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10/8/19 6:35 A

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GOANNA2, I concur with Tee about many things affect the thyroid levels and sometimes it is hard to keep things regulated. I have Hashimoto partially due to nodules on the thyroid and loosing my thyroid because I have been on meds to many years.
Hopefully your doctor will work with you to get things figured out.

Jane on Guam



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10/8/19 2:58 A

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Hi GOANNA2,

Are you experiencing hyper symptoms? Most doctors use TSH lab levels to dx patient from hypo to hyper. This happened to me last month although my levels were perfect. I was told Hashimoto causes swing from hypo to hyper. Hashimoto means high antibodies. I don't have Hashi since my antibody are low.

Women's hormones fluctuate several times daily which may account for the swing. Stress can cause swing too. I was stressed a few months ago and went from hypo to hyper. Diet, exercise, sleep, other prescriptions or over the counter medication can cause this along with thyroid medication inconsistency. I went to seminar recently where doctor told us they know how one medication affect a patient, but don't know interactions when a patient takes more than one medication.

Although exercise is good for the body it stresses adrenal glands. Consuming caffeine has same effect. I become hyper after swimming and when I don't sleep. Light can also cause swing. Thyroid patients require less medication during spring and summer due to increase in daylight and more medication in fall and winter due to less daylight.

Over the counter medication like decongestants make me hyper. Some vitamins do too. I need to take D-3 early in the day so it doesn't cause insomnia.

I purchase 30 days of thyroid medication monthly and noticed sometimes I am extremely fatigued and other times I have abundance of energy when I refill medication.

Weather affects thyroid patients. I am very energetic, etc when it is hot and tired when it is cold, rainy, etc. Air quality also affects thyroid. More patients that didn't have family histore were dx'd with thyroid disorders due to air pollution.

So pretty much anything can affect our thyroid.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SHININGSTAR007's Photo SHININGSTAR007 Posts: 30
10/7/19 10:29 P

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Hello GOANNA2, I had that happen to me also--hypo to hyper.

I started feeling VERY anxious to the point it felt like I was going to crumble into a million pieces and couldn't be put back together again. I went to my doctor and he found that I was in the hyper range so he lowered my thyroid dose and all the anxiety stopped.

It could be that as you are losing weight your body isn't requiring as high a dose.

Edited by: SHININGSTAR007 at: 10/7/2019 (22:31)
All excuses are lies.


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SHININGSTAR007's Photo SHININGSTAR007 Posts: 30
10/7/19 10:26 P

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Hello Jane! (YIGOBUTTERFLY) I remember your sweet countenance~ Thank you also for the warm welcome.



All excuses are lies.


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SHININGSTAR007's Photo SHININGSTAR007 Posts: 30
10/7/19 10:23 P

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Hi APPEALSTOME,

Thank you for the warm welcome.

Yes, I would love to get back on NatureThroid; it worked well and was very inexpensive.


All excuses are lies.


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GOANNA2's Photo GOANNA2 Posts: 25,079
10/7/19 7:56 P

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Haven't been on here for a while. My last blood test showed that I am heading
from hypo to hyper. Does anyone know anything about this?

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10/7/19 6:03 A

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Good to hear from you SHININGSTAR! Good to hear you have found a doctor who is really helping.

Hand in there.

Jane on Guam



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10/7/19 4:31 A

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Nice to hear from you Shiningstar. Sorry medication destroyed your thyroid. I am glad switching doctor lead to treatment. A lot of patients switched to NP due to not being able to get NatureThroid. My endo gave me rx for NT and I couldn't get it. So, I went back to taking Armour. Great that your levels are good with under tongue method. I was extremely hypo when I tried that method. Hopefully, NT production will increase and you and other patients can go back to taking it.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SHININGSTAR007's Photo SHININGSTAR007 Posts: 30
10/6/19 7:02 P

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Hello Everyone,

This group was a great help to me in the past. Sorry to see MzzChief is not active at this time; she's just incredible!

Anyway, I've been battling autoimmunity issues. All started when a medication I was taking was destroying my thyroid, but didn't know it at the time, until I started developing many illnesses. Switched doctors and low and behold--extremely low thyroid function. She actually said to me, "I don't even know how you are alive", because my labs were so bad in every realm, not just thyroid levels.

I've taken Armour, Compounded, NatureThroid, and now NPThyroid. I just got my lab results and the doctor said my levels are excellent and since this is the second time in 2 years that I've received good news for my labs he is keeping me on it. I actually felt better on NatureThroid--more alert and better weight control, but it became so difficult to get that my doctor switched me to NPThyroid. One thing about NPThyroid is it melts so easy under my tongue and I can get on with my day faster.

Edited by: SHININGSTAR007 at: 10/6/2019 (19:03)
All excuses are lies.


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10/6/19 6:07 A

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Thank you for the information about vitamin D, Tee.





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10/6/19 3:51 A

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Sarah...I can't lose weight either. I failed WW due to not eating enough.

Leona...Good luck with check up. Woman's World has thyroid article almost monthly. This month's issue contains article about elderly woman with thyroid disease that lost a lot of weight on Keto diet. Keto help some, but not all.

