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ELIRA_VALDETE SparkPoints: (0)
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5/19/12 12:09 A

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For me... I have always been over weight, but in my second year of college (despite healthy diet and exercise) I gained 80 pounds. I was diagnosed with thyroid problems 2 years ago this June (two years after I started gaining weight), at that point it had been about 3 years since I had had a period, I was moving around a lot with college and family and didn't have a doctor, and when i found a doctor she did blood work for thyroid and PCOS. The blood work was positive for thyroid and negative for pcos so she forgot about the pcos (and didn't do an ultrasound) and just treated the thyroid.
I was able to lose about 25 pounds working, eating right, and exercising. It was hard and I hit a plateau after the first 3 months ish. then at the beginning of this year I got off my thyroid medication for two month because my doctor screwed me over and I had to find a new doctor. I gained all the weight back and I'm starting the journey to weight loss once again... only this time my new doctor finally diagnosed me with PCOS. So I'm on metformin and synthroid. and I've already noticed some weight loss with getting back to working out. I'm making this summer all about me. I'm really cleaning up my eating habits (and my boyfriend's) and I'm going to try to lose as much weight as possible and finally be healthy.

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SHEBE100's Photo SHEBE100 SparkPoints: (37,091)
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1/15/12 8:58 P

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I use to have really painful periods where I didn't know which end to put on the toilet. But I was not thyroid meds at that time, and they suspected that I had endometriosis. Are you contributing your pain to your thyroid meds, or just for that time of the month?

If it's during your cycle, at the first sign of pain you need to take aleve or ibuprofen if you can. If you let the pain get away from you or out of hand, you will have a very hard time getting it to subside. I always took it very easy during that time (no exercise or anything that would raise my heart rate) and avoided caffeine like the plague. It seemed like anything would trigger the pain so I learned and avoided all that during that time, and the week before. My cycles were never regular so I had to go by my symptoms such as breakouts, how much I ate everyone out of house and home, and how radical i got on my mood swings. If they were all extreme, I knew it was going to be very painful during that time. I hope you find a solution.

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KBEAR622's Photo KBEAR622 Posts: 13
1/7/12 9:44 P

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Does anyone have any suggestions for thyroid medications or for painful periods? My cycles are consistently timed now, but most month last year I was in so much pain I would throw up. :( I was on Synthroid but was still having symptoms with "normal" numbers. My doc and I decided to try Armour, and the first week it was great but My symptoms have steadily gotten worse since then. The past few days I was weepy in the evenings and today I have been fighting air hunger again. :( That is just miserable. I am scheduled to go back to doc on the 24th but plan to call Monday to request an earlier appt. Any recommendations for new options or combinations to try? I was recently at a conference where a fellow thyroid fighter recommended compounded med. Has anyone tried that?

Thank you so much ladies for your help! I have only been diagnosed for a little over a year, so I need some advice from you veterans!

Edit: I read tonight that many people spread their dose out during the day, before breakfast, before lunch, and in the evening. Since my mental/mood symptoms. Consistently appear around 6-8 hours after I take Armour in the morning, this might be the solution I need. I feel great the first 6 hours of my day, but I don't want to take less in the am and lose that feeling. I am currently supposed to take 60 mg x2 once a day. Should I ask to try 60 mg x2 in am and 60 mg x1 pm? Thanks for any suggestions!

Edited by: KBEAR622 at: 1/8/2012 (00:22)
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SHEBE100's Photo SHEBE100 SparkPoints: (37,091)
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1/6/12 8:15 A

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Rehabnurse 2215 - I had started a partial month of the Insulite system and had noticed some differences, but had to get off for financial reasons. How have you been doing on that? Does it help you? Are you on metformin as well? I don't get along too good with metformin and would love to know if the insulite alone is helping you.

