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It's that "time" and other musings...

Saturday, April 23, 2016

If you don't like medical stuff, particularly "ladies" medical stuff, you may want to skip ahead to the picture. You've been warned.

When I got sick last year, it was all because of my evil uterus. Not only that, but it was in cahoots with my Lupus. Of course, I didn't know that at the time, but none the less...

I was admitted to the hospital with a perforated appendix in the beginning of August. The surgeon estimated it had been that way for 7 - 10 days. I just thought I had a stomach bug and somehow held it together at work for a week.

It turns out that if your appendix perforates and you wait too long, the infection can turn into a sticky, gooey blob called a phlegmon. It is extraordinarily risky to operate when that happens. In my case, the doctors decided to postpone surgery, admit me and put me on IV antibiotics. The plan was to go home in a week with more antibiotics and a couple more weeks, when the infection went away, remove the appendix. I bet you didn't even know that was an option. I sure didn't.

Fast forward another month and I'm getting sicker, not better. I went in for a STAT CT scan with assurance from the doctor that he'd call me as soon as he had the results, no matter what. It was a 35 minute drive home from his office (which fortunately has a CT in the same building) and my phone rang as I was walking in the door. He had some interesting news. The infection had spread to my lymph nodes and appeared to have settled in my liver. Or I had liver cancer, but probably it's the infection. He let me know that the hospital had a bed for me was awaiting my arrival so that I could immediately be started on IV antibiotics again and I was all signed up for a biopsy in the morning. My hubs and I packed a bag and headed out. I had absolutely no idea how long I was going to be in the hospital this time.

The radiology department declined to do the biopsy - they said that based on my CT scan from a month earlier, there was no way it was cancer (yay!) and that the spots were too deep to get to without causing unnecessary damage. At that point, I got a brand new type of specialist; Infectious Diseases. The surgeon wanted to do the appendectomy right away to prevent the further spread of infection, but my shiny new ID doctor convinced him to wait a couple of days for her new antibiotic regimen to kick in. I also had to stop all Lupus meds. Turns out that between the methotrexate, plaquenil, and the Lupus itself, my immune system was not working. As a matter of fact, my white blood cell count was completely normal the entire time.

I was in the hospital for 8 days that time, with the appy on day 6. This time, I got to go home with a PICC line so I could self-administer IV antibiotics 3 times a day for the next 5 weeks. I got to be a pretty good nurse!

About 2 weeks after I was discharged, I went to see the surgeon for follow up. He said I was doing well but was very shocked to find the cause of my appendicitis was endometrial tissue. I repeat ENDOMETRIAL tissue. My uterus had invaded another organ. He said it was only the 2nd time he'd seen it in 20 years. Sigh. Off to make an appointment with the gyno, I suppose.

Stage 4 Endometriosis was the diagnosis. It went well with the adenomyosis I found out about several years before. I'd know for a while that the uterus had to go, but this sealed the deal. It was time. Scheduled for the Monday after Thanksgiving and off I went.

On the day of the hysterectomy there were a couple of emergencies so we didn't have an OR for a while. My surgery got delayed for several hours so I didn't actually get to my room until around 1 am. I knew that I had spent too much time at that hospital when the anesthesiologist walked in earlier that day and said "Good to see you again! I did your appendectomy." It got really bad when they wheeled me into the room and the nurse walked in to do her check-in paperwork and said "what the hell are you doing here?" because she had been my nurse both of the previous times I had been admitted. She was actually my favorite.

This pretty much sums it up for me:


So now, after years of having my PMDD under control, I am suffering from the irrational non-sense once again, oh, and the cramps, because when you have stage 4 endometriosis, it still swells at that "time" and makes everything it's attached to hurt.

"But wait," you say, "you had a hysterectomy! You shouldn't have that problem anymore!!"