D is important for thyroid,bones, immunity, etc. It enhances immunity, strengthens bones, guards against cancer, MS and other autoimmune diseases. Normal D level is greater than 50 and closest to 100. My level was 20 when first tested and 65 now. I went from beginning osteo to bones of 20 year old in a year of taking D3. I take 5,000 iu of D with meal for absorption. A person would need to sit in the sun at 3 pm without sunscreen to absorb some D. Olive and black skinned people repel D-3 due to melatonin in their skin which is why they don't burn in sun.

I am not getting notices from several Spark groups thanks to my internet provider.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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9/5/19 6:10 A

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I live on Guam but I am not in the sun very much because I burn so easily. Not sure why the doctor wants me on vitamin D.



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MNLEONA's Photo MNLEONA Posts: 13,686
9/4/19 9:14 A

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I am back on my medicine. Interesting about the VIT D, my doctor has me on this also. I am in Minnesota and we have had lots of rain so little sun.

Have a good day,
Leona

Live in Harris, Minnesota
Born in Oakland, California,
Hometown is Monahans, Texas
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6/6/19 4:59 A

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Leona, glad you have re-found us. Check some of the old Topics as they have some great information. Mzchief has put up some several posts that have been helpful.

From what I understand a malfuncting thyroid can lead to obesity and diabetes which is no fun. I was put on diabetic meds the last time I saw the cancer doctor. He also wants me off all vitamins except D3 and he wants that upped.

Jane





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MNLEONA's Photo MNLEONA Posts: 13,686
6/5/19 11:48 A

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I think I was on this team a long time ago.
I was on the Travel team checking messages and saw Jane's info and when I saw thyroid, I joined.
My right side has been removed.
I read in Woman's World Magazine about someone being so nervous on her thyroid medicine, she stopped taking it. I talked to my doctor and she took me off my medicine. The nervousness has greatly reduced. I am way past due for a blood test so need to do that.
I read some of the past messages and some good info.
Leona

Live in Harris, Minnesota
Born in Oakland, California,
Hometown is Monahans, Texas
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5/29/19 4:48 P

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Thank you for the great advice-I’ll definitely check it out!

MZZCHIEF's Photo MZZCHIEF Posts: 10,408
5/29/19 12:23 P

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hi Sarah!

the only way I have been able to lose weight, keep it off and correct high cholesterol is following a whole food plant based eating plan. Google Dr. Michael Greger for more info. Lilykohawaiii also has some tasty recipes and lots of good info, both are on youtube, Dr G has 2 books and a helpful website.

I also walk an hour or so a day in the park with my dog, do yoga a few times a week, and lift light weights... all rebuilding and maintenance activities that are low stress.

IT takes time and patience, tweaking your thyroid replacement hormones.
The key is to get healthy thru food and exercise, the weight loss will follow.

take care of you...
: )
Mzzchief


Edited by: MZZCHIEF at: 5/29/2019 (12:24)
New decade. Big world.
Hello, 60!
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5/21/19 1:19 P

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I’m new here and had my thyroid killed with radioactive iodine due to severe Graves’ disease. No matter what I do I can’t lose weight! Any suggestions would be appreciated! Thanks!

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4/16/19 6:20 A

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Where oh where has everyone gone?

Jane



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UNICORN212's Photo UNICORN212 Posts: 14,120
11/14/18 8:58 P

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I have no hope of finding an endo here in AZ that does not worship TSH. I just had blood work done, and TSH is .17 (.45 - 4.50 - old ranges still used!) Free T3 is 2.7 ( 2.0 - 4.8) and Free T4 1.0 (0.9 - 2.2). They left some nonsensical message on my phone about my TSH, but no instructions to keep meds the same ot make any changes. I am on 1 grain NDT twice a day. I think I have gained another 10 pounds and still feel like crap. I guess this is my normal now.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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11/14/18 5:10 A

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FOLEYDA what a blessing to have an endocrinologist who listens to you and is willing to work with you.

Jane



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FOLEYDA Posts: 18
11/13/18 12:14 P

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I always have the worst time signing into this site. But, here I am finally. MZZ, I'm sorry to hear about your recent problems but it sounds like you're on the right track. I finally had it with the endo I'd been seeing for more than a year and now have a new one in the same practice. He is like a breath of fresh air! My first and only visit so far was last week and I was unsure what to expect. But I found him to be friendly, knowledgeable (he'd actually looked at my history), professional, and not defensive. I did labs after our meeting and was not surprised that my TSH was up, just under 4, and way too high for me. I marked my calendar to talk with him but before I could do that I got a message from him through the patient portal. He had actually looked at my results, which was completely unexpected! I was in agreement with his plan to increase my dosage a bit and do labs again in February. So now I am taking 97.5mg NT 6 days a week and 65mg one day. This should bring the TSH down closer to one. I was not uptight during or after this appointment with this doctor. I'm hopeful I've finally found an endo who cares about me as a patient and person. NatureThroid accessibility continues to be a problem. My strength of 65mg is once again on backorder. I've got 100 tablets and hope when I need to refill it'll be available.

