Survivors' Chat Room-- a place to meet !

Sher, thank you for the information! It sounds like a great program. I went through the a program that sounds just like that called Triumph Fitness in Sacramento, CA. I think they are with the Livestrong program. It was for 12 weeks and there was 6 cancer patients wiht 2 trainers. It was a great program! I will look into the YMCA and see if they have it here too:)

I was able to pick up my bone scan report, even though it wasn't finalized, though I doubt anything will change on it by the time it is. The good news is that my bone mets are stable; which means, they are still there, but they are not growing. It says something about "degenerative uptake in the cervical spine", which means there is some damage there, but it does not say exactly what it is or how severe it is. Whatever it is, that is probably the cause of my neck pain, but it's good to know that it isn't a new area of cancer causing the pain. I won't know if I need any further tests until I talk to my doctor, but now that I have my report, I am ok with being patient and waiting.

Some more good news, the transfusion I had last week really helped my blood counts, my hemoglobin went way up!

I had a pretty good day. Went to lunch with a friend.

Not too much happening here.

Take care!

Julie

Hi again, lol

I have something that might help someone who has cancer. I am on SparkPeople and Also on Weight Watchers Points Plus Plan. I love Weight Watchers set up and my insurance pays for it, but, I love SparkPeople more for the interacting with people. I hate the NewStart Page but that's a horse of a different color. lol

so, On weight watchers I made a room for Cancer. A woman in Idaho messaged me and told me about this place for cancer patients. It's in the YMCA/YWCA everywhere. It's called: Livestrong Program. It is Free. She is in Idaho and I wasn't going to call the Y because I figured we didn't have it here. But I called anyway, yes, they also have it here in New Hampshire. I have an appointment Nov6. What it is, for people with cancer and it's for 12 weeks. You have a trainer, (people who are trained for working with cancer patients) you will workout, they have a pool, and other classes you can go to. You workout at your own pace, they are with you at all times. Its an awesome place and costs you nothing.

I went on the website to YWCA (in my city) and got the phone number and called. It was that easy. It's gonna be so nice to go there.

Hope this helps someone. Let me know if its in your city if you do call ok? Thank you.

SHER MM MMMMMM

HI everyone,

Debra? The doctor's counted my first cancer, Lung Cancer, removed 2/3rds of my lung in March of 2005, as to start counting my Cancer Birthdays. The Cancer Birthdays are each year the day my surgery ended. I was able to get 8+ Cancer Survivor Birthdays Cancer Free.

Now, I have it back in the same lung. They cannot do surgery it would hurt me more than help me. So, I am having SBRT: Stereotactic Body Radiation Therapy, so I will count my Cancer Survivor Birthdays Cancer Free from Nov. 1, 2013. This is the last day of my treatment.

SHER

Good morning everyone...it has been a while since I've been able to get on to spark people. Very, very busy at work, and no time after work.

Welcome to Sher & SheMarie. I'm so sorry you're going through the cancer journey again. I had it twice - 2009 and 2011. I've had surgery, radiation, and chemo. It is tough, but I'm still here and cancer free now for about 1 year (although I don't know when they count the "cancer free" days from...diagnosis? surgery? chemo?). In any event, I lost all my hair, put on all kinds of weight, and I completely understand your fears and your concerns. It is not easy, but it is treatable and it is survivable. It sounds like you're both getting good care, so best wishes and positive thoughts to both of you.

Shari - I hope you get good results on your tests.

I hope everyone else is well. I will try to get on spark people more often, but it's crazy busy and work, and when I get home, I just crash.

Take care everybody...debra

GOOD MORNING HOPE EVERYONE IS DOING GREAT

Ever wonder what the younger folks are thinking about right now? I bet it is pure laughter they are sending in our direction!

Jean

Good Morning!

Boy yesterday was interesting…was without power for 5 hours while they put in a new electrical box for me. They will be installing the new furnace today and I will not have power for most of the day once they get here…so I will not be online much of the day.

I got my workout in so I am ready to go for the day!!!

Have a great Tuesday!!!!

Jean, that is funny! My Mom always said she saw the witches flying by on Halloween, and the next morning she found me on her doorstep! I really thought I was a witch until I was about 8 years old. I tried like crazy to do magic, but when I realized I couldn't, I stopped thinking I was a witch:)
Sorry about the 7 years.lol

Just a quick Hi, I am off to orchestra.

PIGGYWAY, I hope your sister starts feeling better soon.

I had the bone scan today, now it's the "hurry up and wait" part. But I am doing ok. Telling myself it does no good to worry, because worrying isn't going to change the results, good or bad.

Good morning hope everyone is feeling good my sister isn`t feel good

Good Monday morning team!!!!

It's a start to a long week for me...Daddy has an appointment every day this week! Bloodwork today, regular doctor tomorrow (and I have an appointment for MY bloodwork at same clinic tomorrow) Oncologist Wednesday morning, then chemo, then chemo again on Thursday and Friday - not to mention they are replacing my electrical box in my house today and I get a new furnace this week...this week should be interesting! LOL

I hope each and every one of you has as wonderful a day as is possible!

to our new members!