Alas, the ovaries turned out to be just a mean as the uterus.
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Member Comments About This Blog Post
    I think I have the exact same thing as you! I think I'm just in the starting stages because it comes and goes every1-2 months. Then I feel normal again. I'm worried I might have lupus too with the rash showing up too. I may have to have a hysterectomy. I think all of these things are related: crazy uterus, right side severe stomach burning/pain, random hand rash cysts etc.
    Glad things were diagnosed for you, I wish my doctors would figure it out too. Now I'm feeling "normal" so my doctors are like "let's wait until symptoms come back" so yay for that...NOT. lol.
    Anyways, hope your evil ovaries let up!!!
    1569 days ago
  • no profile photo CD5683445
    That is a lot to go through! emoticon
    1569 days ago
    1569 days ago
    Oh my word. That is INSANE. I'm so sorry you are going through all of this, and I hope that you are going to be on the upswing soon
    1570 days ago
  • no profile photo CD15597073
    Oh wow, that royally sucks. Although I lol'ed about ovaries being just as mean as the uterus. :)
    1570 days ago
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    1570 days ago
  • _LINDA
    Wow!! So very sorry you have gone though all this :-(( I find it amazing they didn't find the endometriosis a heck of a lot sooner. From anyone I ever heard of with this disease, its debilitating with excruciating pain every time you get your period :-( You have been through so much, wishing you as full as a recovery as is possible..
    emoticon emoticon emoticon
    1570 days ago
  • 52BINCE
    Sounds like you have gone through the ringer.....However, I always say you can't keep a person down who keeps their hopes alive.. You will overcome this obstacle and many others because you are a winner going somewhere to happen......
    1570 days ago
    Oh my gracious I am so sorry that you had to go through all of this stuff!
    And that you are still in pain but hopefully they're narrowing it down after all the surgeries and can take care of this final situation so your health can improve and you can get back to enjoying life again!.... Sending you a very big... emoticon ... And I did miss seeing you on our team but I was unaware all the stuff was going on.
    Best wishes for a very speedy recovery!
    1570 days ago
    You have had your share of issues that is for sure. Sending healing thoughts your way.
    Hugs, Rhonda

    emoticon emoticon emoticon emoticon emoticon emoticon
    1570 days ago
  • no profile photo CD16304829
    You are such a strong woman! You got through all of that and still have a sense of humor about it all! Thank you for sharing. emoticon
    1570 days ago
    WOW! That is just plain scary!! I understand leaving the ovaries in so you still produce hormones, but for a gyno to think that is ok for someone with Endometriosis- come on!

    Next time ask them for zippers- LOL

    I know it isn't funny and especially with Lupus everything is a bit wonky anyway. I am sorry you have had to go through so much! Hope they give you some reasonable treatment options. Hang in there sweetie! emoticon
    1571 days ago
    Wow that's a lot of health issues going on for you! Sounds like you're handling it well, however I know what a pain those pains can be. I haven't dealt with them in an extreme manner like yours but all those symptoms definitely suck! Hope they pass quickly for you though!
    1571 days ago
    Sorry to hear what you've been thru! Must be so frustrating, I hope you get some relief soon. emoticon emoticon
    1571 days ago
    That is a lot to go through! I hope you feel better soon!

    1571 days ago
    Good grief, and more to come? Hope they get everything figured out and you can stop going to the hospital! --Pam
    1571 days ago
    Sorry :( we women deal with so much crap with this!
    1571 days ago
    Not sure yet if the mean ovaries are coming out, but it's definitely on the table!
    1571 days ago
    Goodness. You have been through so much!! emoticon emoticon emoticon
    1571 days ago
    emoticon . . . major hugs!
    1571 days ago
  • no profile photo CD13354694
    1571 days ago
  • GLORYB83
    OMG, you've had more than your share! Keep your chin up and keep a positive attitude.

    You're in my prayers and thoughts.

    1571 days ago
    Wow! Your mean uterus put you through a lot. Are they going to pull your ovaries now too? Hope you feel better soon!
    1571 days ago
  • 56ROSE
    emoticon You have been through so much! Feel better soon!
    1571 days ago
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