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11/12/18 5:25 A

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Good to hear from you,MZZ. You have been missed. Was that heart attack recent?



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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/11/18 3:00 P

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Hey Foleyda,
Sorry to hear youre having such a rough time of it.
There are so many factors in what effects the TSH.
Especially when you are taking thyroid meds.

What you eat, when you eat it, how much water you take, if the water is distilled or mineral, a shift in your gut biome (like if youve taken antibiotics, or changed from an omnivore to vegan diet), when, what and how many supplements, vitamins and minerals you take, how much inflammmation is in your body, if youre having an anti thyroid antibody flair, activity level, seasonal changes, other hormones (think perimenopause and adrenals), theres more but these are the things I can think of easily, just off the top of my head.

My best advice is to be consistent in your eating, sleep and exercise patterns. Eat for nutrition, not for amusement!

Me, now that Im on a whole food, plant based diet, tracking my micronutrients (I use cronometer) and am fully menopausal, exercising gently and consistently, sleeping well, Im completely asymtomatic, and 137 pounds. I take a combo of levothyroxine and generic T3, in a 12 oz glass of distilled water in which Ive dissolved a bit of pure vitamin C, as this fascilitates absorption.wait at least an hour before eating. I also use modified intermittent fasting, leaving a minimum of 12 hours between my first and last meal, try to do all my eating within an 8 hour window. I also dont drink alcohol, and havent eaten gluten since my thyroid diagnosis in 2007.

As you can see, lots of changes! I used to advocate a paleo style diet, lots of protein and fresh fruits and veggies, but that stopped working for me once I was fully menopausal and I gained 30 pounds, my cholesterol when crazy and I had a heart attack, my blood sugar was all over the place, I was riddled with cramps every night.

Change is good. It beats being on heart and cholesterol meds. Its nice being able to sleep. But it does come with some sacrifice and discipline.

Hope you find your sweet spot soon. Its been a while, how did things shake out for you.

Be well,

Mzzchief



New decade. Big world.
Hello, 60!
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FOLEYDA Posts: 18
6/9/18 11:43 A

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MZZ, I stopped taking anything with biotin right after my release from the hospital. The only daily med I take is NT which I've been on for about a year. I wasn't aware that NT would consistently give a low TSH or that TSH was the only lab to be concerned about if taking NT. Regardless, I'm going to stay with my current dose until the next labs. Eliminating one half tablet during the week might get me to around one. I'm convinced my endo knows very little about NT and other drugs in this group, but in this area she's the only endo I found who is even prescribing NT or heard of it. BTW, there was never a definitive reason for my angina event. The hospital had one opinion and my primary had another. My opinion is that my TSH was up over 9 for almost 12 weeks and that was the cause. So, three opinions, and I'm going with mine because I've never had anything remotely close to what happened, and I had never had TSH over 9.

UNICORN212's Photo UNICORN212 Posts: 14,120
6/2/18 7:23 P

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Porcine thyroid suppresses TSH and it is usually at the very bottom or even slightly below the bottom of the normal range in those taking any of the meds with T3. The problem is that most docs and endos can't seem to remember that fact.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
6/2/18 4:44 P

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hi Foley

I went back and reread some of the info you left on this thread.

Have you stopped taking the Biotin and Multi 48 hours before your labs? BC Biotin can screw up your labwork its interferes with the assay used to determine TSH.

I know you want to raise your TSH, however, since you are on NT, which is a Porcine (thyroid hormone sourced from pigs, and high in T3), many people feel best at a higher dose that gets a lower TSH like the .8.

I read where you had had angina and were in the hospital.
Also how you had the heart of a 16 year old.

Did they ever determine the cause of your angina?
How does your cholesterol look? Is it high?

I only run the TSH, bc once your start on thyroid hormone meds, its really the only reliable number. I think what's more important than fine tuning lab numbers, is good nutrition, supplements where necessary, sleep, exercise, doing something you love every day for stress relief and a positive outlook on life.

: )
Mzzchief



Edited by: MZZCHIEF at: 6/2/2018 (16:52)
New decade. Big world.
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FOLEYDA Posts: 18
5/31/18 11:09 A

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Thanks Mzz for your reply. My endo appointment was a mixed bag as usual. The doctor, at first, didn't want any changes saying my .8 TSH was within range and it would be difficult to get a TSH reading precisely where I want it. I was so angry but I held My tongue and said it is worth a try to make an adjustment since her suggestion to stay at the same dosage didn't bring any significant results like she said it would. I sometimes get the feeling she just doesn't want to work very hard. Ultimately, she agreed with me to drop one of the 32.5 pills, and keeping to a 3/4 schedule as you indicated until I go back for labs again on July 5. I'm confident I'll see the TSH go up. We also talked about getting lab results for t4 and t3 in addition to TSH. She said since my thyroid was ablated years ago, there's no need for t4 or t3 labs. I didn't know how to respond to that so I agreed to only TSH going forward. She has known since our first meeting almost a year ago that my thyroid had been ablated but kept labs for TSH and t4, always giving me pushback on getting t3. Is it true that an ablated thyroid only needs TSH labs, that the t4 and t3 are unnecessary. Should I insist on adding t4 and t3 back into lab results? Honestly, this doctor throws me a curve ball at nearly each meeting.

