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Struggling but here

Wednesday, October 19, 2016

I'm going to try to make this a quick one.

Not too much exciting stuff going on at the moment other than the daily grind.

I've been in Lupus Flare that I believe was brought on by a really bad sinus/respiratory infection that took almost 3 months to get rid of. Actually, I'm still fighting the tail end of it.

Flares suck because they cause lots of inflammation (translation - water retention) and they make my joints feel like I am trying to use them with via a Nintendo game controller (did I just date myself, lol). And I am just so tired. I feel like I am waking up from anesthesia or after a night of heavy drinking and might still be buzzed. Every. Single. Day. It definitely makes getting up to exercise more of a challenge than normal for me since I am not a morning person anyway.

I am also frustrated because I hate that I have to use the spoons* I do have to go to work, so I am missing out on things I want to do.

The treatment is a heavy round of steroids which can also cause bloating and weight gain. Thus I have gained 20 pounds in 3 weeks. I know it's not real, but still frustrating.

Anyway, I am here, reading blogs, tracking when I can, trying to be happy with 5000 steps a day rather than 10,000.

I have another race this weekend and am spending Saturday night and Sunday with my 2 childhood besties, so that will be a nice treat.

I hope you are all well. I'll try to check back in after the race on Sunday :).

Be good!

*If you aren't familiar with the spoon concept, here's a link:

www.mtv.com/news/2344740
/lupus-the-spoon-theory/


The overall feel is a bit more woe-is-me than I tend to be, but it gives a good general idea of the choices you have to make when pushing through/burning the candle at both ends/etc. isn't an option. I think it also applies to anyone with any kind of chronic illness - physical or mental.
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  • no profile photo INCH_BY_INCH
    emoticon emoticon emoticon
    1308 days ago
  • IAMSUNNYHOWARD
    I had to educate my hubs about the spoons- I get 12 a day and sometimes it takes 6 to get out of bed. I don't have Lupus, but do have Fibro. Self care is absolutely necessary! Even a flu shot can be a trigger for a flare up. Be well and good job on staying so upbeat! It is hard sometimes!

    emoticon Gentle Hugs!
    1394 days ago
  • no profile photo CD5683445
    Thank you for sharing the link about the spoons. I never knew what Lupus was until I read that!
    Have a great race. emoticon emoticon emoticon

    1395 days ago
  • JACKIEWALKS4FUN
    emoticon My SIL has Lupus. Very hard for her at times.
    Glad you have your friends with you this weekend.
    Good luck with your race.
    1395 days ago
  • BONNIEMCC488
    Sounds tough and I'm sorry you've been dealing with that! The retention is definitely frustrating, I understand.
    1395 days ago
  • 1CRAZYDOG
    It is an excellent analogy! Thank you for sharing, and sorry you're counting spoons, too. NOT EASY.

    I don't have lupus but have other issues which require spoon counting. NOT easy, but we adjust as best we can.
    1395 days ago
  • JEANKNEE
    I am going to Spark Mail you. Hang in there! Inflammatory flares are no laughing matter. They're serious. Not that I'm insinuating that you're laughing. I can see that you CLEARLY get that!


    1395 days ago
  • GLORYB83
    Thank you for sharing the link about the spoons. I never knew what Lupus was until I read that! My niece's daughter has this and now I can be more understanding when my niece tells me about her days.
    Thank you! I hope you have enough spoons always, to get through your days.
    emoticon emoticon
    1395 days ago
  • no profile photo CD13354694
    emoticon emoticon
    1395 days ago
  • no profile photo CD15597073
    Hugs! The Spoon Theory doesn't quite describe it for me, but yes, it's as close as I can find to explain how I feel to someone who doesn't understand. Keep doing what you're doing to take care of yourself.

    emoticon
    1395 days ago
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