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HOOPB2 SparkPoints: (71)
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11/30/12 5:29 P

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I feel defeated and overwhlemed.. I am not sure where to begin. Diagnosed with PCOS OCt5th2012 and I have thyroid issues for about 7 years now. I just feel like I got hit with a double dose of BAM!!! you will nver loose the weight kind of BAM. but I have been on metformin for almost 2 months.. worked my way up to 3 pills day 1500mg for about 3 weeks.. I keep forgetting to take them all day.. hard to remember.. but I am not gaining weight now.. I am frustrated and would like to start loosing big amounts.. so i can feel better. I am tired all the time and don't know where to begin.

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INNERDREAMS's Photo INNERDREAMS Posts: 47
8/12/12 3:39 P

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It's not wrong at all!!! We all have our "UGHHH" days! I had been gaining a lot of weight over the years despite healthy eating and walking miles each day (no car at the time), only recently did doctors figure it out, instead of telling me 'you really have to watch your weight' (no sh*t lol). I had thought the weight gain was stress but realized something was very very wrong last year...so tired I couldn't get out of bed, wasn't able to look for work. It seemed like life was just flying past me. I had enough and went to the doctors to get tested again, this time my tsh was up, put me on meds and started feeling better...then it stopped working and I felt like crap again, D was low, felt better again then it stopped. After my doc told me it was cuz I wasn't sleeping normally I said thats it and saw an endo. I could kiss my endo right now lol, feeling better then I have in a longgg time...she diagnosed me with PCOS which is what I thought I had in the beginning (gyno said no because I had no cysts)...my testosterone was wayyy up. She put me on metformin, and yeah I don't have an appetite but I can still eat and well...I'll take that for right now over everything else. Lost 7lbs in the last two weeks...still have another week until Im at full dosage so hopefully stomach problems wont get too bad. Willing to give it a shot. But I was on my last leg not that long ago and taking control of doc appointments and finding support here made all the difference for me. I always figure there's a solution out there for everyone...we'll all have our bad days (whyyy do I have a five o'clock shadow, I JUST SHAVED lol) it's going to happen, but they'll get better! Just about finding the right balance for you..whatever that may be. It's nice to be able to talk to people going through the same things, not many people can understand what we're going through. I relate on the comments, family says the same thing to me..."well you must not be exercising or you're eating too much" (I ate about 900 calories a day just to stay the same, and that was already 100lbs more then I weighed three years ago). You just have to shrug it off and come on spark to vent lol, We got your back, you can do this!!!

Hypothyroidism DX: 3/14/2012
PCOS DX: 11/16/2012

Metformin 1500, Levothyroxine 50
Inositol, B12, VitD, Multi vit, Saw Palmetto, Magnesium.


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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 2,031
3/24/12 5:56 A

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:) The doctor and the Endocrinologist told me I wasn't even prediabetic. They said all my numbers were pretty good, except my weight of course. I know insulin resistance the main thing for PCOS so it's kind of confusing. I know that if women aren't usually insulin resistant, they usually become insulin resistant after some time. I don't even have cysts on my ovaries. The way the Endo determined a PCOS diganosis was a blood test for androgen levels. He said they were really high. He also tested for cushing's but that came back negative. Maybe I am just misunderstanding how insulin resistance works. Either way, I am just trying to stay a little more positive and hopefully it will pay off.
Thank you.






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SHEBE100's Photo SHEBE100 SparkPoints: (37,091)
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3/23/12 11:57 P

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Yay!! Good attitude. It's an uphill struggle but you can get there. I was having chest pains on metformin as well. And actually you can take metformin when you're prediabetic as well. It works on the insulin resistance which is the heart of PCOS. I read somewhere to try and exercise at least 20 minutes every 24-48 hours. And weight bearing activites are the best. It helps your body continue to respond to it's own insulin. Also, you're right about being big and having PCOS. You can be skinny and have PCOS. It's just all how we're wired. Don't give up and lean on us anytime you need an extra push.