Look forward to seeing you on the message board...

Jean

Thanks Sue! and you just had to throw up the 7 years! When I was growing up, remember we were almost taught that the stork dropped us down the chimney....well I always got the witch dropped me down the chimney! So I learned to ride a broom and for years I took it to school...

Jean

Good night!

We can have a spark birthday party on Halloween:) for all of us!

My son's birthday is on Oct 31.

Good afternoon!

I'm doing ok today. My bone scan is tomorrow; I've been doing pretty well so far keeping my mind occupied and not thinking about it a lot. I know the hard part will be the waiting after it's over. I am hoping when I go for chemo Tuesday morning that I can at least get the report.

Wow! Jean we are only 1 day apart:) and 7 years!
I used to celebrate my birthday on Halloween after the kids had their candy and went to bed I would go out to the bar that my husband played music at, and we would have a birthday party at midnight. He died 5 years ago of cancer. We were married for 34 years. He was one week from turning 55 when he died. We used to have some good times though! I never knew anyone whose birthday was on Halloween, so Happy upcoming birhtday!

I have had a nice day so far. Almost have laundry done and finshed the blocks for my moms quilt.

Going to go help with chores then go start sewing blocks together on moms quilt.

Julie

Welcome SARAHTRICK8 and ZENMIND7

Good Morning!!!

Well here we get to start another week (or you could look at it as the end of last week)
It is supposed to be nice here in southern West Virginia today – so I hope it will be, we need to get some work done on hubbys drag racing Chevelle. (stripping the interior to weld in a roll bar)

I already got my workout done. Hope to do a little more later… That’s about all I have planned today – maybe put some of my stamp collection up on eBay.

Hope you all have a wonderful Sunday!!!

Vicki!

on your 11/1 B'day celebration!

Sue,

My B'day is Halloween....I will get to turn 68 knowing that I have had the strength to fight another on another year!

Edited by: SLACHETKA103145 at: 10/20/2013 (03:43)

ZENMIND7

ZENMIND7!

Vicki, congratulations! That is my birthday also (my actual birthday) I will be 60 years old on November !st. We can celebrate together! Last year, I was going through treatment and did not know if I would even see this birthday:)

I had a really nice day. I got to spend it quilting with my friends. I got three binding sewed on and worked a little on my mom's Christmas present. I posted pictures in my blog.

Have a great rest of the weekend!

Julie

Vickie - huge congrats on your new birthday and being a survivor!

Vickie, congrats on being a survivor! I hope your doctor and nurses can make it to the party.

SHEMARIE and Sher; I am sorry that your cancers have returned.

SHEMARIE, please don't give up hope; I have breast cancer, and I have been living with it in my bones since 2007. If you need someone to talk to, I am here for you. It's not an easy thing to live with, but it is treatable.

In two weeks (Nov 2nd) I am having a birthday party to celebrate my 1st birthday party!
I had my stem cell transplant last Nov 1st.
Weather wise, I hope my oncologist and chemo nurse, and dr.s nurse will be able to drive the 2 1/2 hours to come to my party!
So far, I am still in remission REJOICE

I purchase the Spark Activity Tracker, and received it yesterday. What a fun tool to get my exercise in. It works great, and I never had luck with pedometers, so I was nervous about spending the money for this. It is awesome though! Right now, a new toy!

SHEMARIE I will carry you close at heart...just remember that we are fighters at this point, don't give up and always look for the silver lining in everything you do!

I will follow you here and will gladly listen whenever you need me to! I too have no hair and really have had no hair for 15 months out of the last 18 months....I totally know what you are saying about people just not understanding how we feel but in due time they will! I always look at someone like that and realize that they really don't know what to say because they are hurting for you....there is just no way for them to form the words!

I really encourage you to stay positive use any and all resources that may be available to you, and find something each day that will take your mind off how you are feeling! It will be hard at first, but if you let it will become routine....

Jean

Happy Saturday!!!!

It is supposed to rain today so we are going to do our “town chores” today. We have quite a bit of running to do, several stores to visit. Will take 2 or 3 hours. Then if it quits raining we shall work on removing the interior of the Chevelle to get it ready to put its new roll bar in!

Already got my workout in this morning. Hope to get more walking and cycling in later this afternoon

Hugs to all!!!

Sher...You have been in my thoughts! I am sorry that you are going through this again, but at least there is still a way of fighting the big "C"! Keep us posted as much as you can and I hope that you remember that I will always listen if you need someone to talk to!

Jean

Shemarie and Sher! I'm so sorry to hear that your cancer is back. I wishing you both the best! God does do miracles, even today! My prayers will be with you!

Today was almost a rest day. Only walked .94 miles. DH & I had DR appointments all day today. Did a lot of driving. Tomorrow I will walk at least 1 mile.

Best wishes to you Sher. You seem to have a very positive attitude, that is very important as you know.....



Rae

Welcome SHEMARIE And Sher!

I hate to hear you are both going through such rough times, but I'm glad you found us!



