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HLTHAPPINESS4C's Photo HLTHAPPINESS4C Posts: 42,677
1/9/20 2:20 P

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Heating pad...My best friend when I am in pain!

Thanks for sharing what works for you! emoticon emoticon

Cynthia

South Carolina The Palmetto State
Eastern Time


Proverbs 3;5-6
Trust in the Lord with all your heart and lean not on your own understanding; acknowledge him, and He will make your paths straight.
~~~~~~~~~~~~~~


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1/9/20 3:44 A

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HLTHAPPINESS4C's Photo HLTHAPPINESS4C Posts: 42,677
1/8/20 3:14 P

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Hello and emoticon Debbie!!

Glad you have joined us.

It sounds like you have A lot going on, like many of us do. You are not alone here. I too have depression and anxiety. I've dealt with it for a large part of my life. My depression is pretty good right now, but my anxiety continues to be a big problem. My fibro has been under control thanks to Ultram and Lyrica. But I still get flare ups from time to time. For years and years my fibro flared daily...weeks, months and sometimes year at a time.

I'm sorry you're not able to take meds. What helps you out? We share a lot of ideas what has worked.

I look forward to getting to know you!
Gentle hugs,
Cynthia

Cynthia

South Carolina The Palmetto State
Eastern Time


Proverbs 3;5-6
Trust in the Lord with all your heart and lean not on your own understanding; acknowledge him, and He will make your paths straight.
~~~~~~~~~~~~~~


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1/8/20 12:34 P

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Debbie... Welcome to this team. Most of us would really like to not be on the team, meaning not have fibro. I have arthritis, too. I look forward to getting to know you.

Ohio


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1/7/20 5:45 P

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2/26/19 7:16 P

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I hope we are able to help you on your journey.Pain definitely comes & goes.

The warm water therapy may really help you. I found soaking in a hot tub helps. I put epsom salts in it & it is even better.

Did the Dr check your vitamin D level? I do not know where you live or how much you are out in the sun but vitamin D & magnesium might help.

It really is hard to know what symptoms are caused by the fibro.

When I was first diagnosed, I was relieved. I would come home from work & lay on the couch thinking I was dying because I felt so bad. That was almost 20 years ago & it has gotten better although some days are still not good.

Ohio


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2/26/19 2:42 P

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Newly dx, feeling a bit confused. many overlap dx conditions as well. rheumi is recomending hydro therapy in warm pool. not sure what that is, or will be like. been told many times thru the years that folks think i had fibro, but its different when its an actual dx. then seeing so many overlaps that fibro has are things that i have and like, woah just woah emoticon

so frustrated with lack of actual info on fibro, in my mind it should be go get this and that book and poof you understand yourself and what to do etc. but i really couldn't find that with this. so here i am, hoping to listen to others and learn what i can.

not sure how to tell what is fibro related versus anything else, how do you tell what symptoms are your fibro versus other conditions, and how do you tell which medicine you need for what pain? sigh. do you all find that your symptoms get worse at specific times of the month? do you find your pain can come and go throughout the day?

Edited by: DOLPHINGAL2 at: 2/26/2019 (14:44)
HLTHAPPINESS4C's Photo HLTHAPPINESS4C Posts: 42,677
1/20/19 12:34 P

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Hello and Welcome Jae!! It's nice to have you with us. We're here for you. I'll keep you in my prayers. I am really enjoying the quotes you have been posting. Looking forward to getting to know you better.