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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 2,031
3/22/12 10:11 A

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Thank you so much for the support. I really appreciate that this group is here because I just don't feel like sparkers on the main message boards get it. They think that you are in denial or something.
Don't feel too bad about your height/weight. I am 5'4 and I weigh more than you did so I uncerstand. I can't take being this weight. It is uncomfortable and I don't have many options of things to wear! :(
I gained a significant amount of weight (60 lbs!) in a 3 month span and I was concerned so I went to the doctor. I ate really healthily and was moving constantly so I knew something was up. I thought the Dr. would believe me because I maintained the same weight for so long but she thought I just wanted something to blame my weight on. Well, at first, she believed me until the tests that she did came back negative. I saw an Endo that was a jerk and finally I was able to see one who wasn't a jerk. I appreciate that my Endo wasn't a jerk and he was able to dignose my PCOS and Hypothyroidism but he kept trying to push the Metformin on me. It gave me terrible chest and stomach pains and he doesn't seem to know about other medications. I have no idea if this is true, but I heard you are only suppose to take Metformin if you are diabetic. I am not diabetic, at least yet anyway. Fingers crossed that it stays that way. He is the only other Endo around here. Not only that, but I have to have a referral for any specialist I see.There is so much more to what I went through but that is on my blog if you want to know the whole story.
I am glad you mentioned how eating less and exercising more doesn't work for us the same way as it does for other people! I wish other people would at least try to understand but what can you do? Oh, another thing I hate is when people say being overweight causes PCOS. I will ALWAYS ALWAYS ALWAYS believe it's the other way around. If I didn't have PCOS and Hypothyroidism, I am pretty sure I would be closer to a normal weight! I just had to get that off my chest! :) I love working out but ever since Hypothyroidism, I can't even drag myself to the gym. I am trying to convince myself to go today. The brain fog is the worst. I use to be able to keep track of what I was saying in conversations but out of nowhere, I would forget what I wanted to say or what I was saying. That is exactly how I feel: RUN DOWN. I feel like when you have a cold, minus the coughing and sneezing. I have such low energy. I take Levothyroxine & the dose is 0.025. The doctor said my Hypo is mild but it doesn't seem mild. I have the never ending exhuation, low energy, very dry skin, etc.
I know what you mean about size. I am going to try my best. I think it's hard when you have no control over your body. We can eat healthy, move around a lot but we don't have normal metabolism. It's always going to be a battle. It's hard to go into society when people assume you are just lazy and all the other negatives they assume. I wish there was more awareness out there about these issues but people try to change things around. There are people who don't even think PCOS is real! That is so disheartening and it angers me.
I really do appreciate all of your advice. I don't like it when people say: Stop complaining or IF I can do it, and I have the same issues, then you can do it too. Everyone's body is different. Different things work for different people. I might lose some battles but I refuse to lose the war! :)








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SHEBE100's Photo SHEBE100 SparkPoints: (37,091)
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3/22/12 8:34 A