MZZCHIEF's Photo MZZCHIEF Posts: 10,408
5/30/18 3:25 P

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hi Nancy
That waking up biz all night long is tiring!
I have found a sleep mask helps.
As ive gotten older, the fat around my eyes has disappeared and simply closing my eye doesn't do the trick. I've got light coming in from the street lamp outside, and rather than buying expensive, ugly blinds, I've chosen to do the mask.

Also not drinking too much water 2 hours before bedtime helps.

: )
Mzzchief

New decade. Big world.
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
5/30/18 3:19 P

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hi Tee!

Yes, the latest you're supposed to be in bed for healing adrenals and maintaining their health, is 10-10:30pm.

And this is not an arbitrary recommendation, it has to do with your circadian rhythms.... which sounds like a New Age band,but is actually a cycle of hormone release recognized by any physician or scientist!

Circadian rhythm is the schedule upon which hormones are released in the body, based on light,sleeping and waking cycles.

That's why if anyone tells you that your body doesn't "know" if its day or night... they are wrong. Bc the body does due to its circadian rhythms... its daily schedule of hormone release.

Even one hour off makes a difference... as we all experience at Daylight Savings time... or when we travel long distances and our CR is disturbed... its what we call "jet lag".

Me, I'm lucky if I'm asleep at 2am.
But then I don't rise until 8-9 am.

: )
Mzzchief

Edited by: MZZCHIEF at: 5/30/2018 (15:21)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
5/30/18 3:11 P

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hi Foleyda!

This is my second attempt... my computer doesn't like this site, it keeps crashing and l have to start my answer from scratch.

Ok, let's make sure I understand
You have been prescribed 97.5 mcg 5 days a week
And 65mcg 2 days a week.

You are proposing to change that to
97.5mcg 4 days a week
65 mcg 3 days a week

That sounds like a plan!
You may eventually be able to get your dose to 65mcg all 7 days a week.
The slower you go the better.

So mabbe do your 3/4 plan for June, then go to 4/3 in August and see if you feel any better.
ok, going to post this now before it vanishes...

Mzz
Ps, how did your endo appointment go?


Edited by: MZZCHIEF at: 5/30/2018 (15:12)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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UNICORN212's Photo UNICORN212 Posts: 14,120
5/21/18 10:49 P

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With me it is generally 10:00 to 10:30. And I get up at 5 Monday thru Friday. I don't sleep well, though part of that is due to the husband's snores. If I go to bed earlier, I can't get to sleep. And I always wake up at least once, more often it is 3 or 4 times.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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Good advice Mzz. I just read a fourth article that low cortisol levels and fatigue is common for thyroid patients. All the articles recommended going to bed at 10 pm. My endo recommended the same thing. Going to bed at this hour has to do with the way cortisol is made by the body. It leads to normal levels and more energy. Low cortisol can lead to body not utilizing thyroid medication properly, etc.

I suffered with low cortisol for over a year and managed to increase cortisol by abstaining from computer, and cell at night and going to bed at 11:30 pm. As hard as I try, I can't get myself to sleep at 10 pm.

I wonder how many of us go to bed at 10 pm?

Tee

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FOLEYDA Posts: 18
5/19/18 5:34 P

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Mzz, I'm meeting with my endo on Tuesday to discuss. I'm prepared to reduce my dosage a bit. Since I'm already taking one and one-half dosage, or 97.5mg five days a week, I was going to eliminate only one of the half tablets (32.5mg) so one of the 5 days I'd take only 65mg. I'll continue taking 1 tablet, 65mg, on Saturday and Sunday as I've been doing. Maybe this isn't enough reduction since it's less than your suggestion. What do you think?

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5/19/18 3:31 P

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hi Ladies!
Good to see you, Jane!
Foleyda....
I'm sorry to hear of your troubles with your dosage.

I have two suggestions, since your endo is unwilling to change your dose...
1. Decrease your dose yourself.
Cut your tablet in halves, then cut one of the halves in half. Take the half and the quarter. So you are left with three quarters of a pill... 75% of your regular dose. Save the quarter for the next day. This is the most certain way to decrease your dose.

2. Decrease the time between when you take your thyroid medicine and eat.
If you are waiting and hour, decrease that time to 30 minutes.
If you are waiting 30 minutes, eat in 15.

The reason we're told to wait after dosing, is bc food, fiber, supplements, vitamins, coffee... anything basically you put in your mouth, is going to interfere with your thyroid med absorption to one degree or another.

Me... I'd go with #1, but I'm not you... you have to make these decisions for yourself. Remember you are doing this at your own risk, and I am not a doctor.

There may be other reasons why you are tired, other than your low TSH.
Aging with its decreased muscle mass, is one such reason, so is lack of estrogen.

Make sure you are eating lots of fresh fruit and veggies, getting down time, sleeping well, exercising faithfully.