emoticon emoticon

Cynthia

South Carolina The Palmetto State
Eastern Time


Proverbs 3;5-6
Trust in the Lord with all your heart and lean not on your own understanding; acknowledge him, and He will make your paths straight.
~~~~~~~~~~~~~~


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1/17/19 11:10 P

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Welcome to this team Jae. I think you will find support as we all struggle with fibro & know our most important need is to rely on the Lord. We are here for you & look forward to you being here for us.

Ohio


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SIMPLY_JAE's Photo SIMPLY_JAE Posts: 25,954
1/17/19 5:01 P

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Hi I am Jae.. I am a christian..and I also have Fibromyalgia, depression,and whole host of other things. I am struggling with everything that is on my plate right now. My husband has dementia and I am his caregiver.. what is most important to me right now is my relationship God and just getting through all my challenges at this time...


Just a daily reminder: smile and laugh...a lot, look for positive traits in people, compliment yourself and others, focus on feeling good, reach out to people in need and focus on the present and the 24 hours in front of you.


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CD23690792 Posts: 70
9/3/18 8:06 P

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Thank you!

GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (132,953)
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9/3/18 7:44 P

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Hi Kelli.... I am glad you did your research & figured out that you might have fibro. That is exactly what I did about 15 years ago. Fibro is a crazy beast. It seems to be different for everyone & some times meds stop working as well. I hope your family will be able to read about the beast & help you to better cope with it.

Join in the post & get some support her.

Ohio


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CD23690792 Posts: 70
9/3/18 5:48 P

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I had the symptoms for a year and got diagnosed all different kinds of things. After going through so many tests and doctors I figured I was just exercising too hard (we have a great YMCA) so I toned things down.

The symptoms persist and gradually got worst. On Fathers Day I ended up sleeping all day and I was so mad. I woke up Monday and did my research and found fibro. I immediately scheduled an appointment with my doctor. I gradually told her what I thought was wrong because most doctor don't like you to self diagnose. She agreed and put me on Lyrica.

I felt better than I had ever felt then soon my symptoms came back and they seemed much worst because I knew what it was like to feel normal. This went on until my doctor said this is the max dose of Lyrica and she didn't know what else to do so she got me an appointment with a specialist in November.

This specialist is the best in the midwest and doesn't have a cancellation list.

Problems my husband works 3-3 is used to me doing everything. At first he thought fibro was an excuse for me being lazy. Now he understands and when he is around will let me take naps and watch our 5 year old.

My whole family thinks fibro is made up. My Mom was coming through my town and was planning on visiting. I texted her the day before and said I wasn't up to it. She blew up and has refused to talk to me and said I hurt her so bad. I texted her today to ask how she is doing and she texted back saying she hoped I was better.

My days vary. I went to the YMCA to workout last week on the treadmill and paid for it. My pain has been severe and that is why I canceled on my Mom. She expects the house neat and me well dressed and put together. Today I slept in and took a couple of naps and I feel much better.

I try not to over do it and I know when I see the specialist in November my fibro will be more under control.

I do stay active when I feel okay. Every day I take my son to and from school.

CRYSTAL3232 SparkPoints: (98)
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8/23/18 12:52 A

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yes


GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (132,953)
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8/22/18 1:10 P

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Is it called oxygen chamber treatment?

Ohio


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8/19/18 8:10 P

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Hello Ladies,

I have had fibromyalgia for 12 years now, I had knee replacement surgery in July and I hope to be able to drive soon, so I get back to my exercise routine at the fitness center. I miss my warm water therapy pool and hot tub.

I would like to try this treatment, but it isn't covered by insurance. I lost my job 12 years ago after my fibro started.

https://www.webmd.com/fibromyalgia/news/20
150624/oxygen-chamber-therapy-may-ease
-fibromyalgia-study-suggests#1

KELLY_SS Posts: 4,990
3/6/17 1:32 P

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It sure is. I have well meaning friends/family who will start by asking me how I feel and then launch into all these ways I can ''cure it'' by taking this vitamin or that fruit juice, or this herbal tea. This, that and the other! lol! Drives me crazy. emoticon I just grin and bear it, to be polite, but people who don't have these illnesses can't possibly understand them and all of their complexities. It's just easier to be in the company of people who DO understand and not having to explain why I take 'this medication' or why I am so tired even though I go to bed at a reasonable hour and slept well last night or why I have so many doctors appointments or why it's hard for me to do certain things or why I have odd 'symptoms'. It's really a good thing that these type of groups exist here on SP and this group is especially warm and friendly.

''I felt so good like anything was possible
I hit cruise control and rubbed my eyes
The last three days the rain was unstoppable
It was always cold, no sunshine

Yeah runnin' down a dream
That never would come to me
Workin' on a mystery, goin' wherever it leads
Runnin' down a dream'' .... Tom Petty

******************************
RA & Fibro Warrior - Spoonie 4 Life -- Rockin' Red Foxes


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3/3/17 8:23 P

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Kelly.. I just read your post. I agree, it is nice to not have to explain away our pain & fatigue.

Ohio


