Wednesday, April 14, 2021
So I had my follow-up with my Neurosurgery team yesterday.
I got to UPMC Montefiore at 11:45, to have my MRI's done. I was in the tube for a little over 2 hours while they took pictures of my brain and neck. Not the most exciting time, but necessary. I'm pretty sure that I fell asleep during the process because honestly, I didn't feel like it was 2 hours.
I got out of the MRI at 2:15 and had to high tail it over to Presby for my appointment at 2:30. If you have ever run the gates at a big airport, you know what I'm talking about. Lol.
I met with the PA at 3:30, they were running behind for the day. He came in and had me do a bunch of mobility stuff to check muscle tone and traction. Made me walk the halls, checked my incision.... and it was back to waiting.
The surgeon finally made it in around 4.... he gave me the best news!
My surgery was 100% successful. He said that my brainstem has reshapped itself back to "normal", there's not compression on either side, my brain juice is flowing properly, and my cerebral tonsils are now "round and bouncy" like they are supposed to be. I still have a bit of a "Chiari" but it's receeded from 22mm to 14mm over 3 months. He said he's not concerned because they are not putting pressure on the brain stem and the fluid flow is not being blocked. He told me that the brain looks great, a lot of the places that had poor pressure or high pressure were relgulated (things like my pitutitary glad), he said he's extremely happy with the outcome and doesn't feel like a revision will be needed based on the films and my reports! I told him that i feel better than I have in 5 years, and that I didn't know I was feeling bad 5 years ago. lol.
He gave me clearance to go back to the gym and lifted my lifting restriction completely!
Life can return to normal.
He commended my current weight loss and encouraged me to keep working towards my goal of 180, that it can "only help." He was really impressed that I managed to drop 20 lbs post surgery.
This is the best news that I have had in a long time. I'm happy that I listened to my gut and husband and found a different team to take care of my head... I've been blessed by the team that worked on me.
So here's to the next year. I have a goal to be at my best weight by April 2022, so I can show other's dealing with this disease that it's possible to overcome it!