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Wednesday, July 05, 2017

Hands Up!! Anyone ever have this Crazzzzzy disorder? No warning, no anything. It's like "Knock,knock" - "Who's there" ?? "Bang" - Bang your almost dead!! Might as well be because not many medical people can (if they're any) cure it. They can offer no solid cause that introduces it into your life. Medication? Meclizine is whats prescribed. It does help a bit does but not even comes close to ending it. Sometimes it leaves on its own I'm told. (I'm praying)
When it does I hope it leaves a clue as to why it left me flat face on the floor. Barfing my brains out and unable to move.
Any secrets? Please leave them for me!
Some things in life cannot be prepared for no matter what your weight or workout choices are. This is up there near the top of the list if there is one!!
My only hint might be is "don't work it tooooo hard or lift too much. Thats what I was doing before it struck(My own landscaping and hauling bags of mulch and what not)
Please let me remind you all to take care of YOU !! emoticon
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  • no profile photo CD17870493
    emoticon I had it once : out of the blue during a once in a lifetime trip... a one time prescription got me back on my feet. It happened in the 1990s ...too long ago for me to remember the medicine, or what would be prescribed now a days. I hope you find a solution. From experience I know I couldn't get off the floor. It rendered me helpless, frightened, beyond dizzy. I wouldn't of been able to phone for help. My companions were there.
    1317 days ago

    Comment edited on: 7/18/2017 1:17:33 PM
  • _LINDA
    I suffered three bouts of this Hell on Earth. A specially trained physical therapist helped get me straight, but it was the worst experience. Its safer to have a professional doing the movement as they can use goggles that isolate your eye movement and tell which way the crystals are going. The dizziness is so violent you can be thrown down, so its safer to be able to hold on to them while they move you and also so you don't jerk them back out of position. I made sure I didn't eat anything the day/morning of the treatment.. As an emergency until I could get treatment, I was given betahistine.
    So very sorry you are suffering from this :-( emoticon emoticon emoticon emoticon
    1328 days ago
    emoticon everyone for all the information and suggestions which I will put into place and try.
    ANYTHING to feel normal again!!
    You guys are the best !
    1329 days ago
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    1329 days ago
    It sounds like many have chimed in here with experience to share and suggestions. I hope you're feeling better. And, after reading the responses, I'm wondering what causes the crystals in the ear in the first place. Is there any possibility that this could be related to what's happening in your gut right now? Do they have you taking probiotics to help your intestines heal?
    1329 days ago
  • BEBARB149
    I've had BPPV for 6 years now. I was in rehab when it started and the PTs and rehab doc didn't do anything or tell me the cause. A couple of years later I had some bad episodes so I Googled it, then went to the doc who had luckily (for me) just been diagnosed with BPPV himself. He gave me Dramamine and sent me to a Physical Therapist to have the Epley maneuver done. My episodes have been milder and shorter since then and I do the maneuver as soon as I have one. I think it's best to have the maneuver done by a professional the first time just so you see how to do it. There are online support groups but I haven't found any that were a great help. It is crystals in the ear getting out of wack that's why the weird maneuver works. I do tend to stay off ladders just in case.;-)
    1329 days ago
  • BEFIT021
    Meclazine works for me sometimes. My husband had it really bad,went to all kinds of doctors and he finally went to an ENT, which I had been telling him to do since it started. Turns out he had crystals in his ear. He's not "cured" but they did teach him various ways of turning his neck & head to move the crystals.
    Good luck to you. I know it's a miserable feeling.
    1329 days ago
    Yes I have benign paroxysmal positional vertigo too, but luckily rarely have any episodes, only had 3 very scary ones in 10 years.
    For me it was a great help that - thanks to yoga - at the 3rd episode I noticed what positions trigger and make it worse, and avoiding those helped me get over it soon.
    At the first two, I was unable to move, and probably spent a lot of time in positions that actually provoked it.
    There are experts who can teach you maneuvers to move the otolith causing the symptoms out of the wrong position, it works for many people. I wouldn't dare to do it alone, just based on internet advise, as it can make it worse if not done properly.
    1329 days ago
    Google instructions for the Epley maneuver; follow them carefully. (If it doesn't work, you may need to have a pro do it for you the first time or two.) The meclizine helps, too - eventually. It will come and go on its own, most likely. Have you seen an ENT?
    1329 days ago
  • AK1961
    Yes I have it. Go on YouTube and do some of the natural exercises. I have the meds also. The medication worsens the condition. It weakness the inner ear. I prefer the exercise and see a lot more relief.
    1330 days ago
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