Best to you!
Mzz



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FOLEYDA Posts: 18
5/17/18 2:42 P

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Hi Mzz. Sorry it's been so long in replying. I had issues with getting nature throid because it was taken off the market. After much searching I finally got 65mg from a custom pharmacy. CVS said they still couldn't get it even though NT lab has posted it's available. Anyway, my endo wanted me to continue on my regular dosage last time I saw her about 6 weeks ago even though my TSH was .6. I wanted to adjust my dosage a bit to try to get it between 1-2 but I ultimately agreed to another 6 weeks at 97.5mg/day for 5 days and 65mg/day for 2 days each week. She insisted the TSH would go up. Fast forward to yesterday lab results: TSH at .8, up .2 from previous lab! Her message relayed to me by her nurse is to stay on my current dosage because I'm within range. This is the same old refrane I've heard 100 times! When I speak with her on Friday (tomorrow) I'm going to insist on a slight adjustment to see if the TSH moves upward. I'm still not taking any biotin and, in fact, the only pill I take on a regular basis is the NT. I feel like I tried it her way for more than 6 weeks so now I want to try it my way. I am constantly tired from the moment I get up and I still get episodes of anger that come on real fast and then go away. I ache everywhere! I'm beginning to think there isn't an endo who truly listens to patients. It's very frustrating. How do I get through to this doctor?

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4/26/18 7:53 A

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Thanks, Mzz

Jane



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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
4/25/18 3:35 P

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hi Jane!

Just make sure to scrape your tongue clean after brushing and you ought to be ok!
The tongue traps a bunch of toothpaste. You can make a tongue scraper from a strip of plastic or just use a spoon or the back side (non cutting edge) of a butter knife.

be well
: )
Mzzchief

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2/21/18 1:08 A

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I saw the endo yesterday. She said because Guam does not have fluoride in the water a fluoride toothpaste should be okay. I forgot about the strong stuff the dentist prescribed. I think I will use an over the counter fluoride toothpaste in the morning and the other that I have been using in the evening. Now I need to get a tube.

Jane



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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
2/21/18 12:57 A

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Hi Jane

Did you ever speak with your endo, and if so, what did he say?

Is the heavy duty toothpaste Gelcam?
That's available here from the pharmacy, without a prescription. But it's not out on the shelves, bc it very heavy duty and needs to be used with caution, or you can poison yourself. So if you want it, you have to talk to the pharmacist.

Fluoride used to be used to treat hyPERthyroid disease back in the day. So yes, it has an effect on the thyroid. It's thought that the fluoride interferes with absorption of iodine.

What rationale did your dentist give for using a prescription toothpaste?

I use a fluoride toothpaste once a week. It's great for your enamel, but bad for your thyroid as well as your bones. So after you brush, make sure to rinse and scrape your tongue, bc our tongues are like carpets, they trap anything put in the mouth. Make sure you don't swallow it!

I use a fluoride free toothpaste that has Neem oil in it, called Dessert Essence. Neem is an antibacterial herb. I floss daily. And use a water pick, with a combination of calcium lactate (because it dissolves easily in water and provides calcium ions to recalcify my enamel) xylitol (a sugar alcohol that kills bacteria) and baking soda( to provide an alkaline ph to enhance calcium absorption and counteract the acid produced by bacteria) dissolved in the water pink water, before bed every night, after brushing.

Everyone has to decide for themselves, what they are comfortable with.
I've also chosen to forego my twice a year dental tooth polishing, since it only seems to be removing enamel from my teeth, and not much else. I never have plaque.


Please let us know how things turned out.

: )
Mzzchief



Edited by: MZZCHIEF at: 2/21/2018 (01:00)
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1/14/18 4:33 A

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My dentist wants me to brush with a floried toothpaste and even gave me a prescription for a heavy duty type that I am not to rinse out after brushing. When I tried to say it really wasn't healthy he said the people who say that are wrong. I am going to speak to my endocrinologist about it when I see her February 20th but would appreciate some feedback from this group.

Jane on Guam



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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
1/13/18 9:13 P

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Hi Foleyda!
Sorry to be getting back to you so late.
Wow, what an adventure!
Great knowing your heart is doing so well.
Sorry you had to go thru that scare.

YES... biotin does interfere with the TSH assay, giving a false TSH result.

Many people take biotin for hair loss... the dose is generally 5 mgs or 5000 mcgs.
It's often in other vitamin formulas at lesser doses.
For routine testing, you can stop the biotin several days before your TSH test. Biotin is a B vitamin, it's water soluble, so it flushes out of the body in about 24 hours. To be on the safe side, I'd give it 3 days minimum, before testing TSH.

Unfortunately you don't have that wash out window, if you're brought to the ER.

Take care of you!
: )
Mzzchief

Edited by: MZZCHIEF at: 1/13/2018 (21:14)
New decade. Big world.
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FOLEYDA Posts: 18
12/28/17 12:40 P

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Sorry, I see both my "updated" messages have now appeared.

