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BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
1/2/12 4:11 P

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Glad to see so many others out there have similar experiences and also realize we were born with this. Let's stay educated so we can help prevent passing this on to our daughters..or at least help them manage it if they do have it:)

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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 2,031
11/6/11 12:52 P

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That's interesting. genes do a play a big role. I can't accept the idea that weight gain causes the PCOS. I was a thin child but when I turned 10, I got my period and then I gained a lot of weight. It was dramatic. I wasn't drinking soda or eating out or anything like that. By the time I was 15, I was getting more symptoms. I looked up my symptoms and figured that I had this syndrome but I didn't get diagnosed until recently. I don't suffer from diabetes/insulin resistance, high blood pressure, etc. I've always tried to eat healthily and I wasn't sedentary. Just because someone doesn't have the typical symptoms of the syndrome from a young age doesn't prove anything. You can have cysts on your ovaries and not even know it. Some people are going to be more affected than others. Some people are going to be affected at a younger age than others. That's because nothing is typical. Everyone's situation is different.
I liked your post. It had a fresh perspective. I guess the rest wasn't really directed at you but everyone. I was just saying that if it wasn't for this syndrome, I don't think I would have struggled as much when I was a teen and I don't think I would be struggling as much now as a young adult. Even thin women have the syndrome. That, in my eyes, makes it clear that this is genetic. A lot of things that are genetic don't necessarily have to show up from an early age.






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SHANNA86's Photo SHANNA86 Posts: 15
9/9/11 11:57 A

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I know this is kind of an old topic, but I just joined and thought I would throw in my two cents. I was diagnosed with PCOS at 15 (25 now) and was lucky to have a very knowledgeable doctor. She openly admitted that science was learning new things about PCOS everyday and at that time it was hard to tell what came first, the PCOS or the weight gain. I came from an overweight family, so even without PCOS I would have been fat. By the time I was in college the information I got from doctors changed, people learned more, I was encouraged to take metformin.

Now I am a graduate student getting a degree in genetic counseling. We discussed PCOS one day in class as one of many causes of infertility. My professor said PCOS was a genetic disease with what appeared to be an autosomal dominant inheritance pattern. I had NEVER heard that before! Here's what that means: you can inherit a gene change from either your mother or father. We all have two copies of every gene, PCOS only requires one of those copies to have a change to cause a problem.

During my rotations in prenatal counseling centers I encountered dozens of women reporting PCOS as a health problem and not a single one had symptoms like me. None were over weight, none had facial hair, none had disproportionately small breasts. Just like those who have posted here, there is clearly a spectrum of PCOS. There are also a number of completely unrelated diseases that are PCOS-like. Women may have symptoms that appear like PCOS but do not actually have polycystic ovaries. And finally, I think some docs just label PCOS incorrectly sometimes.

I guess my point is, yes, this is something we are born with, assuming it has been correctly diagnosed.

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BRENNA84's Photo BRENNA84 SparkPoints: (0)
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7/31/11 10:31 A

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I was diagnosed at 15 or 16. was told I'd probably never have kidz and if I did, I cud have 1 WITH fertility drugs. - yeah, now I've had 3 kidz, 5 pregnancies and 8 fetuses so not totally correct in the regard.

i was told by a dr that coming from middle-eastern background puts me at higher risk for pcos. also, that women who feed their daughters a high-carb diet can induce pcos. I DID have a high carb diet growing up so . . . can't deter that idea.

but I was diagnosed AFTER i'd lost 49#. I was 135#, but for 5'2" my dr still wanted me to lose 20 # even though others said I was knees and elbows. oh well.

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KATIEROSEANNE1's Photo KATIEROSEANNE1 SparkPoints: (0)
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7/31/11 8:03 A

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PCOS for me started when i was 18 nearly 19, i was supposed to get my period 2 weeks before i went back to Canada in 1988 but never came and during my holiday my tummy just swelled up and that was the start, i was not properly diagnosed until i was 23. At first all the symptoms were pretty lo and controllable but since i turned 30 they have got worse and now that i am nearly 42 they are just out of control emoticon

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FIRESTARINFINI's Photo FIRESTARINFINI SparkPoints: (27,563)
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7/26/11 10:35 A

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I got several blood tests. It was really frustrating, because the Doctors kept on telling me I'm insulin resistant, even though my sugar and insulin levels are fine. *Shrug*

Edited by: FIRESTARINFINI at: 7/26/2011 (10:35)
Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

Leader of the 'Fans of Jon Stewart & Stephen Colbert!' Team
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BELROSA's Photo BELROSA Posts: 697
7/26/11 10:10 A

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I did not develop PCOS symptoms until my mid-twenties either, and only after several potential triggers like working night shifts, not getting enough sleep, not eating regularly, skipping lots of meals etc.

