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My pet dragon
Thursday, May 26, 2011      3 comments

I didn't know it but somewhere along the line, I've adopted a dragon for a pet. He loves to lay around with me. However, every once in awhile he gets excited and breathes fire. For small intervals my whole body super heats and then brea... Read more
Meditation, sleep and chemo
Wednesday, May 25, 2011      3 comments

I have to write more? Chemo is hitting. Sent home from PT early after having a cold sweat sick attack. Couldn't believe how many hours I slept yesterday. Rolling yuck. Learned a meditation technique = breathe in one nosral then out the ... Read more
On board
Monday, May 23, 2011      2 comments

Yesterday was another flare day. Had a yuck feeling to my body all day and got more tendon swelling. Also had waves of fever. I would tear off my clothes and that didn't even feel like enough - I wanted to rip off my skin. Then an hour later... Read more
Starting early
Sunday, May 22, 2011      1 comments

3 hours of sleep - head hurting. Swelling is all back in my arms and I just wish I could fall back asleep -- taking my thyroid meds and will force myself to meditate. It could be a long day. 6am... Read more
Doing what I should
Saturday, May 21, 2011      1 comments

I didn't sleep very well last night. For how tired I was you'd think it would have been easy, but prednisone is known for getting in the way of sleep. So maybe 5 hours. So of course when I get up all I want to do it lay in bed. However, ... Read more
Day 2 of !42!
Friday, May 20, 2011      2 comments

How did a hear wrong. My doctor called me personally this morning and it is 6 weeks. I'm having a follow up appointment in 14 days. Very different today. Woke up to having pressure in my head. Buzzing feeling in under my skin - too many... Read more
Protocol started
Thursday, May 19, 2011      0 comments

First infusion today. Everything went well. I got a walk in and ate to my goal. Going to bed early brfore the slight head yuck turns to more.... Read more
Direction - Finally
Thursday, May 19, 2011      2 comments

What is known: I have progressive severe inflammatory tenosynovitis. Causes: Unknown, but have ruled out parasite, bacterial. I do have a IgM positive to Coxsackie B Types 3 and 4 - probably has made things worst, but not causal. At this... Read more
Why write when a picture tells all
Sunday, May 15, 2011      2 comments

My body is a monster and not the cute type off of Monsters Inc. Saturday was a high point of pain. Back to living with claw hands, and this morning I awoke to welts along my tendons literally growing before my eyes. It felt like a branding ir... Read more
So slipping off the horse
Monday, May 09, 2011      4 comments

Tomorrow is my last day of prednisone and boy do I know it. The weekend was good enough that I just lived - I also took a providgil to be able to survive the family Mother's Day gathering at my daughters house. It gave me great energy. Th... Read more
Sitting high in the saddle
Monday, May 02, 2011      1 comments

Seven out of ten day! Got the shower....little later than 8:30, but hey I'm giving myself a point anyway Didn't do paraffin dip because I forgot it takes an hour to heat up...instead used buckets with hot water and vinegar (helps t... Read more
Watching from the back of the barn
Sunday, May 01, 2011      4 comments

This was my second day on prednisone. Was I expecting a miracle - honestly yes. Have I gotten one? not as quickly as I hoped and I'm dealing with a lot of sweating and still have the edema in my tendon with heavy fatigue. I did take a two ho... Read more
Night before the rodeo
Thursday, April 28, 2011      3 comments

Husband just came home after getting my latest change in medicine which I staart in the morning....thank all the good prayers in the universe doxocycline is going out the window. I think the last few days yet... The skin on my hands is sta... Read more
Self Challenge Day
Monday, April 25, 2011      2 comments

Yesterday wasn't my best - on top of everything could only get 4 hours of sleep so today I'm making a better day and will keep a running commentary. 9:15am - have PT at 10 so crawling into bed so get a shower and get out the door. 10:50a... Read more
The Easter bunny delivered rotten eggs
Monday, April 25, 2011      9 comments

Warning this is not written by the typical woman you know and is complete not appropriate for Easter. Only time in my life I've felt like laying an F bomb on my blog - so upset. It is really hard for me to do anything with my hands right n... Read more

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