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Bluestar5, I don't think it's wrong to feel that way. Believe we have all been in that same boat. Over the course of the last 15 years I had gained weight, lost weight, gained weight, lost weight all without ever changing my diet or exercise habits so I knew something was up. But nothing was ever found because my docs never looked at the big picture. Then on top of being 60 lbs heavier than I use to be, and after being diagnosed with hypothyroidism I gained another 65 lbs in a 2-year span, while walking 3 miles daily and taking high doses of thyroid meds. I worked part-time as a courier and on the days that I wasn't working, you couldn't peel me off the couch. The doctor that I was under at the time basically called me lazy and said I was too dependent on caffeine to get me through my day. uhhh duh, when your TSH is 100+ you'll do anything to make it through the day. I had two kids and a husband who had injured his back and was not working, I felt really defeated. My doctor got upset when I went to my gyno to have her submit a request to the only endo in town to be seen. My doc basically said until I fix my thyroid there was no reason to see an endocronologist. However, my doc was not listening to anything I had to say and somehow always blaming it on me. In fact, when I joined Curves and lost 5 lbs, he said that's nice and all, but all you do is go there to lift a little weights and mainly visit. I had enough at that point. My endo listened and got it. He would be the one that would diagnose my PCOS. After learning that, I really felt defeated. I just wanted to cry....The good thing is my endo listens so when we got my TSH closer to normal and stabalized and I couldn't shake the fatigue and brain fog and feeling like I constantly had the flu because I ached so much, he agreed to put me on cytomel. That made a huge difference in how I felt. They also had me on metformin, and I'm with you, I can't take that it's upsets my stomach too bad. They switched me to glumetza, but that stuff is expensive so I can't stay on it long because I can't afford it. I will say it has taken me a while to really educate myself and to listen to my body on how certain foods make me feel. The exercise more and eat less for us does not work. If you eat too little of calories your body will hold on to it, and that makes you feel more tired and you don't want to work out. I had days of being so tired it literally hurt to think. I have fought through everything and over the last two years lost and maintained an 25 lb weight loss. In the last two weeks, I have started an all natural weight loss program called plexus slim. It was a drink made for diabetics. Since I can't stomach metformin literally, and I can't afford Glumetza, I figured why not give it a shot. I will run my bloodwork after a month of being on it and see how it is doing. I wish I would have started taking it the first time I was told about it 6 months ago. The first day I drank it I felt like I had energy. I can make it through my day now that's for sure. You can read about it at plexusslim.com/sjhuggins. But I'm not here to push products to you, I'm here to say that you are not alone. In fact, I avoided my 20-year reunion for the simple fact that I was too embarrassed to see anyone. When I see people from my hometown that does not recognize me, I run and avoid them. To top it off I stand 5' 71/2" and weigh 239 right now. So I feel like an amazon next to people. I really felt like one when I weighed 265. And I can't stand looking at pictures. All I have to say is I am glad that my husband is a patient man when it comes to me and my aggravation with my weight. When I met him I was a size 6. I'm now a size 22. I don't want to be that small again, but I think around a 12 would be nice. So don't drop your endo. Talk to your endo and see if there is any need to increase your meds. Ask instead of increasing T4 meds if you can be put on T3 meds as well which is the cytomel. Also, pay attention to how and when you take your medicine. If you take it in the morning, make sure you don't take it with coffee or that you eat or drink anything with calcium in it for at least 3-4 hours afterwards. Also make sure you take it consisently at the same time everyday. I have learned taking mine at 10:00 a night works for me because it get better absorption and I can eat my cereal and drink my coffee in the mornings. Also, listen to your body after you eat. If I felt my heart racing but it felt like I could lay down and go to sleep, I would make a note of what I ate. I would try it again and if I felt the same afterwards, I would avoid that food. It took me feeling defeated and ran down, to get me really mad and I started doing a lot of research and learning what works for me. And that is the key. It's what works for you. Please feel free to post anytime you feel defeated or run-down or frustrated. That is what we are here for, to listen and help.

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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 2,031
3/22/12 5:31 A

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I am so exhausted and fed up of dealing with these stupid hormonal issues!!! They have wreaked so much havoc on my life and I don't think I can take anymore. In march, 2010, I was the same weight I always was. Then 3 months later I was way heavier. Stupid PCOS and Hypothyroidism!!!! I ate healthy meals. I exercised. I eat less than everyone around me and healthier than everyone around me too but do they keep gaining weight? NO! AND I am so tired of people saying stupid things like eat less and exercise! HORMONES do not care if you follow those rules! I have the lowest dose thyroid medication. I need a different doctor who will work with me instead of making me feel way worse. I have so much anxiety over these hormonal problems. I don't want facial hair. I want to wear nicer clothes. I want to be able to eat a meal without worrying about gaining weight. I want to be able to go to the gym and not feel totally uncomfortable. I hate when people who are way smaller than me complain about their weight to me!!! It just feels like no matter how many positive things I do, I am still struggling. I hate when people say: At least it's not something worse. I know that but that doesn't make me feel any less ugly and all of this takes an emotional toll. I try to talk to people about it, but they don't understand. I can't take Metformin b/c it makes me very, very ill. My doctor thinks I don't need to see my Endocrinologist anymore. I gained 5 lbs and I am really upset about it but I guess that's not bad considering I maintained by weight for nearly two years (in May) but I would give anything to get back to the weight I was before all of this! I barely even go out of the house anymore because it's too embarrassing. :( On top of all of that, some of our family members want to visit in the summer and one of them has lost a lot of weight and that is all she talks about and I am happy for her but last year she told me right to my face that I could lose weight IF I WANTED TO!!!! Can you believe that? She doesn't know anything about hormonal issues. She was even in my room and she tilted her head to see the size of a dress that was hanging in my closet. She use to be waaay bigger than me and I NEVER, NOT ONCE said anything negative about her weight so I just can't believe how ignorant she would be towards me. I don't think I can be as nice and tolerant this year!
I try to deal with this the best I can but sometimes I just lose control of my emotions. I just want someone who understands how if feels to feel exhausted all the time and to deal with 2 metabolic disorders that cause all these issues that are ridiculous! No girl should have to worry about making sure she doesn't have hair on her face before she puts her makeup on!
I feel defeated! I know complaining won't do anything about it but is it so wrong to feel frustrated? emoticon

Edited by: RISINGBLUESTAR at: 3/22/2012 (05:37)





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