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Thursday, March 08, 2012

.....yeah, just forward all my mail to any of a variety of doctor's waiting rooms around town....


I last posted here in September. Since then I have been fighting an uphill battle with my weight, and my health in general.

To cut to the chase, found out yesterday I have Epstein-Barr virus. Probably in the recovering phase, or possibly chronic....they will test again in six months to see where my levels are at.

This would explain the extreme (EXTREME) fatigue I have been experiencing since the first of the year. For those who know me, you will understand what I mean by extreme when I confess to you here and now that I HAVE NOT EXERCISED AT ALL IN THE LAST TWO MONTHS.

Yeah remember me? The girl who worked out 30-45 minutes seven days a week? HAH.

I can barely get out of bed some mornings. It is strictly my stubborn mid-west do-or-die attitude that gets me up and around most days. To put it in blunt terms, at the very bottom of the well (about mid-January), I told my husband, "I feel like I'm dying."

Some of my other health issues over the last 1-2 months -- sore joints, achey feet (my feet are KILLING me most days), severe heartburn and indigestion, night sweats, lack of focus (I like to call it 'brain fog' -- raise your hand if you get the movie reference!)....geez the list goes on. I don't suppose I need to add "weight gain" to that list, isn't it a given? :/ (yep, now at 145, a number I hoped I'd never see again in my life)

I have also found out that my Vitamin D levels are dangerously low, my bad cholesterol has gone up, I have blood in my urine (am off to the urologist in the near future, oh joy), and there may be something going on with my heart (a 'functional' murmur, a valve problem...?....the cardiologist appt is next week).

I am awaiting further blood test results from my visit to the endocrinologist yesterday --- they are testing for Hashimoto's, Celiac, and I am not sure what else.....will go back in a couple weeks for an ultrasound on my thyroid, as the doc said it's enlarged, although she said not to worry about it, that it was nothing "ominous". Gosh don't doctors know better than to use words like "ominous" with their patients!? Even when they are telling you something is NOT ominous!?

You know what was ominous to me? When I noticed the petechiae on my torso...first one side, then the other... then on my legs.... RAN to the hematologist only to find my platelets are fine -- well, as fine as they get for me, 'normal' for me, which is low, but not dangerously so. So what is up with the petechiae?! No one knows or seems to care.

I think that's enough. I needed to vent. :) I am still kickin', just not HIGH kickin'..... :-D
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Member Comments About This Blog Post
    I am just getting back into the swing of things and read your last entry. OMG...I don't know what to say. How overwhelming this must all feel for you! Sending you a huge hug.
    2604 days ago
  • M77355
    Hi there, I hope you don't mind me saying hi - I saw one of your posts on Sami's page ... I'm sad for you to be dealing with Epstein-Barr and hope you find a successful route to deal with it.
    August 5th was the first day of West Nile fever symptoms for me and, wow, what a ride it has been. Local GP and a Houston infectious diseases doctor were truly no help; my GYN handling other things was my best help! I resorted to asking for info from two online drs whose enewsletters I enjoy receiving. I've had to go virtually all natural except for a pain reliever called Zipsor (for 3 months).
    To help maintain a better body pH, I was already using Bragg's Apple Cider Vinegar but learned on a fibromyalgia site that a higher dose throughout the day/daily helps break up the crystals (gout-like) that settle in all the joints causing the bruising and extreme incapacity/pain. I promise it is the best step I've taken and was able to stop Rx Zipsor.
    I could give you the list of everything I took in case it would also work for EB, but I continue with ACV, Bragg's Systemic enzymes (Youtube videos explain it) and Curcumin Phytosomes.
    I hope you've made progress and have found a means to nip that underlying virus.
    Wishing you "wellth" !

    P.S. In 2006 I had Rocky Mountain Spotted Fever (yes, another fever ;-) and freaked when I woke up to petechiae (you can Google images of RMSF) from my neck, inner arms, torso, and legs. Mid-summer and thankfully worked in a freezing office so I could cover up. Chills, fever, listlessness but kept working. Found what could have been a tick bite on tummy from recent hike ... might have been instrumental in later health problems? Possibly but am working every angle to get health and itality back as I'm sure you're trying your best, too. I hope you're feeling much better.
    2640 days ago

    Comment edited on: 1/4/2013 2:23:52 PM
    Thank you ladies!
    2937 days ago
    So sorry to hear what you are going through! I know that must be so frustrating for you, but glad to hear you are making your health a priority.

    Take care of yourself and vent whenever you like! We are here for you!

    2938 days ago
  • SJ1320
    I'm so sorry! You must be feeling terrible because I remember how dedicated you've been to exercise. I am happy to hear that you are seeing doctors and taking care of yourself. You can always get back on track with weight loss and exercise later. I think that you are doing the wise thing to concentrate on your health. I've been so busy taking care of my elderly mom with my husbands help that I haven't been able to concentrate on my fitness goals either. Please vent to us, your friends, any time. We are here listening and we care.
    2942 days ago
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