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SHEBE100's Photo SHEBE100 SparkPoints: (37,091)
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1/6/12 8:13 A

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Hey Coloradogirlnow, glad to see you have joined us. After such a struggle, I am glad to see that they have found a management plan that has worked for you. I feel the same way when it comes to my kids; I don't want to be the big mommy. I want to be "my normal weight" mommy. LOL

I hope your exercise and strict nutrition plan continues to give you energy and help with your weight loss. Good luck.

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COLORADOGIRLNOW's Photo COLORADOGIRLNOW Posts: 21
1/1/12 12:30 P

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Hello everyone, I am new to this group and I am not sure I am in the right group or not. I was finally diagnosed with PCOS this Dec and June of 10 w/HT. It is funny to me as I had such problems with my weight and periods when I was younger and then when I came off the pill to get pregnancy in 1999 I never had a period. after 2 years we were successful in getting pregnant only to miscarry. I had a great OB who tested my progesterone levels and found that my body was not supporting the pregnancy. We decided to take a year off as the clomid and other meds made me crazy and it had been such an emotional roller coaster I was a mess physically and emotionally. I never had a period and within 3 weeks I had never been so sick in my life! You guessed it I was prego by the grace of God I immediately started on progrestrone and continued taking it until my 20th week when the placenta was established enough to produce what it needed. With the help of great Drs I have a son 10 and a daughter 7, I am not sure why they did not diagnosis me back then.

I have lost and gained the same 50 lbs all my life. Most recently I started swimming a mile every morning before work in Nov 2010, I have really bad ankles and can't stand running. I lost 37 Lbs and started to really feel good. Then suddenly I couldn't force myself to swim, I went from a solid hour to not even being able to finish a lap. I started having problems sleeping, they did a sleep study that showed no apnea, but narcoleptic traits. I could not keep my eyes open, I could not remember what I was doing and my husband and kids started to notice that I was not apart of the conversations. My Dr. ran so many blood test that it took over 10 large vials to complete them. My testosterone came back high, with lower Vitamin D levels and slightly lower cortisol levels. She sent me to a Specialist that deals with PCOS and all my records to an endocrinologist. She was thinking it was either PCOS or Addison's Disease.

The endo thought I was on the verge of Addison's and felt treating the PCOS aggressively might support my adrenals enough to bring them back around. The PCOS specialist ran more test to verify I had not started menopause early (forgot to say that I had a hysterectomy in 06 for cancer). The good news was no menopause, but more than likely PCOS. I have done a lot of reading and it seems PCOS is a diagnosis of elimination more than a certainty.

I am now on a stimulant for the narcolepsy and a strict nutrition exercise program. It has been about 2 weeks and while I have not only lost 7 lbs. I also feel great. I have not struggled with the diet portion of the program as I have tried to cheat once or twice and after a few bites feel extremely sick. I am following what the nutritionist calls a hunter/gather food plan. Lots of fresh veggies, whole grains and lean animal protein. I can not eat seafood so I do not have fish at all, which is ok.

For my exercise program I rejoin 24 hour fitness, which is where I use to swim. I love the spin classes, there is a great strength training class called body pump. It gives you the feel of working with a personal trainer without the extra expense. I certainly am not in a position to pay hundreds of dollars a month to do that, no matter how much I would love to.

I really feel like I can make these changes and get my l life back. I want to be an inspiration for my daughter, not an embarrassment. She tells me I have a tummy because I loved them enough to let them grow in there. While it is the sweetest thing I want her to know you can still be healthy after children. I want to make the changes in my family so she does not have the same difficulties I had. I know that know is the time to teach her about her nutrition and while this is something I have always taken seriously for both my kids, I have never made it a priority for myself.

I know this was a long post and if anyone takes the time to read it all, I hope it helps you. I hope to continue on my path and am looking forward to using this group to keep me on track and accountable for my actions.

One last thing, I have decided to track my progress by body fat percentage instead of weight. This is simple because while I know the weight numbers will go down based on calories alone, I truely waht to be heathy. To be considered that my BMI has to get lower and my BF% needs considerable improvement.

