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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/25/09 11:18 A

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So glad you are fine! Happy Holidays!

I want to be the person my Dog thinks I am!


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LMSTRAW's Photo LMSTRAW Posts: 4,432
12/21/09 3:06 P

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I'm so happy for you! Sometimes I think it's worth the stinkin' preps just to know all is fine!
Happy Holidays!
Linda

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ADOPTMOM1 Posts: 8,660
12/21/09 2:59 P

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I'm back and fine. As usual, the worst part was the prep.

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LMSTRAW's Photo LMSTRAW Posts: 4,432
12/21/09 8:55 A

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I know that feeling. I want water the most when I'm told I can't have it! Praying all goes well
Linda

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2003 wt 313
today wt 139
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 current weight: 135.0 
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ADOPTMOM1 Posts: 8,660
12/21/09 8:04 A

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Thanks, I'll post when I get back. Right now I can't wait for mom to get here so I can go, get it done and then DRINK SOMETHING! Eating would be nice too but I am thirsty.

Tami

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LMSTRAW's Photo LMSTRAW Posts: 4,432
12/20/09 3:28 P

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adoptmom, yes, please do let us know. I'm praying all is well, or easily fixed. emoticon
Linda

```````````````````````````JUST FOR TODAY!
2003 wt 313
today wt 139
new wt 137


 current weight: 135.0 
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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/20/09 2:38 P

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Good luck tomorrow! Let us know how it went!

I want to be the person my Dog thinks I am!


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ADOPTMOM1 Posts: 8,660
12/20/09 9:56 A

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I get to have a scope tomorrow, whoopie! So today I'm having a protein shake for breakfast and then the rest of the day is clear liquids.

I do feel better but still have some pain when food passes through my ileostomy. Had to take a pain pill about 1:30am so I could sleep.

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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/19/09 11:06 P

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I am back on it 9mg per day, bad flaire up. Will hope to be back down to 3mg again soon.

I want to be the person my Dog thinks I am!


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ADOPTMOM1 Posts: 8,660
12/13/09 10:11 P

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YEah, I'm still doing alot of almond milk and protein powder shakes.

Anyone here have an ileostomy?

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LMSTRAW's Photo LMSTRAW Posts: 4,432
12/13/09 3:17 P

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I was on Entocort about 8 months before I went into remission. I honestly don't know what it did to me, I was also taking 40 mg a day of prednisone and Pentasa. Steroids make me swell, and my feet and legs would get huge; since I'm arthritic, that hurt! But, fluid pills would bring it down. I slept with my legs up on a big pillow, which also helped. I continued to lose weight until I went into remission. Other than the fluid retention, I don't think the steroids made me gain at all. I was still very limited on what I could eat, which may be why I did not gain through that time. I did gain about 20 pounds after I got off these meds, but I needed to.

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2003 wt 313
today wt 139
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 current weight: 135.0 
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ADOPTMOM1 Posts: 8,660
12/13/09 1:13 P

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I'm hoping to see some more benefits. It seems that i've plateaued a bit.

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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/13/09 10:24 A

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Yes I had a little bit of weight gain like around 10+ or- but the benifits out weigh that. For me, that is.
emoticon

I want to be the person my Dog thinks I am!


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ADOPTMOM1 Posts: 8,660
12/6/09 9:24 P

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Right now I'm up about 4 but I was down 12 so I'm hoping I don't shoot back up.

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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/6/09 7:49 P

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I have been on entocort for 14 months and yes I did gain weight. Not too much but losing has been a real struggle. Good luck.

I want to be the person my Dog thinks I am!


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ADOPTMOM1 Posts: 8,660
12/6/09 4:13 P

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Those of you who are taking entocort- have you experienced weight gain with it?

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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/6/09 12:15 P

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I wish I could stay on it forever! But I can not. The down side. Don't stay on too long because your brain will forget the pain level you are at and boy is it hard when you have to cut back!
Good luck!

I want to be the person my Dog thinks I am!


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ADOPTMOM1 Posts: 8,660
12/6/09 11:57 A

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Well, I just took my 4th dose and honestly, I could feel a slight difference the day after the first. Now I'm almost back to normal and planning to try some light exercise this afternoon.

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ESMERILDA1313's Photo ESMERILDA1313 Posts: 1,643
12/6/09 12:44 A

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I love it! It works for me! I go on it 9 mg for 3 months then 6 mg then 3mg. Hope it works for you. I am on the 3 mg now and all the pain is back....Wish I could be back on the 9! Let me know what you think. I could tell a difference right away with in a week 60 percent better.

I want to be the person my Dog thinks I am!


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ATHENSGIRL04's Photo ATHENSGIRL04 Posts: 493
12/4/09 1:14 P

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I'm on it. I think I could tell a difference in less then a week.

Height: 5'2

I keep pressing Escape but I'm still here


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NALA78's Photo NALA78 SparkPoints: (0)
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12/4/09 12:38 P

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Sorry I am not familiar with Entocort, hopefully it works! congrats on going so long without flare-ups. I get them a few times a month and the really bad ones about every 2-3 months.

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ADOPTMOM1 Posts: 8,660
12/3/09 10:22 P

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Sigh, well after 23 YEARS of no meds and no flares, I have had my first one this week. It isn't terrible but it's in the end if my ileum where my ostomy attaches and it has me walking like an old lady!

I went to the Ge today and got a prescription for Entocort. Anyone had it? If so, how quickly did it start effecting you?

So, I had just revamped my diet to try and eat more vegetarian foods but that's pretty much shot to heck now. I'm just happy to be off the jello and gatorade diet. I hate jello and gatorade with a passion!!!! Now I can't have complex carbs, fiber or lactose. My doc looked at me and said, "basically I'm telling you to eat crap." LOL well at least both of us still ahve a sense of humor.

I'm so tired. My biggest issue has been the inability to get comfortable enough to eat. I hope the Entocort kicks in quickly.

I guess that the one bonus???? is that I've lost 11 pounds this week. Personally, i'd have preferred doing it with diet and exercise but whatever.

Tami

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