my social activities are centered around church activities. i am looking for new friends on the website and would love to meet new people.


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9/1/07 7:20 P

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I worry about it as well, I'm on T3's and percocet. I don't get that "good high" feeling unless I take the T3 and percocet together (which is pretty rare, I pretty much have to be bed ridden before I'll do that).

Sarah: Strong. Survivor. Superb. Sweet. Sassy. And I'm unique. Just like everyone else.


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SFLEMING3's Photo SFLEMING3 Posts: 2,218
8/24/07 2:56 P

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A lot of that depends on what medications you are taking. Some are more likely to become addictive than others. Some aren't really addictive but you can have unpleasant side effects if you stop taking them suddenly.

There's good scientific evidence to show taking effective pain medication early when pain is not too bad (ie-before you wake up after surgery)will actually reduce the total amount of pain medication needed. If you wait until the pain is BAD your nerves have already "trained" themselves into a pattern which is harder to break. This is why you get those little push buttons after surgery so you can medicate yourself as needed.

I am so fortunate in that most of the time I do not have to take anything for pain. Of course I take things like antioxidants and glucosamine/chondroitin combination as preventatives.
SF

More people will die from hit-or-miss eating than from hit-and-run driving.
- Duncan Hines, food critic
If you can't be a good example, you'll just have to serve as a horrible warning. Gwen Goodnight (Jennifer Crusie)


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TREKAY's Photo TREKAY SparkPoints: (0)
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8/24/07 2:24 P

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Hey Chull! I have been on medication for the last 15 years! Long time. The thing is I still hurt when I take the meds so I am in Vegas for two weeks and am trying to quit taking almost EVERYTHING. I probaly won't be able to stay off because right before I left my new back dr. foung a cyst in my right shoulder rotar cuff and said I have osteoarthritis and burrsitis and a couple more thing I don't really understand. I am going to a shoulder specialist on the 15th of Sept. so guess I will find out more then. Doesn't sound like a lot of fun!! The way I look at it if you need meds and they help take them! Like I said I probaly won't be able to quit everything so, what do you do??? Teresa

Teresa


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CHULL740's Photo CHULL740 Posts: 2,982
8/24/07 1:56 P

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I don't know about the rest of you,but I take meds on a regular basis to control the pain, muscle spasms, nerve spasms, etc. Does anyone else worry about becoming addicted to them? I certainly don't feel "good" or "happy" when I take them, I just feel closer to the way I did before my accident. Someone once told me that a person with chronic pain can't become addicted. Anyone else worried?

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