Thanks everyone!

Edited by: COLORADOGIRLNOW at: 1/1/2012 (12:32)
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REHABNURSE2215 Posts: 10
12/18/11 1:03 A

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Love2walk, have you tried chewing up your Armour? Not sure if you're on it still, but I learned that trick from some patients. They reformulated the Armour a few years ago (if memory is right, and it probably isn't!), and they also found it didn't work. CHewing it helped, cause it took away the filler that was just binding up the med. Just a suggestion.

I haven't found a magic success formula, yet. I've gained and lost weight, and I am up over 220 now. In fact, I am afriad to weigh myself at the currnet moment. I was doing SO good tracking on SP, and watching what I ate. And then I *really* struggled with depression again. Holidays do that to me. I am still very depressed, but I am exercising again and I am tracking on my own.

My PCOS and thyroid are a mess. My doctor is useless. I didn't chose him, he took over as my primary after my NP quit and moved away. :( I am praying I can at elast get on some cytomel since I can't take Armour due to pork allergy.

I have found that "stop the thyroid madness" (both the book and the site) has helped immensely figure out my symptoms and such.

I am on the Insulite System again, and I already see a difference in my energy. I sleep all the time, and I know I need my thyroid meds adjusted.

Can't type anymore, it hurts my ahnds too much. :(


KBEAR622's Photo KBEAR622 Posts: 13
12/6/11 10:53 P

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At the beginning of October I started the Thrive! program because a cousin was having success with it. If you're looking for something to help you put all the pieces of good nutrition/healthy lifestyle together, check out their website and check out the free 7 day trial. It has been an extension of the lifestyle changes I was already making and has boosted my success with managing my weight.

I have been struggling with my thyroid symptoms since July, however, particularly swelling/puffiness, dry skin, hair loss, painful periods (they had gotten bearable the first few months I was on synthroid), cold feet and bum, etc. I met with a specialist and he prescribed armour for me with new labs and meeting with him in 6 weeks. I chose armour over cytomel because armour doesn't contain talc as a filler. Has anyone tried armour before? Any experiences with it or warnings about it to share? I hope this gives me the missing peice of the puzzle so I can get back to being me!

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INNERSITE2's Photo INNERSITE2 Posts: 207
8/8/11 2:22 P

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Same here with the Cytomel/Levoxyl combination. It just seems to make a big enough difference for me.

It sounds kind of complex, but after years of trying to figure out what my body was doing, this is what I ended up with:

When I want to lose weight, then I shoot for approximately 1200 cals. daily with lots of veggies and fruits and lean meats. I break that up into 6 knoshes throughout the day to keep my metabolism working. (approximately 300 cal breakfasts, lunches, dinners and then 100 cal. snacks in between). No more than 2300 of sodium daily, average around 1800.

For exercise, I do 5 mins. of strength training in the AM (there is a section at the end of "The Spark" that got me going there), with cardio like biking, fast walking or running, or stairclimbing or bellydancing at least 5 times a week.

I weigh myself daily on the same scale at the same time every day, in my PJs. Alot of weight-loss companies say it's not a good idea to weigh everyday, but if I wait to the end of the week, by then too much damage could be done (that means more money in their pockets, doesn't it?). So I watch and nip it before it becomes a problem. If I'm a pound up overnight, then I know it is likely water weight, so I will watch the sodium for a day or two till it returns to normal.

7 to 8-8oz of water daily. Religiously. Crystal Light once in a while, but the potassium in it bloats me like one of those lil spikey fishes. 8 hours of sleep, even if it means going to bed in the middle of the evening. A thyroid can't work if the body is not properly hydrated or rested for the next day (my doc actually told me that). Which means I have all the water before 6:PM so that I don't have to get up in the middle of the night and mess up the sleep cycle. Drinking some before the meals helps to curb appetite.

