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PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 5,878
5/24/19 12:57 A

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I'm still here! No more chemo...

She girds herself with strength, And strengthens her arms.
Proverbs 31:17


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PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 5,878
8/27/18 4:39 A

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Tonight, horrible. So had my third chemo the 6th August and basically it’s a completely different reaction compared to first first two rounds ... my body wouldn’t eat or drink anything and I could strigggle to get water down. I basically went on ketosis and have lost 40 pounds since the diet of August. Saw oncologist the week after and he laughed at my weight loss, didn’t seem the least concerned. Everything I mentioned, he just went down his list like “yep, side effect side effect....” like I’m just a number on his charts.

Then a day or two after that visit, I got slammed (wearing my cpap machine) with what I discover to be called “aerophagia”. Put up with it until we got to cpap doc and found out pressure was to be adjusted downward during weight loss. Supposedly we were to here from Apria to get us set up with new machines, but that hasn’t happened all weekend.

Sat night I went online and found the hack to reset my cpap and I did, but evidently my husband got my masks mixed up with one of his. So i kept getting more air in my tummy and it really aches. (There really is a belly ache going oh!!). Meanwhile after that episode, hubby went to store and got me a package of those Breathe Right bandages and I slept sunday anoitc6.5 hours eventually cobbled together (according time fitbit data collected.).

Then this morning (Monday) I woke up twice more with aerophagia and all I have on is my breathe right strips!! The inside of my nose passageways are bald, no hair cells, so qm guessong that’s part of the issues? It’s similar to the neuropathy feeling in soles of feet and palms of hands. It’s driving me nuts!!

She girds herself with strength, And strengthens her arms.
Proverbs 31:17


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 5,511
7/19/18 9:53 A

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Julia, how are you doing?

TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 5,511
7/2/18 1:39 A

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Edited by: TIGERSEYEHEART at: 9/27/2018 (03:22)
PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 5,878
6/30/18 7:05 A

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Hi Christina -
Last week I started chemo. It’s been rough, and I haven’t wanted to eat much. I have tried a few things like CBD oil and Curcumin for pain management, and drank gallons of water to keep chasing the trots (why is medical not honest in saying it is Herxheimer’s effect,,, where the massive kill off of cancer cells NEEDS to leave the body. Instead, “take Imodium”, they said. I did no such thing.).

Are you done with your treatments? I have more to ask but am struggling to write this on the phone without reading glasses on...

Julia


She girds herself with strength, And strengthens her arms.
Proverbs 31:17


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 5,511
6/15/18 2:45 P

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Edited by: TIGERSEYEHEART at: 9/27/2018 (03:23)
PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 5,878
6/11/18 3:12 P

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Hi Cristina - I'm not exactly enthralled with the medical system myself... actively researching some alternatives or at least alternative ways to manage the system in a way that is more favorable to my needs... but right now we're kind of in the info gathering stage - hearing from the various oncologists what do they plan to do? How flexible are they on alternatives like changing diet and other lifestyle changes? I realize many of them are the things we SHOULD have been doing all along, at least, MY end of "We" should have done!! I know some people who have eaten correctly and exercised all their lives and are the proper BMI for their height and they still get Cancer. So it seems to be kind of a random crap-shoot, with some of us having higher odds than others, maybe?? What do you think??

Julia

She girds herself with strength, And strengthens her arms.
Proverbs 31:17


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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 5,511
5/7/18 10:51 A

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Edited by: TIGERSEYEHEART at: 9/27/2018 (03:23)
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