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SWIRLYDOODLE's Photo SWIRLYDOODLE SparkPoints: (0)
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3/11/15 10:25 P

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Also, Kathleen, I am sorry to hear about your loss.

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SWIRLYDOODLE's Photo SWIRLYDOODLE SparkPoints: (0)
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3/11/15 10:24 P

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Hi Ladies! I have been part of the team for awhile now, but have a tendency to sign up for a lot of teams. I tend to use Tudiabetes.com as my main diabetes support group. I think I've been on Spark since 2007, but my latest attendance spurt has been since January since I decided to start running. The best thing about that was that it threw my numbers for such a loop that I was forced to re-assess all my basals and insulin ratios. I realized I was getting pretty sloppy with my carb ratios. My goal now is to do a weekly self-assessment of my pump data. I am 31, have had diabetes for 20 years, and have been pumping for 8 years, most recently with the Animas Ping.

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CD12683832 Posts: 54
3/10/15 3:49 P

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PFERG66's Photo PFERG66 Posts: 2,300
3/10/15 3:27 P

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Barely!!! What happened for me is that I found that I was an Emotional Eater, so I joined that team; then I wanted to be sure to exercise daily so I joined the 10 Minutes a Day challenge, and so on.
For informative stuff about diabetes I found Diatribe (maybe a once-a-month enewsletter) has been really interesting!
What is your story?
--Priscilla emoticon

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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CD12683832 Posts: 54
3/10/15 9:38 A

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PFERG66's Photo PFERG66 Posts: 2,300
11/4/14 4:44 P

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Hello Valerie! I was wondering how things were for you.

I will try tto post more here. Right this minute I need to go eat something--I'm reading 'way low.
All best wishes,
---Priscilla

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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VALERIE1619's Photo VALERIE1619 Posts: 1,091
11/4/14 1:10 P

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As a person with type 1 (diagnosed at 32 in 1992) I've always had a belief that "I've got my disease so nothing else will befall me."

Two years ago, with hands that were going numb every night while I slept, it was discovered I'd severely herniated a disc in my neck, which lead to the diagnosis that my spinal column had always been too narrow, and I was "one trip and fall away from being paralyzed from the neck down." Emergency surgery ensued, and now I've got five plates in my neck.

This week, I'll be going in for an MRI of my low back. In March I was diagnosed with arthritis in both knees during a flare up. But months of religious PT and exercise haven't improved the pain, and now I've got leg pain, foot and ankle pain, and a toe going numb on one foot.

Hopefully, the MRI will lead to an answer, as my doctor feels something's going on with my low back. It's pretty depressing to have your health thrown up in your face every minute of the day, isn't it?

Just before my cervical surgery, I'd lost 60 pounds, was committed to regular, intense exercise, and felt better than I had in many years. Menopause sucks, and I've blamed many of my symptoms on it, but now's time to get some definitive answers.

On top of everything else, I came down with a cold yesterday; my first in many, many years!

Keeping your BS in line during life's ups and downs is definitely challenging. I pump and recently started wearing a CGMS, which I find both very helpful and a bit frustrating.

Because I'm sick right now, I'm pumping an extra 30% of my daily basal--I love the flexibility a pump provides.

So, even though this forum is so very quiet, know that I'm one who still tries to read the current posts!

Valerie



Valerie

Sh*t is hard. Do it anyway.



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PFERG66's Photo PFERG66 Posts: 2,300
11/4/14 10:35 A

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Hey again--I understand how difficult it can be to manage diabetes if you have to be hospitalized. I have found that the protocols for treatment differed so radically from my personal management that it became life-threatening!! I plan to not be hospitalized again!

If your injections keep your sugars under control that is great! They did not work for me so the team found a research study and enrolled me and I received all my stuff for free. Now that I am 70 my costs are greatly reduced; otherwise I'd be one dead duck!!