FOLEYDA Posts: 18
12/28/17 12:36 P

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I've been off this site for a while but to bring you up to date, I'm still on NT but taking 65mg Saturday and Sunday and 65mg plus additional half tablet per day monday-friday.

In November I had chest pain that radiated up under my chin and I was sure I was having a heart attack. As far as I knew my TSH was still over 9 and t4 was .59 based on last labs in October. I was admitted to the hospital on 11/10/17 for 4 days and had a cath that showed, per the doctor, the heart of a 16 year old. The doctors were stumped so it was termed an angina event. My PCP, at my request, did TSH testing 2 days after I was released and my TSH was 3.61 even though I continued same NT dosage while in the hospital. However, I didn't take a multivitamin with biotin since the day I was admitted and have eliminated the multivitamin altogether. When I kept my endo appointment on 12/19 to review 12/6 labs my TSH was 2.77 and T4 was .60.

I attribute the dramatic change in TSH to the elimination of the multivitamin. I'm still on the same dosage regimen but the doctor didn't fight me this time on taking the half tablet in the afternoon to help with my afternoon exhaustion. I was concerned the TSH might drop further, which I don't want to happen, so we agreed to do labs again in 4 weeks to determine if any adjustments need to be made.

The sweating I used to get in the morning one hour after taking the NT has gone away but I still have trouble sleeping so continue to be tired late in the afternoon even after taking a half pill around 2:30. The napping could be interfering with my night time sleep. I also seem to be cold all the time.

Sorry for the length but I wanted to bring you up to date. I have to say the angina event in November scared me. I believe it was due to the TSH spike to over 9 after the two prior labs in august and october. All I know is eliminating biotin seems to have made a difference. Is biotin necessary for general health and if so is there an amount I can take that won't interfere with labs?

I hope you had a wonderful holiday!



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12/15/17 4:31 P

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Foley - I feel horrible when my TSH is over 1.0 - a 2.77 would be too high for me. When taking a NDT your TSH will be suppressed. Free T3 and Free T4 are better indicators of your need for an increase or decrease in meds. Were those T4 readings Free T4?

Also, do you have labs about 2 months after starting NT and while taking biotin, and then on the same dose of NT after stopping the biotin? From what I am reading on your post you are comparing labs at the beginning of this medication (maybe even before you started taking NT), and after stopping biotin. So you have too many variables to make a comparison.

Edited by: UNICORN212 at: 12/15/2017 (16:37)
~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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12/15/17 5:20 A

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FOLEY, I suggest you take your vitamins several hours after whatever thyroid med you take.

Jane



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FOLEYDA Posts: 18
12/14/17 1:54 P

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Am returning to message board after several months away.

I switched from armour (expensive) to nature throid (NT) about 5 months ago and can't say I've seen a big weight gain. However, I believe it's hard to drop pounds. When I initially started on NT (65mg pill) my TSH was over 9 and T4 was .55, below the low end of .66.This message board suggested biotin could be the culprit.

I suddenly had an angina event about 4 weeks ago (I believe was thyroid related) that put me in the hospital for 4 days. During that time I didn't take my multivitamin with biotin. When my PCP did labs after I was released, my TSH was 3.61. On 12/6 I had labs done at the endo clinic and my TSH was 2.77 and T4 was .60 slightly below low end of range but creeping up. If I stay on my current NT dosage (97.5 mg for 5 days and 65 mg for 2 days), I'm concerned my TSH will go too far down while the T4 won't get to the middle or upper end of the range fast enough. I see my endo on Tuesday to discuss. In the meantime, this week I've cut back on the dosage to 97.5mg (1.5 pill) for 2 days and 60mg the other 5 days. And I haven't taken a multivitamin since I was admitted to the hospital.

My question is has anyone else seen such a dramatic change in labs when biotin was eliminated? Also, if I stay off the multivitamin could I go back to a non-dessicated thyroid medication? Thanks.

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12/7/17 5:14 A

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Faith, there was a lot of discussion about Nature Thyroid some time ago. You may want to check some of the old Topics.

Jane on Guam



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CONSISTENTFAITH's Photo CONSISTENTFAITH Posts: 1,159
12/6/17 10:41 A

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Good Morning!

Have anyone tried Nature Throid? Did it work? Been taking it now for two months and suddenly my weight is starting to creep back up.

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11/22/17 10:14 A

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emoticon emoticon Blessed with a supportive emoticon community emoticon

I'm finding more answers. Reading several of the latest thyroid books. Thyroid Connection, Amy Myers *** Hashimoto's Protocol, Izabella Wentz *** Thyroid Healing, Anthony William.
I have Autoimmune Hypothyroidism --- Hashimoto's. I read enough to trace the root cause to Epstein-Barr virus (EBV). Back in college, 1982, several people had mono and I wasn't as sick but exposed. My thyroid wasnt tested until 2009.
Finding the root cause helps with treatments of diet and lifestyle changes. This summer I had leaky gut symptoms - palpitations and numbness. Digestion has improved by avoiding food on Plant Paradox lists gundrymd.com/plant-paradox-shopping-
li
st/

Link to Thyroid Healing free course to find recommended foods. www.medicalmedium.com/healingpath
Next combine PP lists with Thyroid Healing foods to prevent further symptoms of hypothyroidism. Main goal is to reduce the need for medication and digestion supplements.

