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JEANKNEE
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Asked to Return for Additional Testing

Monday, May 13, 2019

The sleep doctor and I connected this morning. The results of the overnight sleep study a couple of weeks ago were puzzling to them. I've been asked to return for additional testing. Not surprised.

Now, I wait for the schedulers to call to arrange the appointment for additional overnight testing.

Another appointment with the primary care doctor tomorrow. She said she'd look into something for me and it appears that the ball has been dropped. Email did not work. So, tomorrow we can talk directly about it because I've scheduled an in office appointment.

Something funny (well, not really) happened while I was speaking with the sleep doctor.

She says, "I see no clinical notes between 2008 and 2014."

I said, "Yeah. That's because I was sent home with a CPAP machine, after testing positive with an ambulatory test, and no one ever checked in with me again. Never talked to or was seen by a sleep doctor … ever."

My response was met with a pregnant pause. I then told her that I do not want that happening again and I am not content to have symptoms treated with no attention paid to underlying cause. She was also curious why I didn't accepted treatment after testing positive with the ambulatory test in February.

Well, given what occurred a couple of weeks ago with the overnight test, I am sure glad I pushed back! And, I have to wonder had I accepted the treatment following the positive ambulatory test would there be another extended gap with no clinical notes for years?

No one has bothered to check in on my dear husband following his sleep apnea diagnosis or surgery to address whether or not there has been an impact on his sleep apnea. Nothing. Like me years ago, sent home with the machine and that's it. He didn't use his CPAP for weeks to months following the surgery and no one called to see why he wasn't treating and supposedly that machine is wirelessly sending data 24/7. Yeah. Not impressed.

And, he is not me. He will not push. I'd be in their face. Yes. I am THAT patient.
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Member Comments About This Blog Post
  • MTN_KITTEN
    Hubby was sent home with almost everything wrong after a sleep study … only to get things corrected 5 months later.

    Hmmm … his attitude … why go through all this if no one really cares.
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    23 days ago
  • RKOTTEK
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    43 days ago
  • AQUAGIRL08
    We definitely need to be our own health advocates! Like you, when I'm being treated for something I prefer to be monitored. How can the doctor tell if the treatment is the best choice for us, if the doctor never monitors our progress? Color me picky but if a professional is hired to do a job, it needs to be either totally completed or an ongoing project. I'm so sorry that your treatment was so sloppy. Hopefully by speaking up you will get some answers!
    43 days ago
  • PERRYBABE
    We have to be our own advocates for our own health. It's okay to be assertive.
    43 days ago
  • WATERMELLEN
    Good for you for BEING that patient . . . so vitally important.

    We can't require people to care . . . but we can draw to their attention when they have not. And maybe shame them into "pretending" to care?????
    43 days ago
  • SRWYLIE
    I am glad you are THAT patient! You are a great advocate for yourself, and that has taken you where you are today. I keep hoping that answers are revealed, SOON! Hugs always.
    43 days ago
  • KRISZTA11
    It is good you take care of yourself and speak up, Jeanne.
    Now the doctors see you do care, and probably they will too.
    Certainly they will care more than before!
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    44 days ago
  • QUARTERMASTER3
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    44 days ago
  • GABY1948
    Glad you are standing up for yourself. It's amazing how much we have to do that for ourselves.
    44 days ago
  • BJAEGER307
    I'm glad you are THAT kind of patient. More people need to be like that with their doctors. I hope you get the information that you need Jeanne. Wishing you the best.
    44 days ago
  • _RAMONA
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    44 days ago
  • RAMONA1954
    I hear you. Ten years later follow up. I told them I couldnt breathe with the mask. Plus I keep getting bronchitis because of the humidity they had set up so I stopped. Plus I had lost 50lbs at that time. I told them I wasn't going to use it.
    44 days ago
  • 1CRAZYDOG
    good for you for pushing. You deserve answers. Should not have to push, but that's how it is now. Alwasy have to advocate for yourself.

    Hugs and good luck w/your PC provider tomorrow, too.
    44 days ago
  • SUNNYCALIGIRL
    Wow! No follow up? That is NOT professional. And flys in the face of the Hippocratic oath.
    44 days ago
  • ONEKIDSMOM
    Go, Jeanne! BE in their face. It's YOUR health we're talking about here, and nobody cares about it and "getting it right" more than you do! So, yeah, push, woman, push! emoticon emoticon emoticon emoticon
    44 days ago
  • PHOENIX1949
    Hmm. My first year of using the C-PAP included quarterly follow-ups and has been annual since then with the understanding that if I experience any problems or have any questions, notify the office. Delivery of supplies on a timely basis is a whole other story -- fingers crossed 'cuz last 9 months have gone smoothly. My cardiologist initiated the testing but the annual followup is done by a pulmonary specialist. When I switched to a Bi-PAP when going on Medicare, the provider actively monitored the wireless connection for 3 months and sent me weekly printout scans to verify they were monitoring me (Big Brother? -- machine has a GPS locator with it so they can also track compliance if away from home).

    Good luck with everything -- hope answers are around the corner.

    emoticon emoticon
    44 days ago
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