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D710DANCE's Photo D710DANCE SparkPoints: (0)
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2/11/10 4:50 P

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I'll check when I get home and I'll let you know.

"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

I'm ON TO THE NEXT ONE!


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KNITSTRONG's Photo KNITSTRONG Posts: 267
2/11/10 4:46 P

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I don't know anything personally about Neurontin, but I'm guessing you were prescribed that for your nerve pain/numbness. The meloxicam is an NSAID and useful for reducing inflammation and pain, just like Advil. But all the NSAIDs work a bit differently, so you never know which will provide the best relief for you. It would be interesting to know what the 3rd drug is - methotrexate is usually the first thing people are prescribed specifically for the RA because it's cheap and very often effective. But you RA doc will know what he's seen work best in people with your symptoms, so you might get one of the many other drugs and/or combos.

Again, best wishes!

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D710DANCE's Photo D710DANCE SparkPoints: (0)
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2/11/10 3:20 P

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I appreciate the "wordiness". Right now, I'm on Meloxicam, Neurontin and I forget the name of the third one. I will immediately demand a referral with a Rheumatologist.

Words cannot express how much I appreciate the info from this team!!!

emoticon emoticon emoticon emoticon emoticon emoticon

"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

I'm ON TO THE NEXT ONE!


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KNITSTRONG's Photo KNITSTRONG Posts: 267
2/11/10 2:36 P

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I totally agree about seeing a rheumatologist! There are several blood tests she/he will do that most other doctors won't. They are very specific to RA and other types of autoimmune disease. With the right tests, the doctors can do a pretty good job determining if you have a type of arthritis, although some of the other autoimmune things like fibromyalgia are more difficult and more a process of elimination. Once you have a proper diagnosis, you will be prescribed meds that have a much higher rate of success in combating your particular issue. You may have to try several or even a combination to get the most relief, but at least you will know you are attacking the right problem. If you've read anything about RA you already know how important meds are, not just for pain relief, but for joint protection. I've even read how postponing treatment can have a significant effect on the course of the disease.

Just so you know, it took me two sets of drugs to find a pairing which (knock on wood) is working well. One year ago, I started out on methotrexate and meloxicam. They didn't do much good (for me - but others have the completely opposite experience, so I'm not AT ALL saying these drugs won't work), so I switched to Arava and nebumetone and it's like a miracle so far! None of these drugs makes me sleepy or affects my alertness at all.

Best wishes on your journey! I hope you find relief sooner rather than later.

Edited to say: As usual, I'm super wordy, but I meant to add:
emoticon emoticon

Edited by: KNITSTRONG at: 2/11/2010 (16:36)
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D710DANCE's Photo D710DANCE SparkPoints: (0)
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2/11/10 10:17 A

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Cyndi,
Come to think of it I remember doing those exercises when I went to Arthritis Water Aerobics w/ my Mom in the past and I'll be purchasing a stress ball today.

I LOVE this team already!!!

Edited by: D710DANCE at: 2/11/2010 (10:18)
"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

I'm ON TO THE NEXT ONE!


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4CYNDI's Photo 4CYNDI Posts: 15,952
2/10/10 5:40 P

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You are welcome. I learned most of these from my mom who is a certified Arthritis Water Aerobics Instructor. The first three were taken from these classes and done in water to help support the hands. But I do them in front of the computer most often as that is where I feel the need most often.

Another good exercise for the hands is a stress ball if you have one. It really helps relax the tension in the hands.
Cyndi




Cyndi
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HS Cyndi RavenPuff - Hogwarts 21, 22, 23
Kyndi (Kynthia) Bea Goode ~ summer ~ Hobbit/Human
Mademoiselle Cyndi L'académie de magie de Beauxbât


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D710DANCE's Photo D710DANCE SparkPoints: (0)
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2/10/10 4:35 P

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Cyndi,
WOW! Thank you so much for this information!!! emoticon
Deondra :)

"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

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2/10/10 4:10 P

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Hi Deondra! Welcome to the team. I agree that you should see a Rheumatologist as soon as possible. They are the experts when it comes to these types of problems. The earlier you can start treatment the better.

I have several exercises I do for the hands as my RA is worst in the hands and ankles.

Hand stretch - Turn your right palm face up and rest it on you left hand thumb (at about the knuckles where the fingers meet the hand). Use the fingers of the left hand to gently press on the right hand fingers. Repeat with the left hand face up. Repeat sequence as needed.

Finger stretch - Hold your hands arms parallel to the floor. Take the thumb of each hand and touch it to each of the other fingers forming an O with each finger. Repeat several times as needed.

Thumb stretch - Take each thumb and touch it in turn at the base of each finger. Repeat several times as needed.

Often times one or the other of the finger/thumb exercises is harder to do. But both are great for getting the hands moving.

The last exercise is one I got from a belly dancing class.

