Sherry and the terrible, horrible, no good, very bad year
Saturday, November 29, 2014
This weekend is my one year "sick-iversary"! Oh, it hasn't been one thing where I could say "I have whatever and this is the suggested treatment". Goodness no. First was the increased damage/pain in my wrists from ill fitted braces. Took a couple of weeks for the extra pain to settle back down to the normal levels. Then a doctor started mixing up some of my medications and they really messed up my system. One of them had me sleeping constantly and when I complained, she upped my dose. I went back to her in tears. I'm a single mother of an autistic kid. I can't be sleeping all the time! So she finally switched me to something else that just gave me painful cramps instead. I stopped going to her.
About this time (February, I think, maybe March) the sinus infections set in. Over the next several months I was on 6 or 7 rounds of antibiotics and 2 doses of steroids (one shot, one oral prescription).
So after I spent several months practically bedridden, my parents moved my kids and me into their house. Unfortunately, I've been unable to plan meals, cook, or exercise with any consistency at all so I have gained about 20lbs over this year. However, I do have medical insurance now! My primary care doctor referred me to an allergist. The allergen panel came up with 3 positive results... a certain kind of pollen, cockroaches, and wheat. He said they were all mild reactions and not something to change my entire diet over (the wheat, not the pollen or roaches, haven't eaten roaches since that apartment in college with the nasty neighbor... shudder...I still obsessively look at dishes/cups before using them) However, he did adjust my medications for my NON-allergic rhinitis (nasty bugger, that one) and asthma. That helped a lot but I still had a lot of tightness in my chest and megawatt headaches.
Next up, neurologist! Oh, I love that man! It's been about 2 weeks since I started taking his pills and I can open my eyes in rooms with lights on! I still find myself squinting a lot and I still pretty much have a headache but it's more consistently below a 5. Yay!
Last week I met a new one: gastroenterologist. She has some theories about the chest tightness but we haven't had a chance to really run any tests yet what with the holiday weekend. But I gave her some key words to work with, apparently things like rhinitis, asthma, migraine, ADHD, GERD, wheat allergy can all be related in some crazy gastrointestinal way and I'll have to get back to you on that one. Tests pending!
I'm also hoping to see a new ortho/hand specialist this coming week but that's actually unrelated. Underlying structural problems in my arms (ulnar positive variance) caused TFCC tear and ulnar impaction syndrome blah blah blah. Upshot is consistent pain is turning more and more into tingles and lack function in fingers (especially pinky and ring).
So, yes, my year has pretty much completely sucked and I'm not sure where to take my life from here. I'm very slowly getting my health, strength, and energy levels back. I can't do something active every day but I am spending more and more time out of bed. Actually cooked a little, sewed a little, done a few things here and there. It sucks but moving forward I get to redefine my life. And that's exciting... scary! but exciting!