Asked to Return for Additional Testing
Monday, May 13, 2019
The sleep doctor and I connected this morning. The results of the overnight sleep study a couple of weeks ago were puzzling to them. I've been asked to return for additional testing. Not surprised.
Now, I wait for the schedulers to call to arrange the appointment for additional overnight testing.
Another appointment with the primary care doctor tomorrow. She said she'd look into something for me and it appears that the ball has been dropped. Email did not work. So, tomorrow we can talk directly about it because I've scheduled an in office appointment.
Something funny (well, not really) happened while I was speaking with the sleep doctor.
She says, "I see no clinical notes between 2008 and 2014."
I said, "Yeah. That's because I was sent home with a CPAP machine, after testing positive with an ambulatory test, and no one ever checked in with me again. Never talked to or was seen by a sleep doctor … ever."
My response was met with a pregnant pause. I then told her that I do not want that happening again and I am not content to have symptoms treated with no attention paid to underlying cause. She was also curious why I didn't accepted treatment after testing positive with the ambulatory test in February.
Well, given what occurred a couple of weeks ago with the overnight test, I am sure glad I pushed back! And, I have to wonder had I accepted the treatment following the positive ambulatory test would there be another extended gap with no clinical notes for years?
No one has bothered to check in on my dear husband following his sleep apnea diagnosis or surgery to address whether or not there has been an impact on his sleep apnea. Nothing. Like me years ago, sent home with the machine and that's it. He didn't use his CPAP for weeks to months following the surgery and no one called to see why he wasn't treating and supposedly that machine is wirelessly sending data 24/7. Yeah. Not impressed.
And, he is not me. He will not push. I'd be in their face. Yes. I am THAT patient.