Edited by: AURA18 at: 11/22/2017 (10:14)
Maribeth MN CT Panthers draxe.com/ dance u.nu/ixjy planks u.nu/9w-u u.nu/httpsunu7lag u.nu/43qj2
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11/15/17 9:37 P

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Yes, I have Hashimoto. The tech that did my ultra sound told me this but what you said makes more sense.

Thanks,

Jane



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UNICORN212's Photo UNICORN212 Posts: 14,120
11/15/17 9:07 P

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Jane - I really doubt that is the case. I know people who have been taking Synthroid (or the generic) for 30 years and they still have a thyroid. Do you have Hashimoto's? Even if you are taking meds, the Hashi's can continue to attack your thyroid.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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11/15/17 6:50 A

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I found out recently that because I have taken Synthroid for years that my thyroid is almost non existent. No one ever mentioned this would happen.

Jane on Guam



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UNICORN212's Photo UNICORN212 Posts: 14,120
11/9/17 11:31 P

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Your TSH has improved (July looks better than March), but I would ask them if they would at least test Free T3 and Free T4.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 42,484
11/9/17 8:24 P

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TSH 3rd Gen taken 7/14/17.......... 1.790 and the range is 0.358 - 3.740
" " 3/02/17............2.826 " "

I do not know what the T3 or T4 is. Something I need to ask the Dr.





Edited by: RMUL2013 at: 11/9/2017 (20:25)
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11/9/17 8:03 P

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TSH is actually the measurement of the pituitary hormone that is telling the thyroid to produce more T4. The cells convert T4 to T3 which is used to power the metabolism and body functions. Free T4 and Free T3 would measure the availability of these hormones in the blood for the cells to use. Free T3 is more important to look at than TSH.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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11/9/17 8:00 P

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What was your result and what was the range? Did they do any other thyroid tests? Free T3 and Free T4?

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 42,484
11/9/17 1:08 P

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My last TSH 3rd Gen test showed that my numbers were within the allotted range. Is that what you mean? Because of the numbers,the doctor did not change my dosage.

I'm going to look up Selenium and read about it.

Thanks in advance for your help.


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11/8/17 10:23 P

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I have always been told (by Spark articles and mt endo) men should not eat less than 1,500 calories a day, and women should not eat less than 1,200 a day. How are your Free T3 and Free T4 levels? You could try adding selenium - it is supposed to help you convert T4 to T3 and metabolize the meds better. Also, if you build more muscle it will help increase your metabolism.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 42,484
11/6/17 1:46 P

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My thyroid has been totally removed because of cancer. The only med I have been on is Synthroid and the dosage presently is 112Mcg.

My endocrinologist has stated that my metabolism is REAL slow and says that 900 calories per day is what I may need to lose weight. I have read somewhere that 1000 calories per day should be the least amount. Any information would be appreciated.

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10/31/17 4:32 P

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Hi Nan

Blanket statements from your Pharmacist like :

Armour is the best thing anybody can take with the least side effects.

Is neither realistic or helpful.
Its just like a doctor insisting that Synthroid is what's best for you.

Human beings are very different.
if 99% of people are doing well on a med, and you're in the 1% that isn't... that 99% isn't relevant.

Armour is a combination T3 and T4 medication. It has a LOT of the short acting T3, the " good to go" thyroid hormone, not so much of the longer lasting T4, which needs to have an iodine molecule removed in order for a cell to unlock its magic.

T3 great for people who are having a difficult time, for whatever reason, converting the inactive T4 to T3. But its godawful horrible for those who easily convert, bc suddenly you have all this active excess thyroid hormone running around the body, and yes you will begin to have the symptoms of hyPERthyroid disease, which sounds like what you are describing here.

I am also curious what your blood calcium levels are. Sometimes they remove the parathyroids and that causes some of the problems you are describing.

224 levothyroxine is a huge dose.
How did you ever get put on that much levothyroxine?
75 - 125 mcgs is normal for most women.
How much do you weigh? If you're over 180 pounds this might be why you're on so much.

Some of your symptoms are the result of changing reproductive hormones.
Perimenopause is frequently when thyroid disease raises its ugly head.
I can assure you that the woman you are pre-menopause, will not be the woman you reasch full menopause. There will be a profound change in your weight distribution, how many calories you can eat, skin, hair and nails, muscle mass, join pain, cholesterol. And it happens in a very compressed time frame.

Its been a while since you wrote, sorry, I'm not been on as much as in the past.
How are you feeling currently?