Hold your hands vertically about chest height so the fingers are pointing towards the sky/ceiling. Stretch the Fingers up and out as far as you can. Hold for several seconds. Form a fist with each hand. Hold as tight as possible for several seconds. Repeat this sequence alternating short and long holds at each of the positions.

Another thing to try is alternating ice/heat on the hands.

Good luck!
Cyndi




Cyndi
C.A.M.O.Crew BLC 43
House Wampus - Circle of Ilvermorny
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HS Cyndi RavenPuff - Hogwarts 21, 22, 23
Kyndi (Kynthia) Bea Goode ~ summer ~ Hobbit/Human
Mademoiselle Cyndi L'académie de magie de Beauxbât


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2/10/10 1:49 P

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Thank you both for these posts. There is a strong possibility that I will be changing doctors again. I have a follow-up appointment with him on the 24th, but I left my last appointment very frustrated.

I came in armed with questions as a result of research that I had done. I do not profess to be a professional, but I know that something's not right. Toward the end of my exam he flippantly mentioned that I may have RA or even FM and that I needed to give the medicine time to work. When I asked what were the symptoms of both he told me to search the internet to which I responded, I don't pay the internet a co-pay, I pay you one...then he answered my questions.

My job is a high-stress job and today it has been extremely stressful. When I take the pain meds it makes me sleepy and affects my performance, when I don't take them I have these flare-ups (which I'm having one as I type this).

Anyway, thank you again for your help and I look forward to getting to know you and the rest of the team mates much better.

"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

I'm ON TO THE NEXT ONE!


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KELBSTAR Posts: 287
2/10/10 11:42 A

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I hear ya girl! I'm 33 with RA and just got diagnosed with FM also. First off, congrats on moving on to another doctor, getting the right doc and treatment is so key and so many people stay with a terrible doc and just don't know better or don't have the confidence to get someone new, I've been through many and have finally got an internist and physiatrist(this is not misspelled) and rheumy that all seem to care and be interested in helping me get the proper management plan. Keep lookin to make sure you get the right person to be your health advocate.
Weight gain is common for the meds. which sucks, but i don't know what to do, i'm so desperate for relief i'll just about do anything.
I hate having to take the drugs also, but i'm at a point where i'm going to do so until i can get some relief and then put my alternative methods into place hopefully getting to a point where i can get off some if not all meds and live a healthier life in that way.
I have finally gotten to a point where I am able to make myself move, even on the hard days, even if it's minimal "granny" exercises as i call them. I use heat therapy often and my favorite things to do are Tai Chi and QiGong, they are great for moving/stretching the joints and muscles as well as for mediation and clearing/centering the mind, helping to relax me. It seems silly, but relaxation techniques have helped reduce my pain, meditation has been very beneficial. I'm not saying the pain disappears, but I have a different relationship with it and am able to bear it more, plus my body itself relaxes more, which helps since we tend to get so tense as our bodies cringe from the pain.
I take Enbrel, Celebrex, Lyrica, Lortab, etc, etc. just to give you an idea.
I hope this helps some and I hope you find some great treatment and get relief ASAP!
Smiles!

KIERAE's Photo KIERAE SparkPoints: (0)
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2/10/10 11:42 A

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emoticon to the team! Have you seen a specialist? If not - get a referral and get a workup. Believing you have RA when there is soo many types of arthritis that it could be (or not be) doesn't work for me (and clearly doesn't work for you). Time to start ruling out stuff which is a specialist's job and not a generalist.


I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow, but through it all I still know quite certainly that just to be alive is a grand thing. Agatha Christie
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Kierae

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ae

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D710DANCE's Photo D710DANCE SparkPoints: (0)
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2/10/10 11:18 A

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Hi All,
My name is Deondra, I'm 38 and I have been a Sparker for almost three years now. I have always been a cardio-a-holic and have enjoyed all types of workouts.

Well, back in December I started experience numbness, tingling and sharp pain in the lower half of my body (waist down, it was worse in my legs and feet) as well as in my hands.

My *former* primary care physician said that I was overwhelmed and a perfectionist and that I was having anxiety attacks. So I changed doctors. He prescribed some medicine that stopped the constant numbness and tingling in my lower body, but no relief was provided in my hands. I have been having follow-up appointments with him about every 4 weeks.

During my last appointment he said that he believes that I have RA and maybe even FM and gave me a third pain medicine. Well, the side affects of all three meds were weight gain among other things. I've tried to wean myself off the meds but that's not working. And I noticed that I'm having more incidents where my hands get extremely red/hot and start aching. It's worse when I work out, at nights and in the mornings.

Sometimes it gets so bad during the day that I'm unable to type.

Does anyone have any advice as to what I can do to find some relief. I really am looking for a natural remedy but at this point I'm desperate to get back to my "old self" and my old workout routine.

Thanks for taking the time to read all of this!!! emoticon emoticon emoticon

"This was the Lord's doing, and it is marvellous in our eyes..." Mark 12:11 KJV

I'm ON TO THE NEXT ONE!


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