I wish you every success and I'm rooting for you.
--Pris

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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DUTCHIEKIWI's Photo DUTCHIEKIWI Posts: 2,979
11/4/14 2:24 A

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Hi Priscilla,
I am 45 and was only diagnosed in July last year. About 15 months ago. Initially I was taking 'control' an doing really "well" as much as I could. But the last three months I have had some serious back problems and after two surgeries in 3 months I have been diagnosed with an injury called Cauda Equina Syndrome. That has kind of taken over my life, my second surgery was 4 weeks ago, so I started 'slipping' in the t1d area, and started going up and up and a few hypo's.... I am trying to now to start being able to live with both problems, and this week have picked up and starting to regulate my t1d much better again. Quite a journey ahead still.....

I do not have a pump, I inject novo rapid and Lantis at night.

Dutchie

Edited by: DUTCHIEKIWI at: 11/4/2014 (02:25)
Dutchie.


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PFERG66's Photo PFERG66 Posts: 2,300
11/1/14 9:03 P

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Hey Dutchie! I'm willing to try!
I've been T1D since 1979--I was 34 when diagnosed.
I love my Tandem T-Slim pump and I have a Dexcom CGM.
SparkPeople has been a Godsend in helping me regulate and manage everything.
What is your story?

--Priscilla-in-Texas

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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DUTCHIEKIWI's Photo DUTCHIEKIWI Posts: 2,979
11/1/14 7:34 P

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Is there anyone in this team still interested in supporting each other and participating in the team? :-)

Dutchie

Dutchie.


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CD14608468 Posts: 100
3/17/14 5:30 P

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I've been using various Medtronic pumps for the past 10 years, and so far they've been a good fit. I just ordered the continuous glucose monitoring system that goes with the Minimed 530G pump, and I'm really excited to use the two together.

VALERIE1619's Photo VALERIE1619 Posts: 1,091
2/12/14 1:12 P

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I don't believe the Animas Vibe is available in the US yet, but may be where you are.

I've used Animas products for the past 10 years or so. Love the customer service and the pumps. I'm currently using the Ping which I especially like because since I wear it in my bra, the remote means I can bolus without having access to the pump. Especially nice when I wear a dress and have the pump tucked down into my underwear!

The Ping holds 200 units of insulin; for many, that's the deciding factor in choosing a pump. If you are very insulin resistant or use large amounts, you may want to go for a pump that holds 300 units.
Valerie

Valerie

Sh*t is hard. Do it anyway.



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PFERG66's Photo PFERG66 Posts: 2,300
2/12/14 10:09 A

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My diabetes team says good things about Animas products. I switched to Tandem T-Slim from Medtronic a few years ago.

Edited by: PFERG66 at: 2/12/2014 (10:10)
"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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CD13114852 Posts: 1,262
2/12/14 8:21 A

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What pump does everyone use?
We met with two reps last week, our daughter is going on a pump and hopefully I am too.
Our options are: Animas Vibe, Animas One Touch Ping, Medtronic Veo.

PFERG66's Photo PFERG66 Posts: 2,300
2/3/14 10:35 A

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Hi SAMMI-SAM! Good to have you!

The pump wasn't a good fit for you? When I think about going back to shots I just am grateful for my Tandem. Could you share your story?
BTW, you look great.


I find that when we really love and accept and approve of ourselves exactly as we are, then everything in life works.

~Louise Hay



"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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SAMMI-SAM's Photo SAMMI-SAM SparkPoints: (26,311)
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2/2/14 9:18 P

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Type one diabetic for 28 years on insulin shots & previously on insulin pump. Here trying to maintain A1C levels-

Final weight goal of 140 pounds & maintain my fitness with excellent blood sugar management.


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PFERG66's Photo PFERG66 Posts: 2,300
2/2/14 8:58 P

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LADY_HAVOC: emoticon

Great to have you on our journey.

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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CD12683832 Posts: 54
2/2/14 2:46 P

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PFERG66's Photo PFERG66 Posts: 2,300
1/25/14 2:35 P

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Ah yes! I remember the vast amounts spent on my kids in class. I don't regret a penny of it.
I'm working on a really fun, funky piece right now with weird foreshortening--did I already tell you that?