Cheers
: )
Mzzchief

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Hello, 60!
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Nan - Do you take the Armour once a day or twice a day? I am on NPThyoid and I take it twice a day. You might check with your doctor to see if you can split your dose. T3 has a short half life. I take 1 pill in the morning and one mid afternoon, usually between 2 and 3.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/8/17 2:56 P

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hi I was diagnosed with Hashimoto's disease since I was 21. Finally at the age of 50 a year ago my thyroid had over 26 cysts on it so they had to do a total thyroidectomy. Thinking I would feel better was a joke :-( I have never been so miserable in my life. I have no energy, my hair is dry, I have Fog brain, anxiety, depression, I have been in and out of the hospital with them thinking it's a heart attack or a stroke. And all it is is my thyroid is completely either too high or too low. They had me on 224 micrograms of Levoxyl, but it was making me cough and causing my heart to palpitate too much. I have now been put on Armor and I am taking 90 milligrams a day. All of a sudden I am getting periods again. I've been on it for almost 30 days. But I'm still having difficulties with anxiety and depression :-( I don't know what else to do. Has anybody else experience this when they first started taking Armour? My pharmacist said that Armour is one of the best things anybody could take. It has the least side effects. I just want to feel like myself again. I would appreciate any feedback thank you very much. Nan

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9/4/17 5:01 P

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Hi Foleya

Sorry, it's been a while, what did you wind up doing?

To be perfectly frank, I place very little faith in numbers, once we are on thyroid hormone replacement, bc so much depends on when you took your last dose, and when your blood is drawn. The numbers are dynamic, they change so rapidly, even more so when you're on a med that includes T3, due to its short half life of 24 hours, versus T4s 5-7 days.

I think dosing ought to be based on symptoms and how we feel.

Unfortunately many doctors don't, and therein lies the rub.

: )
Mzzchief



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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
9/4/17 4:50 P

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Hi unicorn
Sorry this slipped by me.
Biotin interferes with the assay that calculates your TSH.
Biotin is water soluble, so doesn't last long in our bodies.
But to be on th safe side, I'd stop taking your supplement about 3 or more days before your blood work.

Best to you!
: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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UNICORN212's Photo UNICORN212 Posts: 14,120
8/14/17 11:36 P

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And Mzzz - is there a way to take Biotin where it does not mess up the labs?

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

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UNICORN212's Photo UNICORN212 Posts: 14,120
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Mzzz - what does the biotin do to the TSH? I will need to ckeck my multi. Yes I know TSH means little when you are on a porcine, but it may help my doc be more comfortable with my lab work!

Foleyda - no, I can't remember exactly, but I think he moved to Ohio.

It has now been 9 years (this month) since my thyroid kicked the bucket.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 18
8/14/17 11:30 A

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It's interesting that Mzzchief mentioned Biotin because I've noticed on the store brand of multivitamin that has 300 mcg of biotin that my nails are much stronger and grow quickly. I've been taking it for quite a while but never connected the two. I used to take a Centrum Women 50+ multivitamin and I believe it contains less biotin which might be why my nails in the past were brittle. I'm making my list of questions for my appointment this Wednesday and I'll report back to this site. She evidently isn't alarmed by my lab results because she hasn't contacted me. BTW, your favorite doctor didn't move to North Carolina did he?

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8/12/17 11:43 P

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If she asks, tell her you forgot. She may not even ask. And when she does the blood work, ask for Free T3.

The doctor that diagnosed and treated my reverse T3 and put me on the porcine thyroid meds (I wish he had not moved out of state!) told me about not taking the meds before the blood draw. He was the best doctor I have had in 9 years of battling this disease, and I miss him. He actually listened. And if he was not sure about something, he researched it. He did not just throw T4 at someone and pat them on the head like so many seem to do.

A friend of min had her thyroid ablated years ago and she just had to have two parathyroid glands removed. She thought the two might be connected. If your calcium levels are high, you might want to ask your doctor to check.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 18
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Thanks for your reply. Let me give you some history. I'm soon to be 71 years old so am past all that menopausal stuff. I've been treating my ablated thyroid for at least 25 years with t4 (.112 mg) only meds. During the past year it became apparent they weren't helping. I saw my current endo on April 26, 2017 and she wanted to start me on 90 mg of Armour but I asked for less to start out so she prescribed 60 mg. My first labs were done on June 13 (I took my Armour b4 labs), and t4 was slightly outside bottom of range, and TSH was at high end of range but not outside the range. She said she saw that t4 behavior in many of her Armour patients.

At that point I had some dizziness and fatigue but overall felt better than when I was on t4 only. Since I felt better, she wanted to hand me off to my primary doctor but I thought this was a bad idea. She kept me on 60 mg and I returned for labs on August 9. This time I didn't take the Armour until after labs and you know how those turned out. So I've been on Armour for about 12 weeks.

I take a multivitamin each evening along with a vitamin C tablet. The multivitamin contains 300 mcg biotin or 100% of daily value. The only other pill I take is the Armour in the AM. I'm very healthy for my age. FYI: My mother had Graves and so did an aunt.

I apologize for the length of this post. I have to admit I don't have a lot of confidence in this doctor, but I think she'll be OK with me switching to NP Thyroid and increasing the dosage. I plan to ask for t3 to be included in the next labs even though she refuses to discuss the t3 results. She'll want to know why I didn't take my Armour b4 the last labs and I'm not sure what I'm going to say. Any suggestions?

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