Biggest thing: being conscious of what I eat and what motivates me to eat it in the first place.

Remember that weight is never the same from day to day - it fluxuates, so keep that in mind. You're never going to gain a real honest-to-god pound in one day, unless you eat like, around 4700 calories in that day. So if it seems you've gained a pound overnight, you are likely retaining water.

Met my goal weight this way, at the end of November last year. But I still crave sugar something awful from time to time, and if I eat chocolate, then I'm a goner and will crave sugar the rest of the day. Gotta ask yourself if its worth it.



Edited by: INNERSITE2 at: 8/8/2011 (14:59)
You can always make new friends, but you can never make up for not being a friend to yourself!


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JKPICKLE Posts: 267
8/4/11 1:25 P

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Metformin XR, Cytomel, Levothyroixin, beyaz, and a daily womens vitamin.

I try to limit to 1200-1300 calories a day of fresh foods, and limit sugar intake.

Every other day I do 35 minutes on an Elliptical, and water aerobics.

Every other day I do an hour of strength training, where I MAX my weight and do 2 sets of 5 reps.

I am finally close to being under 200, starting at around 230 (maybe more) October 30th.

Trying to lose weight to a healthy BMI for babymakin', but also to be a healthier me.


I find that I NEED the cytomel. Its a synthetic T-3 drug and Levothyroixin is a T-4. For some reason that little push with the cytomel makes me feel better and healthier.

Edited by: JKPICKLE at: 8/4/2011 (13:27)
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TEALEAF0726's Photo TEALEAF0726 SparkPoints: (0)
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5/2/11 1:19 P

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Success formula has been working on my spirit and fire over time. I meditate, keep reading new medical books, speak with others with my conditions, all these things. It especially works really well when all my physical, nutritional, social, emotional layers are working together and with the same effort.

Edited by: TEALEAF0726 at: 5/2/2011 (13:22)
Co-SparkLeader of the Hypothyroidism with P.C.O.S SparkTeam http://teams.sparkpeople.com/hypoPCOS


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CD8099773 Posts: 382
2/27/11 1:48 P

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KBear622:

Thanks for sharing. My endo has been hesitant to give me the Metformin...I think I will push a little harder for just a chance to see if it makes a difference. Thanks for sharing!

KBEAR622's Photo KBEAR622 Posts: 13
2/25/11 8:42 P

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I have started taking an extended release form of metformin and now I am able to see progress. I have a Carnation Instant Brwakfast shake and oatmeal in the morning and a snack of trail mix and a fruit or veg at 2 plus sensible lunch and dinner. I have been following the same diet since August, but since my medication change to treat insulin resistance, I am making progress. Twenty-one pounds of progress! Good luck, everyone!

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CD8099773 Posts: 382
1/19/11 3:46 P

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Cupcake,

thank you for sharing, it sounds like your formula is working for you....yay! I have recently added at least 35 grams of fiber per day. I too count calories, try to keep my protein balanced with carbs, and exercise. The added fiber has really helped curb my appetite and I am finally seeing the scale slowly inch down...yay!

JKPICKLE Posts: 267
1/18/11 9:57 A

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I have been following a 1:1 ratio of carbs and protein, and counting calories, and walking and doing wii.

I gained a ton of weight at the start of my diagnosis, but am down from 235 to 205 and inching down everyday. Its the 1:1 ratio I think that has helped me alot.

I am also a conscious eater, I eat ALL the time, but rarely go over my calorie count.

6:30 am - pills with water
7:30 Am - Whole grain bread with nutella or jam.
10:30 Am - Banana or orange
12:30 pm - Lunch
4:30 pm - excercise for 25-30 minutes
7:00 pm - dinner
8:00pm - sometimes a small walk with the dog
9:30 - start my relaxation routine and head to bed.