How do you know you don't have insulin resistance? Do you know what tests your Dr did to confirm this? Many people are told they don't have IR/hypoglycaemia/blood sugar problems when in fact they do and the wrong tests were performed. There is of course a small percentage of women with PCOS who do have it unrelated to IR, but it's pretty rare.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
FIRESTARINFINI's Photo FIRESTARINFINI SparkPoints: (27,563)
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7/26/11 12:30 A

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I don't know if I can agree with that. If it is genetic, then the trigger happened to me when I was in my mid twenties. I also lack the insulin resistance that comes with PCOS.

Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

Leader of the 'Fans of Jon Stewart & Stephen Colbert!' Team
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roups_individual.asp?gid=58781




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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 2,031
5/21/11 4:53 P

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I think you're right. Even women who are on a strict diet and exercise program have the most difficult time losing weight and sometimes they will gain weight. The symptoms are all over the place and there are thin people with pcos too so I don't think for the majority of people that their weight led to pcos. I know there are people who may have pcos and unhealty habits, but for a lot of people, that is not the case. I believe a lot of doctors link pcos from weigh gain and obesity because it is more logical in their eyes than something that causes weight issues even when strict dieting and monitoring calorie intake and exercising. Yes,
People who suffer from the syndrome just have to voice their experiences and ty to keep a positive outlook, which can be a real challenge. :-)







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BELROSA's Photo BELROSA Posts: 697
4/3/11 1:09 A

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There is definitely a genetic predisposition towards insulin resistance (and the cascade of metabolic and endocrine disturbances which we call PCOS), however, I think there is still a subset of women (and men for that matter) who develop transient insulin resistance as a result of an unhealthy diet and lifestyle. When this is addressed the problem goes away. I've read so many posts which roughly say "I stopped eating KFC and MacDonalds all the time and drinking sodas and my PCOS went away!"

For myself, I've *never* eaten fast food or soda more than once every few years, so that quick fix won't work for me. I definitely had PCOS symptoms long before any weight gain. In fact, I only started gaining weight after I tried metformin for a couple of months to try and regulate my periods from 8-ish a year and to address the fatigue. I wish I hadn't - I started piling weight on like crazy, my periods completely disappeared for 3.5 years and I developed *more* PCOS symptoms, rather than addressing the few I had.

Anyway, no matter which came first one thing everyone agrees on - a healthy controlled carb diet and regular exercise is the most important factor in dealing with PCOS - or staying healthy for anyone really.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
4/2/11 5:44 P

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For those with the question of "Which came first..the weight gain or the PCOS"? (AKA Chicken or the egg). ***Much medical evidence suggest this is a disease that is genetic and we were all probably born with it. I also have discussed this with Dr.s around the world and it is now believed that the PCOS definitely CAUSES the wt. gain, NOT the other way around. Ihttp://ezinearticles.com/?Pregnancy-and-P
olycystic-Ovary-Syndrome-(PCOS)&id=111
4554 *I didn't keep logs of all the research I have done over the years, but here is one of the many articles about PCOS being a genetic disease. Some Dr.s even say the disease is from "womb to tomb", meaning we are born with it and we will die with it. Our ovaries are formed before we are born, and in some infant girls they have the tiny pearl-like cysts already showing in their ovaries at birth. The key is to control the symptoms for a healthier life, and to be aware that all of us with baby girls may have passed this disease on to our daughters. At least we will be able to help them and understand their symptoms (which is way better than the experiences most of us have had). Years ago I would have Dr.s tell me that I "got" PCOS because I was overweight. Funny, when I was a teen I was in great shape (about 135 lbs.) and still only had a period about once or twice per year. I didn't gain all the wt. until my early 20's when the PCOS started to just take over my body. I didn't get diagnosed until I was almost 30, after seeing fertility specialists all over the county. I always had a little more body hair than my friends when I was little...but wasn't overweight. I have a GREAT team of Dr.s that I work with now that are very well informed and keep up to date information on this disease. I've been doing research on this for years, so if you have questions, please contact me. Good luck to everyone!


Edited by: BEACHESANDCREAM at: 4/2/2011 (17:46)
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