2020 - day 3
Sunday, February 09, 2020
Back to tracking again. It has not been my best start, but I am starting.
Still haven't gotten my MRI and working with the clinic as of Friday again.
Not only (actually to a lesser degree in past few days) are my headaches still daily, but my urine is now slightly brown. I know dehydration is a first thought, but I have been drinking a ton.
Today I had a slight up tick of energy. And in doing so started reading about the new biopsy diagnosis. For years now I've been put in the RA square - but because my blood work never converted off of sero-negative and because after severely deformed hands and feet but xrays showing not joint erosion or internal deformity - this diagnosis is not true. But because nothing else nicely fits me I am on medicine for Multiple Sclerosis and Rheumatoid Arthritis.
Now that I have a new pathology supported diagnosis I think it is time to strike out and find a new doctor that is willing the treat me, at least with the new label, and possible entertain seeking other possibilities.
That's where I got excited today. I found a doctor that has training in both Rheumatalogy and Dermatology. That combo fits me sooooo much better since the pathology is Skin based and my internal problems are more connective tissue.
New plan to interview new doctors and talk to insurance of what will have in network coverage.

HOPE