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KELLY_SS Posts: 4,990
1/26/17 2:45 P

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So sorry, I thought I had done this already. Oops!
I am Kelly, I'm a 53 yr old married SAHM with one teenage son. I live in Arkansas. I've been at SP since 2006 but had to leave in 2013 and only recently came back. I left due to health issues which after some false diagnosis' finally turned out to be Rheumatoid Arthritis and Fibromyalgia. I was diagnosed with both in the summer of 2014 by a rheumatologist. I simply woke up one morning in March 2013 with an aching wrist which spread into my hand/fingers and then up into my shoulder. For about 11 months I had no use of my right arm, and I am right handed. Doctors kept telling me it was carpal tunnel but I had no insurance until Jan 2014 so I had to wait until then to have a nerve conduction study done. The result was NO CTS. I found a new doctor because my PCP was doing nothing to get to the bottom of it and the new doctor did a bunch of blood work and said he believed I had RA, it took several months to finally get in to see a rheumatologists and a battery of tests and exams and xrays and then finally diagnosed. Life has completely changed for me. I fell into a dark depression that first year after I was diagnosed and then I crossed paths with a few kind strangers on facebook who were dealing with RA and fibro, and other autoimmune diseases like Lupus and MS, and realized I was not alone. There were others like me who understood when I talked about my pain and other symptoms that were going on, and how scared I was about having this disease and disabilities that might be in my future. I finally had people who I could talk to and they understood. That helped me more than any medicine could have. When I came back to SP, I came with the desire to meet a few others who understood what it's like to live with chronic pain/chronic illness. And the challenges that we go thru when it comes to 'exercise' that a lot of healthier people don't understand. I don't know about all of you but I sometimes get a little tired of having to explain to people why I can't do 'this or that'. I am happy I found this team and look forward to getting to know you all.

''I felt so good like anything was possible
I hit cruise control and rubbed my eyes
The last three days the rain was unstoppable
It was always cold, no sunshine

Yeah runnin' down a dream
That never would come to me
Workin' on a mystery, goin' wherever it leads
Runnin' down a dream'' .... Tom Petty

******************************
RA & Fibro Warrior - Spoonie 4 Life -- Rockin' Red Foxes


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SUCCESS345's Photo SUCCESS345 SparkPoints: (0)
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10/20/16 1:36 A

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Welcome Lisa. I'm new to the team also. I'm going to enjoy this group

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MAGGY1215's Photo MAGGY1215 SparkPoints: (18,886)
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10/19/16 1:59 A

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Welcome to the team Lisa! It's great to have you here! emoticon

CD15330818 Posts: 1,440
10/18/16 4:32 P

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I have been looking for an active Fibro team that doesn't focus on the bad only but on the good as well. My name is Lisa (nickname Kitten), I have been married for 19 1/2 years and have 2 children DS15 and DD17. I also have a West Highland Terrier named Shorty who is 9 yrs old.

I have lost 59 lbs in the last 14 months, the last two I have basically stalled and have been trying to get back in the groove however the summer to fall weather change is wreaking havoc on my Fibro with the going from 90s one day to 60s the next.

GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (132,953)
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9/3/16 2:51 P

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Jeanie.. Nice to see you on this team. sounds like you are having success with your weight loss & fibro. I know you have a deep faith,too. Hope you can jump in often.

Ohio


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9/3/16 11:52 A

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Welcome to the team! emoticon emoticon

MADAMEJEANNE's Photo MADAMEJEANNE SparkPoints: (83,495)
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9/2/16 11:43 P

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Hi I probably have had Firbro since 1974 but the Dr.'s couldn't figure it out until 1998 when I was diagnosed with fibromyalgia by a Rumetologist. At the time I weighed 185lbs. My weight loss journey has been slow with ups and downs. My fibro has improved with the weight loss and better sleep, and a less stressful job. Some days are good, some nights are good, some days are bad, some nights are bad. I am thankful for the health and strength God has given me and still need to lose 22 lbs since I am only 5'1".

Matthew 11:28 Come unto me all ye that are heavy laden and I will give you rest unto your soul.


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1/11/16 2:17 P

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Thank you Cynthia for this great post! I am sure, that you will be an awesome leader for this team!

HLTHAPPINESS4C's Photo HLTHAPPINESS4C Posts: 42,677
1/9/16 4:18 P

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Hello everyone!

A HUGE emoticon to our Fibro Sisters' team!! We are so glad you are here! We are a close knit group who want to know you and make you feel at home here. please introduce yourself and share with us anything you would like for us to know. Feel free to share your struggles, or prayer requests.( we do have a thread for praise and prayer)

We are here for you and want to help you as much as we can. We love to love and laugh and share.

please take a look around. We have some threads that are full of information on Fibromyalgia and tips to live and function as best we can with it. There is also a thread on simple life. Our former leader started those threads. You may add to them as we always are looking for new information. This your team.

Questions...either ask in our daily chat or start a new thread, or feel free to sparkmail me.

Again Welcome!

Much love to our sisters in Christ!
Cynthia

Cynthia

South Carolina The Palmetto State
Eastern Time


Proverbs 3;5-6
Trust in the Lord with all your heart and lean not on your own understanding; acknowledge him, and He will make your paths straight.
~~~~~~~~~~~~~~


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