Edited by: WILDKAT781 at: 10/18/2013 (20:39)

Hi, I'm SHER. I am a 8+ year Lung Cancer Survivor. They removed 2/3rds of my right lung 8 years ago, and i had the chemo & hair loss. Now, it's back. Actually the doctors told me it was a new cancer and it actually saved my life. Its in my right lung again and it seems to have been there a very long time. It did not metastasize anywhere else. its a very slow growing cancer. Its in no lymph nodes, not in my brain, no where else. they cannot remove the rest of my lung because they said it would not be in my best interest to have it removed because it would be very dangerous and my quality of life would be hell, they said probably in a wheel chair and oxygen the rest of my life. So, there is a new radiation called SBRT: Stereotactic Body Radiation Therapy. It is directly on the tumor and no where else. I will have only 5 treatments. every other day for 5 treatments. they told me i will get the same results from this as i would from surgery except i get to keep my lung. I will loose about anther 5% lung breathing, and that I can live with. If they had removed the rest of my lung, i would only have about 40% lung breathing and that's bad. and he said the operation would be terribly rough for me because i had it 8 years ago and im older and the pain would be horrible and take forever to heal. so i was not a candidate for surgery. they actually desided 15 minutes before my surgery was to take place to Not do the surgery. I am so happy he made that decision. i went to professional doctors at another hospital, a place called Norris Cotton Cancer Center and they said God was looking out for me when the other doctor decided to cancel the surgery. so, nice to meet you all. SHER

Shemarie,

Ida great job on the exercise!

Snuz, I am so glad you got your needed sleep.

Everyone else, I hope things are going well with you and

I had a pretty good day. We took the afternoon off and went and picked up my quilts. Looking forward to getting a good look at them tomorrow when I sew on the binding. I will post some pictures. I am all packed for lady's day away tomorrow. We bowl tonight so it will be a late night for me.

I hope everyone has a great weekend!

Julie

Well here I go again. My breast cancer from 2007 has returned and it went into my bones. Just a few spots. My skull (had rads ) now I am almost bald on one side of my head. My lower spine had rads there too! And I feel utterly fat and ugly. I have gained weight for Its hard to do to much physically right now. I am just depressed and other friends and family have no idea how I feel. About to give up. Thanks for listening. Shemarie

Good afternoon!

I had a routine appointment with my internist today, it went well. Also got my flu shot while I was there.

Yes I watched the video & I hate change. It will take a little tine getting use to it. We all get set in our ways & when things change it will take time. We all just got use to the last change on here & now a new one.

We will all have fun.

I am doing much better. This week I did a 10K & did a lot of exercising. Have a great weekend everyone. Prayers are out there for each & everyone.

God Bless

team not sure if anyone has seen it but Sparks is going to make some changes starting on Monday your start page is going to be different so look for the new change here is a link -

www.sparkpeople.com/blog/blog.asp?po
st
=introducing_a_brand_new_sparkpeopleR>_experience

Good morning all!

TGIF and another day that I can be here!

Jean

Hope you are caught up on your sleep Sue! I'm still working on mine.

Julie - I was just on your page looking at your quilts - they are simply amazing! I made one quilt out of my horse show ribbons and it was so much work, I'll never make another! LOL

Shari - I'm so glad the transfusion helped...it always seems to help Daddy. Hope your counts stay good for a while!!

thank you Jean - Daddys blood work was good! always grateful for that.

Ida - I hope you are well today!

Joanne and Piggy - how are you two doing today?

well folks - the weekend is almost here! Got plans to remove my oil furnace this weekend. that will leave me without a furnace for about 5 days...I've got lots of space heaters though and it is not supposed to get below 50 for the next week. so keep your fingers crossed for one week of good weather!

already got my workout in this morning...testing my two pedometers to see if they would register my chair workout. I had tried them on my waist and bra before and they didn't work for the chair workout but put one on each foot today to test them and they both tracked steps during my workout! (exactly the same too - so they must be close to right for both to be the same) not bad for $2 pedometers. Neither will track my cycling though...I may have to break down and by a spark activity tracker for that. Has anyone tried the activity tracker with chair aerobics or indoor cycling yet?

Happy Friday to you all!

Edited by: WILDKAT781 at: 10/18/2013 (06:44)

Wow! I can't believe that I slept all day today! from 7am until 9 pm! I haven't been able to sleep much lately and today I couldn't wake up. I guess I needed it:)
I did wake up off and on throughout the day for an hour or two but could not stay awake for very long at all. I hope I am caught up on my sleep now:)

Started my day with my workout class.

Work went OK. I am glad it almost the weekend.

I am off to quilt guild meeting. We are having a work night so we are starting early. I am going to make quilt bindings I have about six of them to make. Plus I have some parts of my moms quilt that I may pin so I can sew them tomorrow afternoon. I am picking up three quilts from the long arm quilter tomorrow then heading home to do some sewing!

Have a good evening!

Julie

Good afternoon!
The blood transfusion is helping; I'm not feeling like I can run any marathons, but I am much less lethargic today. I hope this one keeps my blood counts up for awhile; still have two more chemos before my next week off.

and you will prevail! Hope your Dad is OK and his is just routine!

Jean