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CD8099773 Posts: 382
11/23/10 12:07 P

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Hi Kirauk,

Thanks for sharing. I didn't know that WW had a new system. I will definitely check it out. It sounds like it just might be what I am looking for. Thanks so much for sharing and please keep me posted on your success!

KIRAUK's Photo KIRAUK SparkPoints: (0)
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11/22/10 6:17 A

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My thyroid levels are now FINALLY normal after 20 months of changing my dosage, so I'm hoping that I can start to lose easier.

The week before last I decided to join Weight Watchers. A friend told me about the new ProPoints plan which is based on the nutritional value of your food rather than the amount of calories. Carbs have higher points values than protein so it seemed ideal for people with our conditions.

I've not found it that difficult to follow, and in fact at the moment find I've enough points to last me all day without feeling starved. (always a plus - lol).

I had my first weigh in at the weekend and lost 2 1/2 pounds. For me this is a really good result. Of course it's just week one but fingers crossed it continues to work.

A year from now you may wish you'd started today.


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CD8099773 Posts: 382
8/17/10 3:17 P

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KEBH,

I have heard very good things about South Beach. Your success shows that it helps those of us with special health concerns. I really appreciate your sharing and will check it out.

KEBH8694's Photo KEBH8694 Posts: 117
8/16/10 7:30 P

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I am not sure if this will help you, but I have used the South Beach Diet with a lot of success (50 pounds that stayed off for a year until I started hormones). I was on metformin briefly when trying to get pregnant a few years ago. I gained weight, but I was also on clomid at the time. When I became pregnant they removed the metformin and no doctor has ever put me back on it. I currently am using Spark People only to track exercise and calories. My doctor was a lot like yours: lose weight. When I asked how, he said 16-1800 calories and patted me on the leg. Thanks. Luckily I had some friends point me in the direction of Spark People. I have changed my Spark Goals as weight loss slows to bump it up, but I also look at it differently than I have in the past. This change will take some time. It is possible without the meds, but I also know some friends and family that metformin helped in weight loss.Hope you find some help in this info, anyway.

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CD8099773 Posts: 382
8/16/10 4:00 P

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Hi Enticinggrain,

I appreciate your insight, especially about the Metformin. I might have to push the point with my endo. I do walk and jog just about each day, so that part of the formula I've got down.

ENTICINGRAIN's Photo ENTICINGRAIN Posts: 50
8/15/10 8:42 P

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I am a bit surprised your endo said that. One of the symptoms of PCOS is insulin resistance and one of the reasons we often develop type two diabetes.
Here is what they say Metformin does.
"The medication works in several ways. It reduces the amount of sugar made by the liver, limits the amount of sugar absorbed into the body from the diet, and makes insulin receptors more sensitive (helping the body respond better to its own insulin). All of these effects cause a decrease in blood sugar levels"

The diarrhea passed quickly and if you walk regularly you will at the very least not gain weight. Without the help of metformin I gained 25 lbs a year.

One of the best things you can do for yourself and walk each and every day a 1/2 mile and increase from there. Exercise seems to help make your cells be more receptive to the insulin.

I bet that type two diabetes runs in your family.
you will find more help on the team with PCOS. they are more active then here.



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CD8099773 Posts: 382
8/15/10 5:45 P

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I've been struggling with hypothyroidism for several years now. I had been on Armour thyroid, but since they changed the formula last year, it has not helped me. In fact, since the formula change, I have gained 25 lbs, despite diet and exercise. I went on Levothroid and am currently on 100 mgs. I haven't gained any weight so far, but haven't lost any either. I was just diagnosed last month with PCOS. I asked my endo what to do now? She had no answers for me. Of course they tell you to lose weight, but that's just a chicken and egg dilema. I asked my endo about positive things I've heard about treating PcOS with Metformin. She told me that Metformin only helps with weight loss because it causes diarrhea. So, my question is....what have you team members found to be a successful formula for weight loss? What meds have worked? What type of diet has worked? What kind and how much exercise has worked for you?

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