BTW started my nutrition day with homemade chicken vegetable soup, and whole wheat flat bread with melted mozzarella on it. Did some seated chair abs work and will do three more 'starter' cardio things.
Know that you will have a good day, too, right?

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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VALERIE1619's Photo VALERIE1619 Posts: 1,091
1/25/14 1:40 P

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Thank you!
I've got classes starting next week so I know how it is, I'm spending more on teaching materials than on my own work right now.

I look forward to seeing some of your work!


Valerie

Sh*t is hard. Do it anyway.



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PFERG66's Photo PFERG66 Posts: 2,300
1/24/14 5:51 P

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Valerie, your work is beautiful and inspiring. Glad you shared your site! My techno ability is poor, so no website for me. I stepped back from art while teaching it (go figure), but when I retired in 2007 I decided to get back into my own stuff.
Along with losing weight I'd have to say pursuing a coherent body of work has been one of the most difficult things for me. Right now I paint in oils, mostly, and figuratively. My goal will be to get some images together that I can show off on this site!

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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VALERIE1619's Photo VALERIE1619 Posts: 1,091
1/24/14 2:46 P

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I'm an artist too!
I work and instruct fused glass.
Here's my (slightly outdated!) website if you're interested:
www.valerieadamsglass.com/home.htm

Valerie

Sh*t is hard. Do it anyway.



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PFERG66's Photo PFERG66 Posts: 2,300
1/24/14 1:37 P

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Hi Valerie! I live in the Hill Country of central Texas. Right now we have a sprinkling of snow on the ground, and we expect to get up into the high 30's today. We have been in an on-going drought for almost three years.

I'm staying in and will do strength training and maybe a walk around inside--all stuff I have found in the SP sites.

As far as diets go I use the nutrition tracker and have found that I use a lot more fresh ingredients and I am trying to enter various things I make myself into the favorites categories.
I don't know if it is realistic to want something a little more fine-tuned for T1D's? I will stick with what I'm doing right now.

I'm at 176 and am aiming for 130--haven't been down that far since I started college in 1962! (I'm 69). Due to the weight gain I hurt all the time and had increased my pump dosage accordingly. Now I am doing the same as you are and lowering my basal rates--Yay!
This is the first program I've joined where I feel this goal is attainable!

I'm an artist and have finally found a group that helps me get my work shown--that's very exciting!

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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VALERIE1619's Photo VALERIE1619 Posts: 1,091
1/24/14 1:13 P

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Welcome Priscilla!

What kind of food plan are you looking for? I've lived an ultra low carb life (mostly!) since about 1999. But right now I'm on Medifast, trying to drop about 30 pounds I've added after a major spinal reconstruction surgery last year.

Need to get back in to exercising, too. I was religiously hiking a 2.5 mile loop around a lake three times a week for a few years--the most consistent exercise I've ever done. But now, it's been nearly a year since I've done that. Where the hell does the time go?!

I've been doing well with food lately but the lows caused by eating so much less are frustrating. I pump, so I've been lowering my basal every few days to match what I'm eating now rather than the holiday bingeing that went on.

Where are you located? I'm in Northern California, where it's over 70 and we're desperate for rain...



Valerie

Sh*t is hard. Do it anyway.



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PFERG66's Photo PFERG66 Posts: 2,300
1/24/14 1:08 P

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VALERIE1619 You echoed the thoughts I had when I signed up yesterday. Where IS everyone?

I'll introduce myself: My given name is Priscilla and I've had Type ! diabetes since 1979.
I would love a T1D menu plan. I have been customizing everything for nutrition tracking so far.

At any rate, let's get the T1D discussion revived! Anyone up for that?

"With ordinary talent and extraordinary perseverance, all things are attainable.
--Thomas Foxwell Buxton


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VALERIE1619's Photo VALERIE1619 Posts: 1,091
1/23/14 10:47 P

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This forum says it has over 700 members...is everyone gone?

I've seen a couple new members over the past few weeks. Anyone introducing themselves?

Did everyone discover a cure so they no longer have diabetes?

Anyone? Anyone?
Hello?



Valerie

Sh*t is hard. Do it anyway.



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